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future without ALS.
WHAT IS ALS?
What is ALS? Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down,someone living
LIVING WITH ALS
People and families affected by ALS will be faced with the challenge of adapting to a new way of life. Below are a few resources that will help you cope with the physical, emotional, financial and legal ramifications of an ALS diagnosis. ALS Guide: A resource for SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
EQUIPMENT – ALS SOCIETY OF CANADA ALS Canada helps people diagnosed with ALS to cope with the daily challenges of decreasing mobility and communication ability and to help with retaining independence. Access to equipment and assistive devices is essential for your safety, comfort and functioning as a person living with ALS. The ALS Canada Equipment Program provides access to basic and essential assistiveREGIONAL SUPPORT
ALS Canada’s team of Regional Managers assists people and families living with ALS in navigating their journey. Regional Managers offer home visits to discuss individual and family needs, provide information and education, and assist with connecting you to other healthcare providers and community supports. They also run support groups for people living with ALS as well NEW BRUNSWICK AND NOVA SCOTIA ALS CLINICS Fredericton Stan Cassidy Centre for Rehabilitation 800 Priestman Street Fredericton, NB E3B 0C7 Tel: 506-452-5225 Halifax Queen Elizabeth II Health Sciences CentreLOU GEHRIG DAY
Lou Gehrig Day. We’re observing the inaugural Lou Gehrig Day on Wednesday, June 2nd, 2021. The year was 1939. Lou Gehrig, star player for the New York Yankees, stood in front of 62,000 fans and delivered one of the most poignant speeches in the history of sports. “For the past two weeks you have been reading about the bad break I got. ALS CANADA EQUIPMENT CATALOGUE HOSPITAL BEDS Bed Height: 15" min. - 23" max.(Measurement from floor to bed deck.) Sleep Surface: 36"W x 80"L Product Weight Capacity: • 350 lbs. patient weight • 450 lbs. inclusive of all accessories BULBAR ALS FACTSHEET-1PAGE BULBAR ALS What is Bulbar ALS? • Bulbar ALS destroys motor neurons in the corticobulbar area of the brainstem in the early stages of ALS. • The corticobulbar area controls muscles of the face, head and neck. • Bulbar ALS usually progresses faster than limb onset. How Common is Bulbar ALS? • Bulbar onset observed in 30 per cent ofpeople with ALS.
ALS CANADA – ALS SOCIETY OF CANADACONTACT USWHAT IS ALSSUPPORT & SERVICESABOUT USOUR DONORSNEWS & MEDIA We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for afuture without ALS.
WHAT IS ALS?
What is ALS? Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down,someone living
LIVING WITH ALS
People and families affected by ALS will be faced with the challenge of adapting to a new way of life. Below are a few resources that will help you cope with the physical, emotional, financial and legal ramifications of an ALS diagnosis. ALS Guide: A resource for SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
EQUIPMENT – ALS SOCIETY OF CANADA ALS Canada helps people diagnosed with ALS to cope with the daily challenges of decreasing mobility and communication ability and to help with retaining independence. Access to equipment and assistive devices is essential for your safety, comfort and functioning as a person living with ALS. The ALS Canada Equipment Program provides access to basic and essential assistiveREGIONAL SUPPORT
ALS Canada’s team of Regional Managers assists people and families living with ALS in navigating their journey. Regional Managers offer home visits to discuss individual and family needs, provide information and education, and assist with connecting you to other healthcare providers and community supports. They also run support groups for people living with ALS as well NEW BRUNSWICK AND NOVA SCOTIA ALS CLINICS Fredericton Stan Cassidy Centre for Rehabilitation 800 Priestman Street Fredericton, NB E3B 0C7 Tel: 506-452-5225 Halifax Queen Elizabeth II Health Sciences CentreLOU GEHRIG DAY
Lou Gehrig Day. We’re observing the inaugural Lou Gehrig Day on Wednesday, June 2nd, 2021. The year was 1939. Lou Gehrig, star player for the New York Yankees, stood in front of 62,000 fans and delivered one of the most poignant speeches in the history of sports. “For the past two weeks you have been reading about the bad break I got. ALS CANADA EQUIPMENT CATALOGUE HOSPITAL BEDS Bed Height: 15" min. - 23" max.(Measurement from floor to bed deck.) Sleep Surface: 36"W x 80"L Product Weight Capacity: • 350 lbs. patient weight • 450 lbs. inclusive of all accessories BULBAR ALS FACTSHEET-1PAGE BULBAR ALS What is Bulbar ALS? • Bulbar ALS destroys motor neurons in the corticobulbar area of the brainstem in the early stages of ALS. • The corticobulbar area controls muscles of the face, head and neck. • Bulbar ALS usually progresses faster than limb onset. How Common is Bulbar ALS? • Bulbar onset observed in 30 per cent ofpeople with ALS.
