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HEMOCHROMATOSIS.ORG
Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. OVERVIEW — HEMOCHROMATOSIS.ORG Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. SYMPTOMS — HEMOCHROMATOSIS.ORG Abdominal pain. Memory fog. Loss of sex drive. Heart flutters. Irregular heart beat. When symptoms are associated with hemochromatosis, these usually begin in men in their late 20’s to early 30’s. In women, symptoms usually start about 10-15 years after they stop having a period due to menopause, birth control pills, orhysterectomy.
TREATMENT — HEMOCHROMATOSIS.ORG Therapeutic blood removal, or phlebotomy, is the most common means of iron reduction. Therapeutic phlebotomy (TP) is the same as regular blood donation but TP requires a doctor’s order (prescription). Regular blood donation can be done every 8 weeks. A person with severe iron overload may need to give blood as much as 8 times in a singlemonth!
GENETICS — HEMOCHROMATOSIS.ORG Type I hemochromatosis is caused by defects (mutations) in the HFE gene. HFE has many purposes, but one important role is that it helps to control the amount of iron that is absorbed from food. There are several known mutations in the HFE gene, but presently testing forWHAT ARE THE TESTS
What tests are needed to obtain a diagnosis? There are 3 tests that together make up the Iron Panel Test.These tests look at serum ferritin, Total iron binding capacity, and serum iron. These tests need to be taken as a panel, not independently, to receive a comprehensive and accurate assessment of a potential Hemochromatosisdiagnosis.
PATIENT STORIES
Hemochromatosis is believed to affect over 1 million Americans according to the Centers for Disease Control (CDC). This statistic means that 1-250 Americans have full-blown Hemochromatosis and 1-8 Americans are carriers for the genetic make-up. Below are video stories of patients that have immense experience with Hemochromatosis. STORE — HEMOCHROMATOSIS.ORG There is also a small health journal for record-keeping. If you or a family member have hemochromatosis and are looking for a solution for iron healthy and delicious meals, purchase this book from Amazon today. The Hemochromatosis Cookbook: Recipes and Meals for Reducing the Absorption of Iron in Your Diet. $16.93. By Cheryl Garrison. GIVE — HEMOCHROMATOSIS.ORG Give in Honor or Memory. If there is a loved-one that has passed away or a person you would like to honor, we consider both iron warriors. You can give as much or as little as you choose and we will: Use the funds to spread iron education with workshops, educational materials, and scholarship programs. DIET — HEMOCHROMATOSIS.ORG Heme iron is the most easily absorbed form of iron. Highest in heme iron is red meat such as beef, venison, lamb, and buffalo. Additionally, blue fin tuna is higher in heme iron than most other types of fish. All meat and fish also contain non-heme iron, which is found mostly in vegetables, fruits, nuts, grains, and most over-the-counter ironHEMOCHROMATOSIS.ORG
Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. OVERVIEW — HEMOCHROMATOSIS.ORG Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. SYMPTOMS — HEMOCHROMATOSIS.ORG Abdominal pain. Memory fog. Loss of sex drive. Heart flutters. Irregular heart beat. When symptoms are associated with hemochromatosis, these usually begin in men in their late 20’s to early 30’s. In women, symptoms usually start about 10-15 years after they stop having a period due to menopause, birth control pills, orhysterectomy.
TREATMENT — HEMOCHROMATOSIS.ORG Therapeutic blood removal, or phlebotomy, is the most common means of iron reduction. Therapeutic phlebotomy (TP) is the same as regular blood donation but TP requires a doctor’s order (prescription). Regular blood donation can be done every 8 weeks. A person with severe iron overload may need to give blood as much as 8 times in a singlemonth!
GENETICS — HEMOCHROMATOSIS.ORG Type I hemochromatosis is caused by defects (mutations) in the HFE gene. HFE has many purposes, but one important role is that it helps to control the amount of iron that is absorbed from food. There are several known mutations in the HFE gene, but presently testing forWHAT ARE THE TESTS
What tests are needed to obtain a diagnosis? There are 3 tests that together make up the Iron Panel Test.These tests look at serum ferritin, Total iron binding capacity, and serum iron. These tests need to be taken as a panel, not independently, to receive a comprehensive and accurate assessment of a potential Hemochromatosisdiagnosis.
