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WHAT IS FPIES?
Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be THE FPIES FOUNDATION The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. The house structure of our logo symbolizes strength through a foundation of caring. It represents community and acceptance— inviting families to feel included underone roof.
THE FPIES FOUNDATION FPIES reactions can be severe. It is important to get to prompt medical attention where treatment, such as fluids given into the vein to help stabilize blood pressure and treat dehydration, can be given in order to avoid sepsis-like shock. Preparing a letter for potential trips to the ER, containing both FPIES information and a list of your COOKING AND NUTRITION Like a food journal, a cooking notebook can be an essential tool in living with FPIES. A cooking notebook is a journal for charting your cooking experiences, including original recipes, lists of safe ingredients to cook with, and any educational tools to help hone your skills. Print or pin the tools above for your notebook today! In theKitchen.
FPIES FOUNDATION ONLINE PROVIDER DIRECTORY The Foundation respectfully invites physician and family referred healthcare professionals to be listed in this free online directory. It is the Foundation’s hope that families affected by FPIES can be better aided in finding a knowledgeable professional when seeking an FPIES evaluation and/or treatment forPATIENT PACKET
Educate. Support. Empower. FPIES Diagnosis and Testing: FPIES is a non-IgE food allergy, which unlike classic food allergy, cannot be diagnosed with readilyFPIES RECIPES
Bluberry Chia Jam by Chef Jerran Boyer. If blueberries are totally your jam, then you’ll like this Roasted Blueberry + Chia Seed Jam recipe. It’s easy to make, flavorful, and healthier than store bought jams and jellies (bonus!). By thefpiesfoundation, 5 days. 2weeks.
COOKING AND NUTRITION: RECIPE BOX Cooking and Nutrition: Recipe Box. Welcome to the Recipe Box! On this page, you will find a compilation of a variety of recipes, submitted from the diverse FPIES community. Some are simple, some are complex, but all are available to you as a resource and as an inspiration. Even if the ingredients are different from your little one’s safe listCOMMON SYMPTOMS
The symptoms of MSPI can consist of abdominal discomfort, colic, vomiting, loose stools, or visible blood in the stool. However, the presentation of these symptoms is not as severe as that of FPIES. FPIES reactions can be dramatic, with significant fluid loss through vomiting and massive diarrhea, and can result in severe and rapiddehydration.
THE FPIES FOUNDATION A new diagnosis can be very confusing, and with an allergy as rare, and often misunderstood, as FPIES, it can be difficult to know where to begin educating yourself and your family. Here, you will find resources for navigating day-to-day life with FPIES, as well as resources for navigating medical procedures, doctor’s visits andeven
WHAT IS FPIES?
Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be THE FPIES FOUNDATION The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. The house structure of our logo symbolizes strength through a foundation of caring. It represents community and acceptance— inviting families to feel included underone roof.
THE FPIES FOUNDATION FPIES reactions can be severe. It is important to get to prompt medical attention where treatment, such as fluids given into the vein to help stabilize blood pressure and treat dehydration, can be given in order to avoid sepsis-like shock. Preparing a letter for potential trips to the ER, containing both FPIES information and a list of your COOKING AND NUTRITION Like a food journal, a cooking notebook can be an essential tool in living with FPIES. A cooking notebook is a journal for charting your cooking experiences, including original recipes, lists of safe ingredients to cook with, and any educational tools to help hone your skills. Print or pin the tools above for your notebook today! In theKitchen.
FPIES FOUNDATION ONLINE PROVIDER DIRECTORY The Foundation respectfully invites physician and family referred healthcare professionals to be listed in this free online directory. It is the Foundation’s hope that families affected by FPIES can be better aided in finding a knowledgeable professional when seeking an FPIES evaluation and/or treatment forPATIENT PACKET
Educate. Support. Empower. FPIES Diagnosis and Testing: FPIES is a non-IgE food allergy, which unlike classic food allergy, cannot be diagnosed with readilyFPIES RECIPES
Bluberry Chia Jam by Chef Jerran Boyer. If blueberries are totally your jam, then you’ll like this Roasted Blueberry + Chia Seed Jam recipe. It’s easy to make, flavorful, and healthier than store bought jams and jellies (bonus!). By thefpiesfoundation, 5 days. 2weeks.