RESOURCES – ALS SOCIETY OF CANADA Registered Charity 10670-8977-RR0002. The Standards Program Trustmark is a mark of Imagine Canada used under licence by the ALS Society ofCanada.
JOIN AN EVENT
Virtual Walk to End ALS. June 20, 2021 Virtual. The Walk to End ALS is a volunteer-led, community-based fundraising event that brings Canadians together to show their support for people living with ALS (amyotrophic lateral sclerosis), honour those who have passed away,and
PROGRESSION
Progression. As ALS progresses, people living with the disease will find it more difficult to walk and move around, and they will eventually require support to do so. Their symptoms will gradually worsen and take away their ability to move, swallow, speak and eventually breathe. If you have ALS, it is advised that you discussbreathing support
WAYS TO GIVE
As an entirely donor-funded charity, ALS Canada relies on people like you who show gratitude for what they have by making positive contributions to their communities. Whether that’s becoming a monthly donor, giving in honour, or helping our equipment program grow, you can make an immediate impact. Donations allow ALS Canada toinvest in the
REGIONAL SUPPORT
ALS Canada’s team of Regional Managers assists people and families living with ALS in navigating their journey. Regional Managers offer home visits to discuss individual and family needs, provide information and education, and assist with connecting you to other healthcare providers and community supports. They also run support groups for people living with ALS as well CONTACT US – ALS SOCIETY OF CANADA Registered Charity 10670-8977-RR0002. The Standards Program Trustmark is a mark of Imagine Canada used under licence by the ALS Society ofCanada.
NEW BRUNSWICK AND NOVA SCOTIA ALS CLINICS Fredericton Stan Cassidy Centre for Rehabilitation 800 Priestman Street Fredericton, NB E3B 0C7 Tel: 506-452-5225 Halifax Queen Elizabeth II Health Sciences Centre RADICAVA (EDARAVONE) Radicava (edaravone) is one of only two drugs approved in Canada for ALS, and the first in almost 20 years. Yet, more than one year after its approval by Health Canada, and positive public funding recommendations from both the Canadian Agency for Drugs and Technologies in Health (CADTH) and l’Institut national d’excellence en santé et en LOU GEHRIG DAY: A CALL TO ACTION FROM A FORMER NHLER Mark Kirton faces ALS with the mindset of a pro athlete. He played in the National Hockey League from 1978 to 1988 for Toronto, Detroit and Vancouver and then followed that up with a successful career in real estate in Oakville, which he still runs from home. In the spring of 2015, Mark started feeling JUNE IS ALS AWARENESS MONTH Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the day for ALS Canada. ALS CANADA – ALS SOCIETY OF CANADACONTACT USWHAT IS ALSSUPPORT & SERVICESABOUT USOUR DONORSNEWS & MEDIA We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for afuture without ALS.
WHAT IS ALS?
What is ALS? Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down,someone living
LIVING WITH ALS
People and families affected by ALS will be faced with the challenge of adapting to a new way of life. Below are a few resources that will help you cope with the physical, emotional, financial and legal ramifications of an ALS diagnosis. ALS Guide: A resource for SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
PROGRESSION
Progression. As ALS progresses, people living with the disease will find it more difficult to walk and move around, and they will eventually require support to do so. Their symptoms will gradually worsen and take away their ability to move, swallow, speak and eventually breathe. If you have ALS, it is advised that you discussbreathing support
COVID-19 VACCINATION GUIDANCE FOR THE ALS Community Should I receive the vaccine? • People living with ALS and their caregivers are encouraged to receive the COVID-19 vaccine when it is available, in consultation with their health care provider.DONATE EQUIPMENT
All donations of medical equipment and assistive devices are eligible for a tax receipt. Donated equipment has a significant impact on the number and value of items in our inventory. Thanks to generous donors, over the course of 2020, ALS Canada received new or gently-used equipment at a combined value of more than $180,000.LOU GEHRIG DAY
Lou Gehrig Day. We’re observing the inaugural Lou Gehrig Day on Wednesday, June 2nd, 2021. The year was 1939. Lou Gehrig, star player for the New York Yankees, stood in front of 62,000 fans and delivered one of the most poignant speeches in the history of sports. “For the past two weeks you have been reading about the bad break I got. JUNE IS ALS AWARENESS MONTH Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the day for ALS Canada. ALS CANADA EQUIPMENT CATALOGUE HOSPITAL BEDS Bed Height: 15" min. - 23" max.(Measurement from floor to bed deck.) Sleep Surface: 36"W x 80"L Product Weight Capacity: • 350 lbs. patient weight • 450 lbs. inclusive of all accessories ALS CANADA – ALS SOCIETY OF CANADACONTACT USWHAT IS ALSSUPPORT & SERVICESABOUT USOUR DONORSNEWS & MEDIA We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for afuture without ALS.