PATIENT STORIES
Hemochromatosis is believed to affect over 1 million Americans according to the Centers for Disease Control (CDC). This statistic means that 1-250 Americans have full-blown Hemochromatosis and 1-8 Americans are carriers for the genetic make-up. Below are video stories of patients that have immense experience with Hemochromatosis. STORE — HEMOCHROMATOSIS.ORG There is also a small health journal for record-keeping. If you or a family member have hemochromatosis and are looking for a solution for iron healthy and delicious meals, purchase this book from Amazon today. The Hemochromatosis Cookbook: Recipes and Meals for Reducing the Absorption of Iron in Your Diet. $16.93. By Cheryl Garrison. GIVE — HEMOCHROMATOSIS.ORG Give in Honor or Memory. If there is a loved-one that has passed away or a person you would like to honor, we consider both iron warriors. You can give as much or as little as you choose and we will: Use the funds to spread iron education with workshops, educational materials, and scholarship programs. DIET — HEMOCHROMATOSIS.ORG Heme iron is the most easily absorbed form of iron. Highest in heme iron is red meat such as beef, venison, lamb, and buffalo. Additionally, blue fin tuna is higher in heme iron than most other types of fish. All meat and fish also contain non-heme iron, which is found mostly in vegetables, fruits, nuts, grains, and most over-the-counter iron NEWS — HEMOCHROMATOSIS.ORG October 2, 2016. Andie is a talented performer who loves singing with her band, the " blacktopGypsy ", but instead of joining her friends on the stage, she is recovering from major surgery that may have been preventable. In 1999 hemochromatosis patients saw an average of 3 doctors and spent 9 years trying to get a complete diagnosis. In 2010 DIET — HEMOCHROMATOSIS.ORG Heme iron is the most easily absorbed form of iron. Highest in heme iron is red meat such as beef, venison, lamb, and buffalo. Additionally, blue fin tuna is higher in heme iron than most other types of fish. All meat and fish also contain non-heme iron, which is found mostly in vegetables, fruits, nuts, grains, and most over-the-counter ironHELPFUL FORMS
HELPFUL FORMS AND CHARTS. Feel free to download our forms and charts. They are designed to help you as a patient. Each year the Iron Disorders Institute Scientific & Medical Advisory Board issues updated Physician Reference Charts, which contain the most current best practice guidelines for patients with hemochromatosis.PATIENT STORIES
Hemochromatosis.org is a digital education and awareness effort provided . by Iron Disorders Institute, a 501 c (3) non-profit agency.. Privacy Policy I'VE BEEN DIAGNOSED WITH HEMOCHROMATOSIS I've been diagnosed with HemochromatosisHEMOCHROMATOSIS DVD
Hemochromatosis.org is a digital education and awareness effort provided . by Iron Disorders Institute, a 501 c (3) non-profit agency.. Privacy PolicyTAKE OUR SURVEY
Tell us about your journey: genetic markers (C282Y, H63D, other gene mutations, symptoms, age of symptom onset, status now, how diagnosed, toxin exposure, and response to therapies.DEBUNKING MYTHS
Hemochromatosis.org is a digital education and awareness effort provided . by Iron Disorders Institute, a 501 c (3) non-profit agency.. Privacy Policy IRON MEN: LIVING WITH HEMOCHROMATOSIS This DVD catalogs the journey of one family who has dealt with the loss and knowledge of Hemochromatosis and how genetics play a role isthis disorder.
PRIVACY — HEMOCHROMATOSIS.ORG Legal. Accounting Practices: Iron Disorders Institute is a registered 501(c)3 organization. All financial information about the organization is a matter of public record and is available upon request or may be viewed through the South Carolina Secretary of State or GuideStarwebsites.