COOKING AND NUTRITION: RECIPE BOX Cooking and Nutrition: Recipe Box. Welcome to the Recipe Box! On this page, you will find a compilation of a variety of recipes, submitted from the diverse FPIES community. Some are simple, some are complex, but all are available to you as a resource and as an inspiration. Even if the ingredients are different from your little one’s safe listCOMMON SYMPTOMS
The symptoms of MSPI can consist of abdominal discomfort, colic, vomiting, loose stools, or visible blood in the stool. However, the presentation of these symptoms is not as severe as that of FPIES. FPIES reactions can be dramatic, with significant fluid loss through vomiting and massive diarrhea, and can result in severe and rapiddehydration.
THE FPIES FOUNDATION Advocate with the Foundation The FPIES Foundation is a collaborative effort of several families affected by FPIES whose relentless journey has sparked the desire to help other families find their way. THE FPIES FOUNDATION The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. The house structure of our logo symbolizes strength through a foundation of caring. It represents community and acceptance— inviting families to feel included underone roof.
THE FPIES FOUNDATION Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in COOKING AND NUTRITION Like a food journal, a cooking notebook can be an essential tool in living with FPIES. A cooking notebook is a journal for charting your cooking experiences, including original recipes, lists of safe ingredients to cook with, and any educational tools to help hone your skills. Print or pin the tools above for your notebook today! In theKitchen.
FPIES FOUNDATION ONLINE PROVIDER DIRECTORY The Foundation respectfully invites physician and family referred healthcare professionals to be listed in this free online directory. It is the Foundation’s hope that families affected by FPIES can be better aided in finding a knowledgeable professional when seeking an FPIES evaluation and/or treatment for COOKING AND NUTRITION: RECIPE BOX Cooking and Nutrition: Recipe Box. Welcome to the Recipe Box! On this page, you will find a compilation of a variety of recipes, submitted from the diverse FPIES community. Some are simple, some are complex, but all are available to you as a resource and as an inspiration. Even if the ingredients are different from your little one’s safe list TREATMENT AND MANAGEMENT The term “food trial” does not have a formal medical definition. In the older food allergy literature, the term “trial” appears. This is not a term used in contemporary allergy practice. Physicians and patients might use the term “food trial” to mean they are either eating a food or avoiding a food to see the effect it may have on a health outcome. PREPARING FOR A FOOD CHALLENGE Preparing for a Food Challenge. When navigating through the FPIES reality, one of the more regular activities is a food challenge. When we began introducing foods to our son, several challenges resulted in days worth of medical attention. Now, each and every food introduction we do (whether the food is a typical FPIES trigger or not), is A MOM-INSPIRED FOOD ALLERGY JOURNAL A Mom-Inspired Food Allergy Journal. Here, at The FPIES Foundation, we love food journals! You can find a page in the FPIES toolbox dedicated just to food journals and we are inspired everyday by the food journals you have created and have shared with us. We have shared designs in the past, you can revisit those in this blog post FPIESTools
COOKING AND NUTRITION: NUTRITION RESOURCES FOR FAMILIES The Medical Nutrition Equity Act (S-1194, HB-2587) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involvedTODAY!
WHAT IS FPIES?
Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be THE FPIES FOUNDATION The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. The house structure of our logo symbolizes strength through a foundation of caring. It represents community and acceptance— inviting families to feel included underone roof.
THE FPIES FOUNDATION A new diagnosis can be very confusing, and with an allergy as rare, and often misunderstood, as FPIES, it can be difficult to know where to begin educating yourself and your family. Here, you will find resources for navigating day-to-day life with FPIES, as well as resources for navigating medical procedures, doctor’s visits andeven
THE FPIES FOUNDATION FPIES reactions can be severe. It is important to get to prompt medical attention where treatment, such as fluids given into the vein to help stabilize blood pressure and treat dehydration, can be given in order to avoid sepsis-like shock. Preparing a letter for potential trips to the ER, containing both FPIES information and a list of your COOKING AND NUTRITION Like a food journal, a cooking notebook can be an essential tool in living with FPIES. A cooking notebook is a journal for charting your cooking experiences, including original recipes, lists of safe ingredients to cook with, and any educational tools to help hone your skills. Print or pin the tools above for your notebook today! In theKitchen.