WHAT IS ALS?
What is ALS? Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down,someone living
LIVING WITH ALS
People and families affected by ALS will be faced with the challenge of adapting to a new way of life. Below are a few resources that will help you cope with the physical, emotional, financial and legal ramifications of an ALS diagnosis. ALS Guide: A resource for SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
PROGRESSION
Progression. As ALS progresses, people living with the disease will find it more difficult to walk and move around, and they will eventually require support to do so. Their symptoms will gradually worsen and take away their ability to move, swallow, speak and eventually breathe. If you have ALS, it is advised that you discussbreathing support
COVID-19 VACCINATION GUIDANCE FOR THE ALS Community Should I receive the vaccine? • People living with ALS and their caregivers are encouraged to receive the COVID-19 vaccine when it is available, in consultation with their health care provider.DONATE EQUIPMENT
All donations of medical equipment and assistive devices are eligible for a tax receipt. Donated equipment has a significant impact on the number and value of items in our inventory. Thanks to generous donors, over the course of 2020, ALS Canada received new or gently-used equipment at a combined value of more than $180,000.LOU GEHRIG DAY
Lou Gehrig Day. We’re observing the inaugural Lou Gehrig Day on Wednesday, June 2nd, 2021. The year was 1939. Lou Gehrig, star player for the New York Yankees, stood in front of 62,000 fans and delivered one of the most poignant speeches in the history of sports. “For the past two weeks you have been reading about the bad break I got. JUNE IS ALS AWARENESS MONTH Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the day for ALS Canada. ALS CANADA EQUIPMENT CATALOGUE HOSPITAL BEDS Bed Height: 15" min. - 23" max.(Measurement from floor to bed deck.) Sleep Surface: 36"W x 80"L Product Weight Capacity: • 350 lbs. patient weight • 450 lbs. inclusive of all accessories SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
RESOURCES – ALS SOCIETY OF CANADA Registered Charity 10670-8977-RR0002. The Standards Program Trustmark is a mark of Imagine Canada used under licence by the ALS Society ofCanada.
JOIN AN EVENT
Virtual Walk to End ALS. June 20, 2021 Virtual. The Walk to End ALS is a volunteer-led, community-based fundraising event that brings Canadians together to show their support for people living with ALS (amyotrophic lateral sclerosis), honour those who have passed away,and
PROGRESSION
Progression. As ALS progresses, people living with the disease will find it more difficult to walk and move around, and they will eventually require support to do so. Their symptoms will gradually worsen and take away their ability to move, swallow, speak and eventually breathe. If you have ALS, it is advised that you discussbreathing support
WAYS TO GIVE
As an entirely donor-funded charity, ALS Canada relies on people like you who show gratitude for what they have by making positive contributions to their communities. Whether that’s becoming a monthly donor, giving in honour, or helping our equipment program grow, you can make an immediate impact. Donations allow ALS Canada toinvest in the
OUR DONORS – ALS SOCIETY OF CANADA The generosity and commitment of thousands of donors and fundraisers make ALS Canada’s work possible. Without government funding, we rely heavily on the support of individuals through events, monthly donations, annual gifts, and planned gifts. We are also grateful for the generous corporate donors and foundations who grant us vital financial support each year. The LOU GEHRIG DAY: A CALL TO ACTION FROM A FORMER NHLER Mark Kirton faces ALS with the mindset of a pro athlete. He played in the National Hockey League from 1978 to 1988 for Toronto, Detroit and Vancouver and then followed that up with a successful career in real estate in Oakville, which he still runs from home. In the spring of 2015, Mark started feeling GIVE A GIFT IN MEMORY Registered Charity 10670-8977-RR0002. The Standards Program Trustmark is a mark of Imagine Canada used under licence by the ALS Society ofCanada.
IMPROVED HOME AND COMMUNITY CARE Starting in 2013, ALS Canada land ALS Societies across Canada participated in numerous meetings lobbying for CCB reform. In 2015 the federal government extended the CCB starting January 3, 2016 so that today, caregivers can claim up to $13,624 in benefits over a 26-week period. The benefit can also be taken within an expanded period of 52weeks
BULBAR ALS FACTSHEET-1PAGE BULBAR ALS What is Bulbar ALS? • Bulbar ALS destroys motor neurons in the corticobulbar area of the brainstem in the early stages of ALS. • The corticobulbar area controls muscles of the face, head and neck. • Bulbar ALS usually progresses faster than limb onset. How Common is Bulbar ALS? • Bulbar onset observed in 30 per cent ofpeople with ALS.