HEMOCHROMATOSIS.ORG
Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. OVERVIEW — HEMOCHROMATOSIS.ORG Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. SYMPTOMS — HEMOCHROMATOSIS.ORG Abdominal pain. Memory fog. Loss of sex drive. Heart flutters. Irregular heart beat. When symptoms are associated with hemochromatosis, these usually begin in men in their late 20’s to early 30’s. In women, symptoms usually start about 10-15 years after they stop having a period due to menopause, birth control pills, orhysterectomy.
GENETICS — HEMOCHROMATOSIS.ORG Type I hemochromatosis is caused by defects (mutations) in the HFE gene. HFE has many purposes, but one important role is that it helps to control the amount of iron that is absorbed from food. There are several known mutations in the HFE gene, but presently testing for TREATMENT — HEMOCHROMATOSIS.ORG Therapeutic blood removal, or phlebotomy, is the most common means of iron reduction. Therapeutic phlebotomy (TP) is the same as regular blood donation but TP requires a doctor’s order (prescription). Regular blood donation can be done every 8 weeks. A person with severe iron overload may need to give blood as much as 8 times in a singlemonth!
WHAT ARE THE TESTS
What tests are needed to obtain a diagnosis? There are 3 tests that together make up the Iron Panel Test.These tests look at serum ferritin, Total iron binding capacity, and serum iron. These tests need to be taken as a panel, not independently, to receive a comprehensive and accurate assessment of a potential Hemochromatosisdiagnosis.
PATIENT STORIES
Hemochromatosis is believed to affect over 1 million Americans according to the Centers for Disease Control (CDC). This statistic means that 1-250 Americans have full-blown Hemochromatosis and 1-8 Americans are carriers for the genetic make-up. Below are video stories of patients that have immense experience with Hemochromatosis. STORE — HEMOCHROMATOSIS.ORG There is also a small health journal for record-keeping. If you or a family member have hemochromatosis and are looking for a solution for iron healthy and delicious meals, purchase this book from Amazon today. The Hemochromatosis Cookbook: Recipes and Meals for Reducing the Absorption of Iron in Your Diet. $16.93. By Cheryl Garrison. DIET — HEMOCHROMATOSIS.ORG Heme iron is the most easily absorbed form of iron. Highest in heme iron is red meat such as beef, venison, lamb, and buffalo. Additionally, blue fin tuna is higher in heme iron than most other types of fish. All meat and fish also contain non-heme iron, which is found mostly in vegetables, fruits, nuts, grains, and most over-the-counter iron GIVE — HEMOCHROMATOSIS.ORG Give in Honor or Memory. If there is a loved-one that has passed away or a person you would like to honor, we consider both iron warriors. You can give as much or as little as you choose and we will: Use the funds to spread iron education with workshops, educational materials, and scholarship programs.HEMOCHROMATOSIS.ORG
Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. OVERVIEW — HEMOCHROMATOSIS.ORG Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. SYMPTOMS — HEMOCHROMATOSIS.ORG Abdominal pain. Memory fog. Loss of sex drive. Heart flutters. Irregular heart beat. When symptoms are associated with hemochromatosis, these usually begin in men in their late 20’s to early 30’s. In women, symptoms usually start about 10-15 years after they stop having a period due to menopause, birth control pills, orhysterectomy.
GENETICS — HEMOCHROMATOSIS.ORG Type I hemochromatosis is caused by defects (mutations) in the HFE gene. HFE has many purposes, but one important role is that it helps to control the amount of iron that is absorbed from food. There are several known mutations in the HFE gene, but presently testing for TREATMENT — HEMOCHROMATOSIS.ORG Therapeutic blood removal, or phlebotomy, is the most common means of iron reduction. Therapeutic phlebotomy (TP) is the same as regular blood donation but TP requires a doctor’s order (prescription). Regular blood donation can be done every 8 weeks. A person with severe iron overload may need to give blood as much as 8 times in a singlemonth!