THE FPIES FOUNDATION Educate. Support. Empower. FPIES Diagnosis and Testing: FPIES is a non-IgE food allergy, which unlike classic food allergy, cannot be diagnosed with readily FPIES FOUNDATION ONLINE PROVIDER DIRECTORY The Foundation respectfully invites physician and family referred healthcare professionals to be listed in this free online directory. It is the Foundation’s hope that families affected by FPIES can be better aided in finding a knowledgeable professional when seeking an FPIES evaluation and/or treatment forFPIES RECIPES
Bluberry Chia Jam by Chef Jerran Boyer. If blueberries are totally your jam, then you’ll like this Roasted Blueberry + Chia Seed Jam recipe. It’s easy to make, flavorful, and healthier than store bought jams and jellies (bonus!). By thefpiesfoundation, 5 days. 2weeks.
COOKING AND NUTRITION: RECIPE BOX Cooking and Nutrition: Recipe Box. Welcome to the Recipe Box! On this page, you will find a compilation of a variety of recipes, submitted from the diverse FPIES community. Some are simple, some are complex, but all are available to you as a resource and as an inspiration. Even if the ingredients are different from your little one’s safe listCOMMON SYMPTOMS
The symptoms of MSPI can consist of abdominal discomfort, colic, vomiting, loose stools, or visible blood in the stool. However, the presentation of these symptoms is not as severe as that of FPIES. FPIES reactions can be dramatic, with significant fluid loss through vomiting and massive diarrhea, and can result in severe and rapiddehydration.
WHAT IS FPIES?
Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be THE FPIES FOUNDATION The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. The house structure of our logo symbolizes strength through a foundation of caring. It represents community and acceptance— inviting families to feel included underone roof.
THE FPIES FOUNDATION A new diagnosis can be very confusing, and with an allergy as rare, and often misunderstood, as FPIES, it can be difficult to know where to begin educating yourself and your family. Here, you will find resources for navigating day-to-day life with FPIES, as well as resources for navigating medical procedures, doctor’s visits andeven
THE FPIES FOUNDATION FPIES reactions can be severe. It is important to get to prompt medical attention where treatment, such as fluids given into the vein to help stabilize blood pressure and treat dehydration, can be given in order to avoid sepsis-like shock. Preparing a letter for potential trips to the ER, containing both FPIES information and a list of your COOKING AND NUTRITION Like a food journal, a cooking notebook can be an essential tool in living with FPIES. A cooking notebook is a journal for charting your cooking experiences, including original recipes, lists of safe ingredients to cook with, and any educational tools to help hone your skills. Print or pin the tools above for your notebook today! In theKitchen.
THE FPIES FOUNDATION Educate. Support. Empower. FPIES Diagnosis and Testing: FPIES is a non-IgE food allergy, which unlike classic food allergy, cannot be diagnosed with readily FPIES FOUNDATION ONLINE PROVIDER DIRECTORY The Foundation respectfully invites physician and family referred healthcare professionals to be listed in this free online directory. It is the Foundation’s hope that families affected by FPIES can be better aided in finding a knowledgeable professional when seeking an FPIES evaluation and/or treatment forFPIES RECIPES
Bluberry Chia Jam by Chef Jerran Boyer. If blueberries are totally your jam, then you’ll like this Roasted Blueberry + Chia Seed Jam recipe. It’s easy to make, flavorful, and healthier than store bought jams and jellies (bonus!). By thefpiesfoundation, 5 days. 2weeks.
COOKING AND NUTRITION: RECIPE BOX Cooking and Nutrition: Recipe Box. Welcome to the Recipe Box! On this page, you will find a compilation of a variety of recipes, submitted from the diverse FPIES community. Some are simple, some are complex, but all are available to you as a resource and as an inspiration. Even if the ingredients are different from your little one’s safe listCOMMON SYMPTOMS
The symptoms of MSPI can consist of abdominal discomfort, colic, vomiting, loose stools, or visible blood in the stool. However, the presentation of these symptoms is not as severe as that of FPIES. FPIES reactions can be dramatic, with significant fluid loss through vomiting and massive diarrhea, and can result in severe and rapiddehydration.