ALS CANADA – ALS SOCIETY OF CANADACONTACT USWHAT IS ALSSUPPORT & SERVICESABOUT USOUR DONORSNEWS & MEDIA We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for afuture without ALS.
WHAT IS ALS?
What is ALS? Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down,someone living
LIVING WITH ALS
People and families affected by ALS will be faced with the challenge of adapting to a new way of life. Below are a few resources that will help you cope with the physical, emotional, financial and legal ramifications of an ALS diagnosis. ALS Guide: A resource for SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
PROGRESSION
Progression. As ALS progresses, people living with the disease will find it more difficult to walk and move around, and they will eventually require support to do so. Their symptoms will gradually worsen and take away their ability to move, swallow, speak and eventually breathe. If you have ALS, it is advised that you discussbreathing support
COVID-19 VACCINATION GUIDANCE FOR THE ALS Community Should I receive the vaccine? • People living with ALS and their caregivers are encouraged to receive the COVID-19 vaccine when it is available, in consultation with their health care provider.DONATE EQUIPMENT
All donations of medical equipment and assistive devices are eligible for a tax receipt. Donated equipment has a significant impact on the number and value of items in our inventory. Thanks to generous donors, over the course of 2020, ALS Canada received new or gently-used equipment at a combined value of more than $180,000.LOU GEHRIG DAY
Lou Gehrig Day. We’re observing the inaugural Lou Gehrig Day on Wednesday, June 2nd, 2021. The year was 1939. Lou Gehrig, star player for the New York Yankees, stood in front of 62,000 fans and delivered one of the most poignant speeches in the history of sports. “For the past two weeks you have been reading about the bad break I got. JUNE IS ALS AWARENESS MONTH Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the day for ALS Canada. ALS CANADA EQUIPMENT CATALOGUE HOSPITAL BEDS Bed Height: 15" min. - 23" max.(Measurement from floor to bed deck.) Sleep Surface: 36"W x 80"L Product Weight Capacity: • 350 lbs. patient weight • 450 lbs. inclusive of all accessories ALS CANADA – ALS SOCIETY OF CANADACONTACT USWHAT IS ALSSUPPORT & SERVICESABOUT USOUR DONORSNEWS & MEDIA We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for afuture without ALS.
WHAT IS ALS?
What is ALS? Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down,someone living
LIVING WITH ALS
People and families affected by ALS will be faced with the challenge of adapting to a new way of life. Below are a few resources that will help you cope with the physical, emotional, financial and legal ramifications of an ALS diagnosis. ALS Guide: A resource for SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
PROGRESSION
Progression. As ALS progresses, people living with the disease will find it more difficult to walk and move around, and they will eventually require support to do so. Their symptoms will gradually worsen and take away their ability to move, swallow, speak and eventually breathe. If you have ALS, it is advised that you discussbreathing support
COVID-19 VACCINATION GUIDANCE FOR THE ALS Community Should I receive the vaccine? • People living with ALS and their caregivers are encouraged to receive the COVID-19 vaccine when it is available, in consultation with their health care provider.DONATE EQUIPMENT
All donations of medical equipment and assistive devices are eligible for a tax receipt. Donated equipment has a significant impact on the number and value of items in our inventory. Thanks to generous donors, over the course of 2020, ALS Canada received new or gently-used equipment at a combined value of more than $180,000.LOU GEHRIG DAY
Lou Gehrig Day. We’re observing the inaugural Lou Gehrig Day on Wednesday, June 2nd, 2021. The year was 1939. Lou Gehrig, star player for the New York Yankees, stood in front of 62,000 fans and delivered one of the most poignant speeches in the history of sports. “For the past two weeks you have been reading about the bad break I got. JUNE IS ALS AWARENESS MONTH Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the day for ALS Canada. ALS CANADA EQUIPMENT CATALOGUE HOSPITAL BEDS Bed Height: 15" min. - 23" max.(Measurement from floor to bed deck.) Sleep Surface: 36"W x 80"L Product Weight Capacity: • 350 lbs. patient weight • 450 lbs. inclusive of all accessoriesWHAT IS ALS?