WHAT ARE THE TESTS
What tests are needed to obtain a diagnosis? There are 3 tests that together make up the Iron Panel Test.These tests look at serum ferritin, Total iron binding capacity, and serum iron. These tests need to be taken as a panel, not independently, to receive a comprehensive and accurate assessment of a potential Hemochromatosisdiagnosis.
PATIENT STORIES
Hemochromatosis is believed to affect over 1 million Americans according to the Centers for Disease Control (CDC). This statistic means that 1-250 Americans have full-blown Hemochromatosis and 1-8 Americans are carriers for the genetic make-up. Below are video stories of patients that have immense experience with Hemochromatosis. STORE — HEMOCHROMATOSIS.ORG There is also a small health journal for record-keeping. If you or a family member have hemochromatosis and are looking for a solution for iron healthy and delicious meals, purchase this book from Amazon today. The Hemochromatosis Cookbook: Recipes and Meals for Reducing the Absorption of Iron in Your Diet. $16.93. By Cheryl Garrison. DIET — HEMOCHROMATOSIS.ORG Heme iron is the most easily absorbed form of iron. Highest in heme iron is red meat such as beef, venison, lamb, and buffalo. Additionally, blue fin tuna is higher in heme iron than most other types of fish. All meat and fish also contain non-heme iron, which is found mostly in vegetables, fruits, nuts, grains, and most over-the-counter iron GIVE — HEMOCHROMATOSIS.ORG Give in Honor or Memory. If there is a loved-one that has passed away or a person you would like to honor, we consider both iron warriors. You can give as much or as little as you choose and we will: Use the funds to spread iron education with workshops, educational materials, and scholarship programs. NEWS — HEMOCHROMATOSIS.ORG October 2, 2016. Andie is a talented performer who loves singing with her band, the " blacktopGypsy ", but instead of joining her friends on the stage, she is recovering from major surgery that may have been preventable. In 1999 hemochromatosis patients saw an average of 3 doctors and spent 9 years trying to get a complete diagnosis. In 2010 DIET — HEMOCHROMATOSIS.ORG Heme iron is the most easily absorbed form of iron. Highest in heme iron is red meat such as beef, venison, lamb, and buffalo. Additionally, blue fin tuna is higher in heme iron than most other types of fish. All meat and fish also contain non-heme iron, which is found mostly in vegetables, fruits, nuts, grains, and most over-the-counter iron CONNECT — HEMOCHROMATOSIS.ORG CONNECT with iron disorders institute. Iron Disorders Institute. PO Box 4891. Greenville, SC 29608. info@irondisorders.org.HEMOCHROMATOSIS DVD
Hemochromatosis.org is a digital education and awareness effort provided . by Iron Disorders Institute, a 501 c (3) non-profit agency.. Privacy Policy I'VE BEEN DIAGNOSED WITH HEMOCHROMATOSIS I've been diagnosed with HemochromatosisDEBUNKING MYTHS
Hemochromatosis.org is a digital education and awareness effort provided . by Iron Disorders Institute, a 501 c (3) non-profit agency.. Privacy Policy PRIVACY — HEMOCHROMATOSIS.ORG Legal. Accounting Practices: Iron Disorders Institute is a registered 501(c)3 organization. All financial information about the organization is a matter of public record and is available upon request or may be viewed through the South Carolina Secretary of State or GuideStarwebsites.
IRON MEN: LIVING WITH HEMOCHROMATOSIS This DVD catalogs the journey of one family who has dealt with the loss and knowledge of Hemochromatosis and how genetics play a role isthis disorder.