THE FPIES FOUNDATION Advocate with the Foundation The FPIES Foundation is a collaborative effort of several families affected by FPIES whose relentless journey has sparked the desire to help other families find their way. THE FPIES FOUNDATION A new diagnosis can be very confusing, and with an allergy as rare, and often misunderstood, as FPIES, it can be difficult to know where to begin educating yourself and your family. Here, you will find resources for navigating day-to-day life with FPIES, as well as resources for navigating medical procedures, doctor’s visits andeven
THE FPIES FOUNDATION The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. The house structure of our logo symbolizes strength through a foundation of caring. It represents community and acceptance— inviting families to feel included underone roof.
COOKING AND NUTRITION Like a food journal, a cooking notebook can be an essential tool in living with FPIES. A cooking notebook is a journal for charting your cooking experiences, including original recipes, lists of safe ingredients to cook with, and any educational tools to help hone your skills. Print or pin the tools above for your notebook today! In theKitchen.
RESOURCES FOR NUTRITION PROFESSIONALS The Medical Nutrition Equity Act (S-1194, HB-2587) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involvedTODAY!
COOKING AND NUTRITION: RECIPE BOX Cooking and Nutrition: Recipe Box. Welcome to the Recipe Box! On this page, you will find a compilation of a variety of recipes, submitted from the diverse FPIES community. Some are simple, some are complex, but all are available to you as a resource and as an inspiration. Even if the ingredients are different from your little one’s safe list TREATMENT AND MANAGEMENT The term “food trial” does not have a formal medical definition. In the older food allergy literature, the term “trial” appears. This is not a term used in contemporary allergy practice. Physicians and patients might use the term “food trial” to mean they are either eating a food or avoiding a food to see the effect it may have on a health outcome.DENTAL HEALTH
The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. COOKING AND NUTRITION: NUTRITION RESOURCES FOR FAMILIES The Medical Nutrition Equity Act (S-1194, HB-2587) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involvedTODAY!
OUR SENSORY PREFERENCES & MEALTIMES Our sensory preferences directly influence our thoughts, feelings, memories, interactions with others and our behavior. If our brain detects or remembers an experience that feels unsafe, worrisome or dangerous, our body might experience a Danger Center Response (fight, flight, freeze or fright). These strong feelings might be associatedwith
WHAT IS FPIES?
Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be THE FPIES FOUNDATION The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. The house structure of our logo symbolizes strength through a foundation of caring. It represents community and acceptance— inviting families to feel included underone roof.
THE FPIES FOUNDATION A new diagnosis can be very confusing, and with an allergy as rare, and often misunderstood, as FPIES, it can be difficult to know where to begin educating yourself and your family. Here, you will find resources for navigating day-to-day life with FPIES, as well as resources for navigating medical procedures, doctor’s visits andeven
THE FPIES FOUNDATION FPIES reactions can be severe. It is important to get to prompt medical attention where treatment, such as fluids given into the vein to help stabilize blood pressure and treat dehydration, can be given in order to avoid sepsis-like shock. Preparing a letter for potential trips to the ER, containing both FPIES information and a list of your COOKING AND NUTRITION Like a food journal, a cooking notebook can be an essential tool in living with FPIES. A cooking notebook is a journal for charting your cooking experiences, including original recipes, lists of safe ingredients to cook with, and any educational tools to help hone your skills. Print or pin the tools above for your notebook today! In theKitchen.
THE FPIES FOUNDATION Educate. Support. Empower. FPIES Diagnosis and Testing: FPIES is a non-IgE food allergy, which unlike classic food allergy, cannot be diagnosed with readily FPIES FOUNDATION ONLINE PROVIDER DIRECTORY The Foundation respectfully invites physician and family referred healthcare professionals to be listed in this free online directory. It is the Foundation’s hope that families affected by FPIES can be better aided in finding a knowledgeable professional when seeking an FPIES evaluation and/or treatment forFPIES RECIPES
Bluberry Chia Jam by Chef Jerran Boyer. If blueberries are totally your jam, then you’ll like this Roasted Blueberry + Chia Seed Jam recipe. It’s easy to make, flavorful, and healthier than store bought jams and jellies (bonus!). By thefpiesfoundation, 5 days. 2weeks.