What is ALS? Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down,someone living
SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
JOIN AN EVENT
Virtual Walk to End ALS. June 20, 2021 Virtual. The Walk to End ALS is a volunteer-led, community-based fundraising event that brings Canadians together to show their support for people living with ALS (amyotrophic lateral sclerosis), honour those who have passed away,and
WAYS TO GIVE
As an entirely donor-funded charity, ALS Canada relies on people like you who show gratitude for what they have by making positive contributions to their communities. Whether that’s becoming a monthly donor, giving in honour, or helping our equipment program grow, you can make an immediate impact. Donations allow ALS Canada toinvest in the
OUR DONORS – ALS SOCIETY OF CANADA The generosity and commitment of thousands of donors and fundraisers make ALS Canada’s work possible. Without government funding, we rely heavily on the support of individuals through events, monthly donations, annual gifts, and planned gifts. We are also grateful for the generous corporate donors and foundations who grant us vital financial support each year. The LOU GEHRIG DAY: A CALL TO ACTION FROM A FORMER NHLER Mark Kirton faces ALS with the mindset of a pro athlete. He played in the National Hockey League from 1978 to 1988 for Toronto, Detroit and Vancouver and then followed that up with a successful career in real estate in Oakville, which he still runs from home. In the spring of 2015, Mark started feeling GIVE A GIFT IN MEMORY Registered Charity 10670-8977-RR0002. The Standards Program Trustmark is a mark of Imagine Canada used under licence by the ALS Society ofCanada.
IMPROVED HOME AND COMMUNITY CARE Starting in 2013, ALS Canada land ALS Societies across Canada participated in numerous meetings lobbying for CCB reform. In 2015 the federal government extended the CCB starting January 3, 2016 so that today, caregivers can claim up to $13,624 in benefits over a 26-week period. The benefit can also be taken within an expanded period of 52weeks
TEAM “LIVING INTO A CURE” IS KEEPING HOPE ALIVE The team name she’s chosen for the 2020 Walk to End ALS – “Living into a Cure” – says a lot about her faith in the work being done to accelerate the pace of research. “I’m so blessed to be part of the clinical trial at Sunnybrook,” she exclaims, “and so fortunate to have access to a recently approved treatment,Radicava, that
BULBAR ALS FACTSHEET-1PAGE BULBAR ALS What is Bulbar ALS? • Bulbar ALS destroys motor neurons in the corticobulbar area of the brainstem in the early stages of ALS. • The corticobulbar area controls muscles of the face, head and neck. • Bulbar ALS usually progresses faster than limb onset. How Common is Bulbar ALS? • Bulbar onset observed in 30 per cent ofpeople with ALS.
ALS CANADA – ALS SOCIETY OF CANADACONTACT USWHAT IS ALSSUPPORT & SERVICESABOUT USOUR DONORSNEWS & MEDIA We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for afuture without ALS.
WHAT IS ALS?
What is ALS? Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down,someone living
LIVING WITH ALS
People and families affected by ALS will be faced with the challenge of adapting to a new way of life. Below are a few resources that will help you cope with the physical, emotional, financial and legal ramifications of an ALS diagnosis. ALS Guide: A resource for SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
EQUIPMENT – ALS SOCIETY OF CANADA ALS Canada helps people diagnosed with ALS to cope with the daily challenges of decreasing mobility and communication ability and to help with retaining independence. Access to equipment and assistive devices is essential for your safety, comfort and functioning as a person living with ALS. The ALS Canada Equipment Program provides access to basic and essential assistive STAFF – ALS SOCIETY OF CANADA NEW BRUNSWICK AND NOVA SCOTIA ALS CLINICS Fredericton Stan Cassidy Centre for Rehabilitation 800 Priestman Street Fredericton, NB E3B 0C7 Tel: 506-452-5225 Halifax Queen Elizabeth II Health Sciences Centre ALS CANADA EQUIPMENT CATALOGUE HOSPITAL BEDS Bed Height: 15" min. - 23" max.(Measurement from floor to bed deck.) Sleep Surface: 36"W x 80"L Product Weight Capacity: • 350 lbs. patient weight • 450 lbs. inclusive of all accessories BULBAR ALS FACTSHEET-1PAGE BULBAR ALS What is Bulbar ALS? • Bulbar ALS destroys motor neurons in the corticobulbar area of the brainstem in the early stages of ALS. • The corticobulbar area controls muscles of the face, head and neck. • Bulbar ALS usually progresses faster than limb onset. How Common is Bulbar ALS? • Bulbar onset observed in 30 per cent ofpeople with ALS.
DR. RICHARD BEDLACK’S QUEST FOR ALS DISCOVERY: THE TRUTH Updated October 20, 2017 Dr. Richard Bedlack’s passion for neurology started when he was a child. As many children do, he used to roll down hills with his little brother – but Dr. Bedlack’s inquisitive nature made him wonder why it made them dizzy. His fascination with ALS CANADA – ALS SOCIETY OF CANADACONTACT USWHAT IS ALSSUPPORT & SERVICESABOUT USOUR DONORSNEWS & MEDIA We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for afuture without ALS.
WHAT IS ALS?