SUPPORT ANDIE KAY
On Nov. 6, 2016 from 3 p.m. to 9 p.m. family, friends, and fans of the East Texas musician Andie Kay Joyner are gathering in Ben Wheeler, Texas for a two-stage musical fundraiser that will help Joyner to pay for her hemochromatosis treatment. FUNDRAISER TO HELP TEXAS MUSICIAN OVERCOME HEMOCHROMATOSIS Andie is a talented performer who loves singing with her band, the " blacktopGypsy ", but instead of joining her friends on the stage, sheis recovering from
HEMOCHROMATOSIS.ORG
Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. OVERVIEW — HEMOCHROMATOSIS.ORG Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. GENETICS — HEMOCHROMATOSIS.ORG Type I hemochromatosis is caused by defects (mutations) in the HFE gene. HFE has many purposes, but one important role is that it helps to control the amount of iron that is absorbed from food. There are several known mutations in the HFE gene, but presently testing for SYMPTOMS — HEMOCHROMATOSIS.ORG Abdominal pain. Memory fog. Loss of sex drive. Heart flutters. Irregular heart beat. When symptoms are associated with hemochromatosis, these usually begin in men in their late 20’s to early 30’s. In women, symptoms usually start about 10-15 years after they stop having a period due to menopause, birth control pills, orhysterectomy.
TREATMENT — HEMOCHROMATOSIS.ORG Therapeutic blood removal, or phlebotomy, is the most common means of iron reduction. Therapeutic phlebotomy (TP) is the same as regular blood donation but TP requires a doctor’s order (prescription). Regular blood donation can be done every 8 weeks. A person with severe iron overload may need to give blood as much as 8 times in a singlemonth!
WHAT ARE THE TESTS
What tests are needed to obtain a diagnosis? There are 3 tests that together make up the Iron Panel Test.These tests look at serum ferritin, Total iron binding capacity, and serum iron. These tests need to be taken as a panel, not independently, to receive a comprehensive and accurate assessment of a potential Hemochromatosisdiagnosis.
PATIENT STORIES
Hemochromatosis is believed to affect over 1 million Americans according to the Centers for Disease Control (CDC). This statistic means that 1-250 Americans have full-blown Hemochromatosis and 1-8 Americans are carriers for the genetic make-up. Below are video stories of patients that have immense experience with Hemochromatosis. STORE — HEMOCHROMATOSIS.ORG There is also a small health journal for record-keeping. If you or a family member have hemochromatosis and are looking for a solution for iron healthy and delicious meals, purchase this book from Amazon today. The Hemochromatosis Cookbook: Recipes and Meals for Reducing the Absorption of Iron in Your Diet. $16.93. By Cheryl Garrison. DIET — HEMOCHROMATOSIS.ORG Heme iron is the most easily absorbed form of iron. Highest in heme iron is red meat such as beef, venison, lamb, and buffalo. Additionally, blue fin tuna is higher in heme iron than most other types of fish. All meat and fish also contain non-heme iron, which is found mostly in vegetables, fruits, nuts, grains, and most over-the-counter iron GIVE — HEMOCHROMATOSIS.ORG Give in Honor or Memory. If there is a loved-one that has passed away or a person you would like to honor, we consider both iron warriors. You can give as much or as little as you choose and we will: Use the funds to spread iron education with workshops, educational materials, and scholarship programs.HEMOCHROMATOSIS.ORG
Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. OVERVIEW — HEMOCHROMATOSIS.ORG Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. GENETICS — HEMOCHROMATOSIS.ORG Type I hemochromatosis is caused by defects (mutations) in the HFE gene. HFE has many purposes, but one important role is that it helps to control the amount of iron that is absorbed from food. There are several known mutations in the HFE gene, but presently testing for SYMPTOMS — HEMOCHROMATOSIS.ORG Abdominal pain. Memory fog. Loss of sex drive. Heart flutters. Irregular heart beat. When symptoms are associated with hemochromatosis, these usually begin in men in their late 20’s to early 30’s. In women, symptoms usually start about 10-15 years after they stop having a period due to menopause, birth control pills, orhysterectomy.
TREATMENT — HEMOCHROMATOSIS.ORG Therapeutic blood removal, or phlebotomy, is the most common means of iron reduction. Therapeutic phlebotomy (TP) is the same as regular blood donation but TP requires a doctor’s order (prescription). Regular blood donation can be done every 8 weeks. A person with severe iron overload may need to give blood as much as 8 times in a singlemonth!