COOKING AND NUTRITION: RECIPE BOX Cooking and Nutrition: Recipe Box. Welcome to the Recipe Box! On this page, you will find a compilation of a variety of recipes, submitted from the diverse FPIES community. Some are simple, some are complex, but all are available to you as a resource and as an inspiration. Even if the ingredients are different from your little one’s safe listCOMMON SYMPTOMS
The symptoms of MSPI can consist of abdominal discomfort, colic, vomiting, loose stools, or visible blood in the stool. However, the presentation of these symptoms is not as severe as that of FPIES. FPIES reactions can be dramatic, with significant fluid loss through vomiting and massive diarrhea, and can result in severe and rapiddehydration.
WHAT IS FPIES?
Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be THE FPIES FOUNDATION The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. The house structure of our logo symbolizes strength through a foundation of caring. It represents community and acceptance— inviting families to feel included underone roof.
THE FPIES FOUNDATION A new diagnosis can be very confusing, and with an allergy as rare, and often misunderstood, as FPIES, it can be difficult to know where to begin educating yourself and your family. Here, you will find resources for navigating day-to-day life with FPIES, as well as resources for navigating medical procedures, doctor’s visits andeven
THE FPIES FOUNDATION FPIES reactions can be severe. It is important to get to prompt medical attention where treatment, such as fluids given into the vein to help stabilize blood pressure and treat dehydration, can be given in order to avoid sepsis-like shock. Preparing a letter for potential trips to the ER, containing both FPIES information and a list of your COOKING AND NUTRITION Like a food journal, a cooking notebook can be an essential tool in living with FPIES. A cooking notebook is a journal for charting your cooking experiences, including original recipes, lists of safe ingredients to cook with, and any educational tools to help hone your skills. Print or pin the tools above for your notebook today! In theKitchen.
THE FPIES FOUNDATION Educate. Support. Empower. FPIES Diagnosis and Testing: FPIES is a non-IgE food allergy, which unlike classic food allergy, cannot be diagnosed with readily FPIES FOUNDATION ONLINE PROVIDER DIRECTORY The Foundation respectfully invites physician and family referred healthcare professionals to be listed in this free online directory. It is the Foundation’s hope that families affected by FPIES can be better aided in finding a knowledgeable professional when seeking an FPIES evaluation and/or treatment forFPIES RECIPES
Bluberry Chia Jam by Chef Jerran Boyer. If blueberries are totally your jam, then you’ll like this Roasted Blueberry + Chia Seed Jam recipe. It’s easy to make, flavorful, and healthier than store bought jams and jellies (bonus!). By thefpiesfoundation, 5 days. 2weeks.
COOKING AND NUTRITION: RECIPE BOX Cooking and Nutrition: Recipe Box. Welcome to the Recipe Box! On this page, you will find a compilation of a variety of recipes, submitted from the diverse FPIES community. Some are simple, some are complex, but all are available to you as a resource and as an inspiration. Even if the ingredients are different from your little one’s safe listCOMMON SYMPTOMS
The symptoms of MSPI can consist of abdominal discomfort, colic, vomiting, loose stools, or visible blood in the stool. However, the presentation of these symptoms is not as severe as that of FPIES. FPIES reactions can be dramatic, with significant fluid loss through vomiting and massive diarrhea, and can result in severe and rapiddehydration.
THE FPIES FOUNDATION Advocate with the Foundation The FPIES Foundation is a collaborative effort of several families affected by FPIES whose relentless journey has sparked the desire to help other families find their way. THE FPIES FOUNDATION A new diagnosis can be very confusing, and with an allergy as rare, and often misunderstood, as FPIES, it can be difficult to know where to begin educating yourself and your family. Here, you will find resources for navigating day-to-day life with FPIES, as well as resources for navigating medical procedures, doctor’s visits andeven
THE FPIES FOUNDATION The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. The house structure of our logo symbolizes strength through a foundation of caring. It represents community and acceptance— inviting families to feel included underone roof.