What is ALS? Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down,someone living
LIVING WITH ALS
People and families affected by ALS will be faced with the challenge of adapting to a new way of life. Below are a few resources that will help you cope with the physical, emotional, financial and legal ramifications of an ALS diagnosis. ALS Guide: A resource for SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
EQUIPMENT – ALS SOCIETY OF CANADA ALS Canada helps people diagnosed with ALS to cope with the daily challenges of decreasing mobility and communication ability and to help with retaining independence. Access to equipment and assistive devices is essential for your safety, comfort and functioning as a person living with ALS. The ALS Canada Equipment Program provides access to basic and essential assistive STAFF – ALS SOCIETY OF CANADA NEW BRUNSWICK AND NOVA SCOTIA ALS CLINICS Fredericton Stan Cassidy Centre for Rehabilitation 800 Priestman Street Fredericton, NB E3B 0C7 Tel: 506-452-5225 Halifax Queen Elizabeth II Health Sciences Centre ALS CANADA EQUIPMENT CATALOGUE HOSPITAL BEDS Bed Height: 15" min. - 23" max.(Measurement from floor to bed deck.) Sleep Surface: 36"W x 80"L Product Weight Capacity: • 350 lbs. patient weight • 450 lbs. inclusive of all accessories BULBAR ALS FACTSHEET-1PAGE BULBAR ALS What is Bulbar ALS? • Bulbar ALS destroys motor neurons in the corticobulbar area of the brainstem in the early stages of ALS. • The corticobulbar area controls muscles of the face, head and neck. • Bulbar ALS usually progresses faster than limb onset. How Common is Bulbar ALS? • Bulbar onset observed in 30 per cent ofpeople with ALS.
DR. RICHARD BEDLACK’S QUEST FOR ALS DISCOVERY: THE TRUTH Updated October 20, 2017 Dr. Richard Bedlack’s passion for neurology started when he was a child. As many children do, he used to roll down hills with his little brother – but Dr. Bedlack’s inquisitive nature made him wonder why it made them dizzy. His fascination withPROGRESSION
Progression. As ALS progresses, people living with the disease will find it more difficult to walk and move around, and they will eventually require support to do so. Their symptoms will gradually worsen and take away their ability to move, swallow, speak and eventually breathe. If you have ALS, it is advised that you discussbreathing support
WAYS TO GIVE
As an entirely donor-funded charity, ALS Canada relies on people like you who show gratitude for what they have by making positive contributions to their communities. Whether that’s becoming a monthly donor, giving in honour, or helping our equipment program grow, you can make an immediate impact. Donations allow ALS Canada toinvest in the
REGISTER – ALS SOCIETY OF CANADA If you are a resident of Ontario living with ALS and would like access to services and support, please register with ALS Canada. To register, please complete the ALS registration form and email it to register@als.ca or fax it to 416-497-8545 or 1-888-490-1232. Once we receive your completed form, an ALS Canada Regional Manager willREGIONAL SUPPORT
ALS Canada’s team of Regional Managers assists people and families living with ALS in navigating their journey. Regional Managers offer home visits to discuss individual and family needs, provide information and education, and assist with connecting you to other healthcare providers and community supports. They also run support groups for people living with ALS as well STAFF – ALS SOCIETY OF CANADA Registered Charity 10670-8977-RR0002. The Standards Program Trustmark is a mark of Imagine Canada used under licence by the ALS Society ofCanada.
ALS AND THE TREATMENT LANDSCAPE ALS and the treatment landscape FACT SHEET | WWW.ALS.CA ALS is a progressive, terminal disease that does not have a cure. While treatments exist, most focus on symptom relief OUR DONORS – ALS SOCIETY OF CANADA The generosity and commitment of thousands of donors and fundraisers make ALS Canada’s work possible. Without government funding, we rely heavily on the support of individuals through events, monthly donations, annual gifts, and planned gifts. We are also grateful for the generous corporate donors and foundations who grant us vital financial support each year. TheLOU GEHRIG DAY
Lou Gehrig Day. We’re observing the inaugural Lou Gehrig Day on Wednesday, June 2nd, 2021. The year was 1939. Lou Gehrig, star player for the New York Yankees, stood in front of 62,000 fans and delivered one of the most poignant speeches in the history of sports. “For the past two weeks you have been reading about the bad break I got. RADICAVA (EDARAVONE) Radicava (edaravone) is one of only two drugs approved in Canada for ALS, and the first in almost 20 years. Yet, more than one year after its approval by Health Canada, and positive public funding recommendations from both the Canadian Agency for Drugs and Technologies in Health (CADTH) and l’Institut national d’excellence en santé et en JUNE IS ALS AWARENESS MONTH Thirty remarkable days. Thirty inspirational stories. Thirty chances to seize the days. That’s what ALS awareness month is all about. From fundraising walks in communities across the country to breathtaking walks on the brink at Edgewalk around the top of the CN tower, this June we’re pushing the limits and challenging everyone to seize the day for ALS Canada. ALS CANADA – ALS SOCIETY OF CANADACONTACT USWHAT IS ALSSUPPORT & SERVICESABOUT USOUR DONORSNEWS & MEDIA We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for afuture without ALS.