WHAT ARE THE TESTS
What tests are needed to obtain a diagnosis? There are 3 tests that together make up the Iron Panel Test.These tests look at serum ferritin, Total iron binding capacity, and serum iron. These tests need to be taken as a panel, not independently, to receive a comprehensive and accurate assessment of a potential Hemochromatosisdiagnosis.
PATIENT STORIES
Hemochromatosis is believed to affect over 1 million Americans according to the Centers for Disease Control (CDC). This statistic means that 1-250 Americans have full-blown Hemochromatosis and 1-8 Americans are carriers for the genetic make-up. Below are video stories of patients that have immense experience with Hemochromatosis. STORE — HEMOCHROMATOSIS.ORG There is also a small health journal for record-keeping. If you or a family member have hemochromatosis and are looking for a solution for iron healthy and delicious meals, purchase this book from Amazon today. The Hemochromatosis Cookbook: Recipes and Meals for Reducing the Absorption of Iron in Your Diet. $16.93. By Cheryl Garrison. DIET — HEMOCHROMATOSIS.ORG Heme iron is the most easily absorbed form of iron. Highest in heme iron is red meat such as beef, venison, lamb, and buffalo. Additionally, blue fin tuna is higher in heme iron than most other types of fish. All meat and fish also contain non-heme iron, which is found mostly in vegetables, fruits, nuts, grains, and most over-the-counter iron GIVE — HEMOCHROMATOSIS.ORG Give in Honor or Memory. If there is a loved-one that has passed away or a person you would like to honor, we consider both iron warriors. You can give as much or as little as you choose and we will: Use the funds to spread iron education with workshops, educational materials, and scholarship programs. NEWS — HEMOCHROMATOSIS.ORG October 2, 2016. Andie is a talented performer who loves singing with her band, the " blacktopGypsy ", but instead of joining her friends on the stage, she is recovering from major surgery that may have been preventable. In 1999 hemochromatosis patients saw an average of 3 doctors and spent 9 years trying to get a complete diagnosis. In 2010 DIET — HEMOCHROMATOSIS.ORG Heme iron is the most easily absorbed form of iron. Highest in heme iron is red meat such as beef, venison, lamb, and buffalo. Additionally, blue fin tuna is higher in heme iron than most other types of fish. All meat and fish also contain non-heme iron, which is found mostly in vegetables, fruits, nuts, grains, and most over-the-counter ironHELPFUL FORMS
HELPFUL FORMS AND CHARTS. Feel free to download our forms and charts. They are designed to help you as a patient. Each year the Iron Disorders Institute Scientific & Medical Advisory Board issues updated Physician Reference Charts, which contain the most current best practice guidelines for patients with hemochromatosis.HEMOCHROMATOSIS DVD
Hemochromatosis.org is a digital education and awareness effort provided . by Iron Disorders Institute, a 501 c (3) non-profit agency.. Privacy Policy I'VE BEEN DIAGNOSED WITH HEMOCHROMATOSIS I've been diagnosed with HemochromatosisDEBUNKING MYTHS
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IRON MEN: LIVING WITH HEMOCHROMATOSIS This DVD catalogs the journey of one family who has dealt with the loss and knowledge of Hemochromatosis and how genetics play a role isthis disorder.
SUPPORT ANDIE KAY
On Nov. 6, 2016 from 3 p.m. to 9 p.m. family, friends, and fans of the East Texas musician Andie Kay Joyner are gathering in Ben Wheeler, Texas for a two-stage musical fundraiser that will help Joyner to pay for her hemochromatosis treatment. FUNDRAISER TO HELP TEXAS MUSICIAN OVERCOME HEMOCHROMATOSIS Andie is a talented performer who loves singing with her band, the " blacktopGypsy ", but instead of joining her friends on the stage, sheis recovering from
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Hemochromatosis
* Overview
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* Helpful Forms
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Overview
Symptoms
What Are The Tests
Genetics
Treatment
Diet
Patient Stories
Helpful Forms
OVERVIEW
HEMOCHROMATOSIS IS A METABOLIC DISORDER THAT AFFECTS OVER 1 MILLIONAMERICANS.