COOKING AND NUTRITION Like a food journal, a cooking notebook can be an essential tool in living with FPIES. A cooking notebook is a journal for charting your cooking experiences, including original recipes, lists of safe ingredients to cook with, and any educational tools to help hone your skills. Print or pin the tools above for your notebook today! In theKitchen.
RESOURCES FOR NUTRITION PROFESSIONALS The Medical Nutrition Equity Act (S-1194, HB-2587) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involvedTODAY!
COOKING AND NUTRITION: RECIPE BOX Cooking and Nutrition: Recipe Box. Welcome to the Recipe Box! On this page, you will find a compilation of a variety of recipes, submitted from the diverse FPIES community. Some are simple, some are complex, but all are available to you as a resource and as an inspiration. Even if the ingredients are different from your little one’s safe list TREATMENT AND MANAGEMENT The term “food trial” does not have a formal medical definition. In the older food allergy literature, the term “trial” appears. This is not a term used in contemporary allergy practice. Physicians and patients might use the term “food trial” to mean they are either eating a food or avoiding a food to see the effect it may have on a health outcome.DENTAL HEALTH
The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. COOKING AND NUTRITION: NUTRITION RESOURCES FOR FAMILIES The Medical Nutrition Equity Act (S-1194, HB-2587) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involvedTODAY!
OUR SENSORY PREFERENCES & MEALTIMES Our sensory preferences directly influence our thoughts, feelings, memories, interactions with others and our behavior. If our brain detects or remembers an experience that feels unsafe, worrisome or dangerous, our body might experience a Danger Center Response (fight, flight, freeze or fright). These strong feelings might be associatedwith
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THE FPIES FOUNDATION Educate. Support. Empower.Donate Today
FOOD PROTEIN-INDUCED ENTEROCOLITIS SYNDROME (FPIES) A RARE TYPE OF FOOD ALLERGY THAT AFFECTS THE GASTROINTESTINAL TRACT. CLASSIC FPIES REACTIONS TYPICALLY OCCUR TWO OR MORE HOURS AFTER INGESTING THE "TRIGGER" FOOD AND TYPICALLY INVOLVE PROFUSE VOMITING, DIARRHEA, AND CAN PROGRESS TO SHOCK. REACTIONS CAN BE SEVERE AND REQUIRE IMMEDIATE MEDICAL ATTENTION.__
FOR FAMILIES
We provide the resources and support you need to help you support your child, from nutrition to daily management to emergency care.__
FOR PRACTITIONERS
Resources for your clinic; tools to learn more about FPIES and currentresearch
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FOR KIDS
Custom resources for kids living with FPIES, and the siblings and friends who support them__
EMERGENCY CARE
Everything you need to prepare for and to navigate trips to theemergency room
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GLOBAL FPIES PATIENT REGISTRY Share your voice and inspire research by completing medically-backedsurveys about FPIES
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REACH OUT AND CONNECT Join the private support forum and connect with other families affected by FPIES, worldwide Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods, or after drinking formula? Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive? These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.What is FPIES?
RAISE YOUR VOICE!
SHOW SUPPORT FOR BETTER MEDICAL NUTRITION COVERAGE THE MEDICAL NUTRITION EQUITY ACT (S-1194, HB-2587) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involvedTODAY!