WHAT IS ALS?
What is ALS? Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down,someone living
LIVING WITH ALS
People and families affected by ALS will be faced with the challenge of adapting to a new way of life. Below are a few resources that will help you cope with the physical, emotional, financial and legal ramifications of an ALS diagnosis. ALS Guide: A resource for SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
EQUIPMENT – ALS SOCIETY OF CANADA ALS Canada helps people diagnosed with ALS to cope with the daily challenges of decreasing mobility and communication ability and to help with retaining independence. Access to equipment and assistive devices is essential for your safety, comfort and functioning as a person living with ALS. The ALS Canada Equipment Program provides access to basic and essential assistiveJOIN AN EVENT
June 20, 2021Virtual. The Walk to End ALS is a volunteer-led, community-based fundraising event that brings Canadians together to show their support for people living with ALS (amyotrophic lateral sclerosis), honour those who have passed away, and share their hope for a future Go to the event. This link opens an external tab orbrowser window.
REGISTER – ALS SOCIETY OF CANADA If you are a resident of Ontario living with ALS and would like access to services and support, please register with ALS Canada. To register, please complete the ALS registration form and email it to register@als.ca or fax it to 416-497-8545 or 1-888-490-1232. Once we receive your completed form, an ALS Canada Regional Manager will STAFF – ALS SOCIETY OF CANADA ALS CANADA EQUIPMENT CATALOGUE HOSPITAL BEDS Bed Height: 15" min. - 23" max.(Measurement from floor to bed deck.) Sleep Surface: 36"W x 80"L Product Weight Capacity: • 350 lbs. patient weight • 450 lbs. inclusive of all accessories BULBAR ALS FACTSHEET-1PAGE BULBAR ALS What is Bulbar ALS? • Bulbar ALS destroys motor neurons in the corticobulbar area of the brainstem in the early stages of ALS. • The corticobulbar area controls muscles of the face, head and neck. • Bulbar ALS usually progresses faster than limb onset. How Common is Bulbar ALS? • Bulbar onset observed in 30 per cent ofpeople with ALS.
ALS CANADA – ALS SOCIETY OF CANADACONTACT USWHAT IS ALSSUPPORT & SERVICESABOUT USOUR DONORSNEWS & MEDIA We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for afuture without ALS.
WHAT IS ALS?
What is ALS? Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down,someone living
LIVING WITH ALS
People and families affected by ALS will be faced with the challenge of adapting to a new way of life. Below are a few resources that will help you cope with the physical, emotional, financial and legal ramifications of an ALS diagnosis. ALS Guide: A resource for SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
EQUIPMENT – ALS SOCIETY OF CANADA ALS Canada helps people diagnosed with ALS to cope with the daily challenges of decreasing mobility and communication ability and to help with retaining independence. Access to equipment and assistive devices is essential for your safety, comfort and functioning as a person living with ALS. The ALS Canada Equipment Program provides access to basic and essential assistiveJOIN AN EVENT
June 20, 2021Virtual. The Walk to End ALS is a volunteer-led, community-based fundraising event that brings Canadians together to show their support for people living with ALS (amyotrophic lateral sclerosis), honour those who have passed away, and share their hope for a future Go to the event. This link opens an external tab orbrowser window.
REGISTER – ALS SOCIETY OF CANADA If you are a resident of Ontario living with ALS and would like access to services and support, please register with ALS Canada. To register, please complete the ALS registration form and email it to register@als.ca or fax it to 416-497-8545 or 1-888-490-1232. Once we receive your completed form, an ALS Canada Regional Manager will STAFF – ALS SOCIETY OF CANADA ALS CANADA EQUIPMENT CATALOGUE HOSPITAL BEDS Bed Height: 15" min. - 23" max.(Measurement from floor to bed deck.) Sleep Surface: 36"W x 80"L Product Weight Capacity: • 350 lbs. patient weight • 450 lbs. inclusive of all accessories BULBAR ALS FACTSHEET-1PAGE BULBAR ALS What is Bulbar ALS? • Bulbar ALS destroys motor neurons in the corticobulbar area of the brainstem in the early stages of ALS. • The corticobulbar area controls muscles of the face, head and neck. • Bulbar ALS usually progresses faster than limb onset. How Common is Bulbar ALS? • Bulbar onset observed in 30 per cent ofpeople with ALS.