It's real. It's common. It's genetic.SCROLL DOWN
OVERVIEW
HEMOCHROMATOSIS IS A METABOLIC DISORDER THAT AFFECTS OVER 1 MILLIONAMERICANS.
It's real. It's common. It's genetic. Interested in getting tested for an iron disorder? Get affordable testing through our affiliated lab partner, Accesa Labs: WHAT IS HEMOCHROMATOSIS? Hemochromatosis is an iron disorder in which the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can damage joints, organs, and eventually be fatal. There are several types of hemochromatosis. Type 1, also called Classic Hemochromatosis (HHC), is a leading cause of iron overload disease. People with HHC (too much iron) absorb extra amounts of iron from the daily diet. The human body cannot rid itself of extra iron. Over time, these excesses build up in major organs such as the heart, liver, pancreas, joints, and pituitary. If the extra iron is not removed, these organs can become diseased. Untreated hemochromatosiscan be fatal.
Iron is an essential nutrient found in many foods. Iron carries oxygen (in hemoglobin) to all parts of the body. Normally, humans absorb about 8-10% of the iron in foods that they eat. People with hemochromatosis (too much iron) can absorb four times more iron thannormal.
Undiagnosed and untreated hemochromatosis (too much iron) increases the risk for diseases and conditions such as:*
Diabetes mellitus
*
Irregular heart beat or heart attack*
Arthritis (osteoarthritis, osteoporosis)*
Cirrhosis of the liver or liver cancer*
Gall bladder disease*
Depression
*
Impotence
*
Infertility
*
Hypothyroidism
*
Hypogonadism
*
Some cancers
Mismanaged iron in the brain has been observed in autopsies of people with neurodegenerative diseases: Alzheimer's, early onset Parkinson's, epilepsy, multiple sclerosis, and Huntington's disease. Caucasians are the people most at risk for the classic type of hemochromatosis. More than one million Americans have the genes for this type. However, there are other gene combinations that result in hemochromatosis regardless of a person's ethnicity. It is estimated that as much as or more than 16 million Americans have some degree of elevated iron and are at risk for the same diseases that occur in people with the untreated classic type: bone and joint disease, cirrhosis, liver cancer, diabetes, hypothyroidism, hypogonadism, infertility, impotence, depression, or premature death due to liver orheart failure.
SYMPTOMS
SYMPTOMS OF HEMOCHROMATOSISSYMPTOMS
SYMPTOMS OF HEMOCHROMATOSIS SYMPTOMS OF HEMOCHROMATOSIS Chronic fatigue and joint pain are the most common complaints of people with hemochromatosis. For this reason, the complete diagnosis is often delayed because these two symptoms are commonly seen in other diseases. Pain in the knuckles of the pointer and middle finger, collectively called _“THE IRON FIST,” IS THE ONLY SIGN OR SYMPTOM SPECIFIC TO HEMOCHROMATOSIS_. However, not everyone with HHC experiences the Iron Fist. PATIENTS OFTEN COMPLAIN OF THE FOLLOWING: Some complain of the following symptoms, although these indicators are not always specific to hemochromatosis:* Lack of energy
* Abdominal pain
* Memory fog
* Loss of sex drive
* Heart flutters
* Irregular heart beat When symptoms are associated with hemochromatosis, these usually begin in men in their late 20’s to early 30’s. In women, symptoms usually start about 10-15 years after they stop having a period due to menopause, birth control pills, or hysterectomy. Consider usingour SYMPTOMS LOG
to
monitor your symptoms of hemochromatosis. DISEASES THAT CAN DEVELOP IF LEFT UNTREATED * BONE AND JOINT: osteoarthritis or osteoporosis in knuckles, ankles,and hips
* LIVER: enlarged liver, cirrhosis, cancer, and liver failurediabetes
* SKIN: abnormal color (bronze, reddish or ashen-gray) * HEART: irregular heartbeat, enlarged heart, congestive heartfailure