__ Support Medical Nutrition EquityMEET OUR TEAM
POWERED BY PARENTS AND VOLUNTEERS, THE FPIES FOUNDATION IS AN ALL VOLUNTEER ORGANIZATION BORN FROM THE VISION OF EIGHT FAMILIES ALL AFFECTED BY FPIES, DEDICATED TO CHANGING THE LIVES OF FUTURE FAMILIES AND THE CHILDREN THEY SUPPORT.AMANDA LEFEW
EXECUTIVE DIRECTOR, MEDICAL LIAISON Amanda lives with her husband and two daughters in Massachusetts, both girls have FPIES. As an MT-BC, she has a passion for outreach and patient education. Amanda is a Foundation Founding Member.JOY MEYER
EXECUTIVE DIRECTOR
Joy lives in Minnesota with her husband and their four boys; their youngest has FPIES. As a DTR, she has a love for Nutrition and a passion for helping others. Joy is a Foundation Founding Member.JEN HERTSCH
BOARD OF DIRECTORS
Jen strives to help the Foundation develop strategies to grow, in order to further educate and provide resources for patients, families and healthcare professionals in the FPIES community.MEDICAL SUPPORT
MEDICAL ADVISORY BOARD The FPIES Foundation is proud to be supported by our Medical Advisory Board, a team of multidisciplinary leaders in FPIES research, treatment, and support. QUESTIONS ABOUT FPIES, ANSWERS FROM OUR MABFPIES Q&A
MEET OUR INSPIRING FAMILIES "FRIENDSHIP IS BORN AT THAT MOMENT WHEN ONE PERSON SAYS TO ANOTHER, 'WHAT? YOU TOO? I THOUGHT I WAS THE ONLY ONE.' " ~ C.S. LEWISMYRA'S FPIES STORY
"It may sound strange, but I can’t describe the relief I felt hearing she would have an 'official' documented diagnosis!"OUR HERO'S JOURNEY
"If I have two pieces of advice to offer you … ALWAYS LISTEN TO YOUR MOMMY GUT INSTINCTS … and… GET DIAGNOSED! Get a support team to help you! This is a long, hard, and weary battle! Our children are ourhero’s!"
OUR LITTLE MAN'S STORY "More support is vital-- more medical research is needed into this rare diagnosis so that other infants do not need to experience such complexities from this diagnosis."*
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ADVOCATE WITH THE FOUNDATION THE FPIES FOUNDATION IS A COLLABORATIVE EFFORT OF SEVERAL FAMILIES AFFECTED BY FPIES WHOSE RELENTLESS JOURNEY HAS SPARKED THE DESIRE TO HELP OTHER FAMILIES FIND THEIR WAY. THE FPIES FOUNDATION IS COMMITTED TO PROVIDING A CREDIBLE AND INTERACTIVE SUPPORT RESOURCE FOR THIS RARE, OFTENTIMES ISOLATING DIAGNOSIS. WE STRIVE TO MAKE THE EVERYDAY LIVES OF CHILDREN WITH FPIES AND THEIR FAMILIES EASIER. SUBSCRIBE TO RECEIVE UPDATES ON OUR PROGRAMS AND ADVOCACY INITIATIVES! SENDINBLUE NEWSLETTER__
FROM OUR BLOG
PROVIDING A NETWORK OF CARING -- THE SUPPORT YOU NEED TO SUPPORT THOSELIVING WITH FPIES.
LIVING WITH FPIES
FOOD ALLERGY AWARENESS WEEK 2020 Food Allergy Awareness Week (FAAW) is May 10-16 this year. Every year we join with Food Allergy Research and Education (FARE) to honor FAAW. We wanted to share some of the ways you can get involved and help build the growing awareness of different types of food allergies, such as Food Protein Induced Enterocolitis Syndrome (FPIES).HELPING FAMILIES
5 UNEXPECTED WAYS TO HELP SCHOOL CHILDREN LIVING WITH FPIES Planning meals for children can be challenging. You have to come up with a dish that is not only appealing to them but is also packed with nutritious ingredients that sometimes your child probably doesn’tRead more…
HELPING FAMILIES
A PEEK INTO ‘FPIES – THE MYSTERY THAT MADE MY BROTHER SICK’, ACHILDREN’S BOOK
We are so excited to share with you that a children’s book about life with FPIES was recently published! The book, “FPIES – The Mystery that Made My Brother Sick“, was written by a fellow Readmore…
CONNECT WITH US!
ARE YOU IN NEED OF RESOURCES FOR YOUR CHILD'S SCHOOL OR DAYCARE? WOULD YOU LIKE TO VOLUNTEER WITH THE FOUNDATION? DO YOU NEED HELP FINDING AN FPIES-FAMILIAR SPECIALIST TO HELP SUPPORT YOUR CHILD? REACH OUT FOR RESOURCES AND SUPPORT-- WE ARE HAPPY TO HELP YOU FIND THE TOOLS YOU NEED TO SUPPORT YOUR CHILD. FILL OUT THE FORM OR DIRECT: CONTACT@THEFPIESFOUNDATION.ORG__
CONNECT VIA POSTAL MAILP.O. Box 304
Stewartville MN 55976CONTACT US
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