SYMPTOMS – ALS SOCIETY OF CANADA Tripping. Dropping things. Slurred or “thick” speech. Difficulty swallowing. Weight loss. Decreased muscle tone. Shortness of breath. Increased or decreased reflexes. Uncontrollable periods of laughing orcrying.
SUPPORT & SERVICES
Support & Services. Receiving an ALS diagnosis is overwhelming and leads to many questions and concerns. Whether you are living with ALS or caring for someone with ALS, there are a great deal of challenges and changes to consider. ALS Canada and our provincial partners are here to help. ALS Canada is directly responsible for supporting people ALS CANADA’S 2021 RESEARCH FORUM: BRINGING TOGETHER THE Each year, ALS Canada convenes the brightest minds in ALS research across Canada at a two-day Research Forum to discuss their work and build capacity for more discoveries in this rapidly changing field. After the pandemic cancelled our plans to host the event in 2020, this year we brought the community together safely in aALS CLINICS
ALS Clinics are multidisciplinary centres aimed at delivering expert care to people and families living with ALS. Clinics provide education, monitoring and timely interventions, while promoting regular communication with your family doctor and community healthcare providers. In addition, the clinics and their teams of professionals are among the community of researchers in Canada who areWAYS TO GIVE
As an entirely donor-funded charity, ALS Canada relies on people like you who show gratitude for what they have by making positive contributions to their communities. Whether that’s becoming a monthly donor, giving in honour, or helping our equipment program grow, you can make an immediate impact. Donations allow ALS Canada toinvest in the
REGISTER – ALS SOCIETY OF CANADA If you are a resident of Ontario living with ALS and would like access to services and support, please register with ALS Canada. To register, please complete the ALS registration form and email it to register@als.ca or fax it to 416-497-8545 or 1-888-490-1232. Once we receive your completed form, an ALS Canada Regional Manager willREGIONAL SUPPORT
ALS Canada’s team of Regional Managers assists people and families living with ALS in navigating their journey. Regional Managers offer home visits to discuss individual and family needs, provide information and education, and assist with connecting you to other healthcare providers and community supports. They also run support groups for people living with ALS as well OUR DONORS – ALS SOCIETY OF CANADA The generosity and commitment of thousands of donors and fundraisers make ALS Canada’s work possible. Without government funding, we rely heavily on the support of individuals through events, monthly donations, annual gifts, and planned gifts. We are also grateful for the generous corporate donors and foundations who grant us vital financial support each year. The RADICAVA (EDARAVONE) Radicava (edaravone) is one of only two drugs approved in Canada for ALS, and the first in almost 20 years. Yet, more than one year after its approval by Health Canada, and positive public funding recommendations from both the Canadian Agency for Drugs and Technologies in Health (CADTH) and l’Institut national d’excellence en santé et en GIVE A GIFT IN MEMORY Registered Charity 10670-8977-RR0002. The Standards Program Trustmark is a mark of Imagine Canada used under licence by the ALS Society ofCanada.
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ADVOCATE FOR RADICAVA (EDARAVONE) It only takes a minute to advocate to your provincial government for Radicava to be made accessible through public reimbursement. Learn more about how you can play a role in helping to support timely, equitable and affordable access to proven ALS therapies. Read MoreResearch
ALS CANADA INVESTS ALMOST $1.4 MILLION TOWARDS INNOVATIVE ALS RESEARCH PROJECTS IN PURSUIT OF A FUTURE WITHOUT ALS Donor support enables ALS researchers across Canada to accelerate the impact of research discoveries. Read MoreNews
THROUGH SICKNESS AND HEALTH a couple’s love perseveres in the face of ALS The first thing one notices upon walking into Jeff and Darlene’s airy bungalow is the feeling of warmth and love that reaches into every corner. Read MoreNews
OCTOBER RESEARCH UPDATEOctober 30, 2019
Learn about progress in clinical trials & how they’re conducted, further understanding the microbiome & protein clumping in ALS, and identifying the ways different genes may contribute to the disease.Read More
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ALS RESEARCH UPDATE | AUGUST 2019 What’s happening in the world of ALS research at this point in the year? Read about the progress researchers have made in developing newand... Read More
MOTHER AND SON HOLD ON TO PRECIOUS TIME LEFT TOGETHER Five years ago, when the ALS Ice Bucket Challenge went viral in 2014, Mario knew very little about ALS, and had no idea how it... Read More FROM ICE BUCKET TO BUCKET LIST: HOW MARGOT IS COPING WITH ALS Margot Algie heard about the ALS Ice Bucket Challenge in 2014 through friends and had no idea that only one year later, she would be... ReadMore
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