* ENDOCRINE: diabetes, hypothyroidism, hypogonadism, (infertility, impotence), hormone imbalances * SPLEEN: enlarged spleen Hemochromatosis can be overlooked by a doctor who is concentrating on treatment of diseases that are present in the patient. Many doctors still believe what they learned in medical school – that hemochromatosis is rare and only happens in older men. When hemochromatosis is discovered early and treated before organ damage can occur, a person can live a normal, healthy life. Any family practice physician is qualified to diagnose and order treatment for a hemochromatosis patient. PHYSICIANS WHO CAN HELP DIAGNOSE HEMOCHROMATOSIS If there are complications with diseased organs, the patient might need to see a specialist:* Cardiologist
* Endocrinologist
* Gastroenterologist* Gynecologist
* Hematologist/Oncologist* Hepatologist
* Internist
* Rheumatologist
* Urologist
* Psychiatrist
The Iron Disorders Institute Guide to Hemochromatosis$18.65
By Cheryl Garrison
WHAT ARE THE TESTS
WHAT IRON TESTS DETERMINE HEMOCHROMATOSIS?WHAT ARE THE TESTS
WHAT IRON TESTS DETERMINE HEMOCHROMATOSIS? WHAT TESTS ARE NEEDED TO OBTAIN A DIAGNOSIS? There are 3 TESTS THAT TOGETHER MAKE UP THE IRON PANEL TEST. These tests look at serum ferritin, Total iron binding capacity, and serum iron. These tests need to be taken as a panel, not independently, to receive a comprehensive and accurate assessment of a potential Hemochromatosis diagnosis.SERUM IRON (SI)
This test is best conducted after fasting for at least three hours. Also, iron or vitamin C supplements should be discontinued at least three days before taking the test. Do not discontinue other medication unless your doctor tells you to.SERUM FERRITIN (SF)
This test measures the amount of iron contained or stored in the body. Serum ferritin reference ranges are different for adults and children. For adults, the ideal range is 50-150 ng/ml. TOTAL IRON BINDING CAPACITY (TIBC) This test tells how well your body can bind to iron. Serum iron divided by TIBC x 100% gives you important information about the transferrin-iron saturation percentage (TS%). TS% is usually 25-35%; in some people with iron overload, the TS% is very high. There are other types of iron overload where the TS% is normal. In the past, liver biopsy was widely used to diagnose hemochromatosis. Today, liver biopsy is not necessary to diagnose the inherited form of HHC. DNA tests are available to determine if a person has genetichemochromatosis.
> “The Iron Panel test saved my life. I was one of the lucky > patients that was able to stop the train before the train wreck. > Today, I watch my diet and give blood every two months. ”— Sam S.
ORDER IRON LAB TESTS ONLINE AND GET YOUR COMPLETE PICTURE WITH THE NEW IRONOLOGY™ IRON PANEL * Save money and time! * Order lab tests online through our affiliate ACCESA LABS * Use our link or code "IRONOLOGYHS" to save $10 on your total order * Visit your local Quest Diagnostics for testing * Receive confidential and secure test results electronically * Share results with your physician for proper diagnosis andrecommendations
Order iron Tests
GENETICS
HEMOCHROMATOSIS IS A GENETIC DISORDER Learn more about genetics below.GENETICS
HEMOCHROMATOSIS IS A GENETIC DISORDER Learn more about genetics below. CONFIRMING HEMOCHROMATOSIS Genetic tests can confirm a diagnosis and help identify family members who are at risk for hemochromatosis. Most commonly, the genetic test is performed with a cheek swab. WHAT CAUSES HEMOCHROMATOSIS? Type I hemochromatosis is caused by defects (mutations) in the HFE gene. HFE has many purposes, but one important role is that it helps to control the amount of iron that is absorbed from food. There are several known mutations in the HFE gene, but presently testing for only three is available: C282Y, H63D, and S65C. Everyone inherits two copies of HFE, one from Mom and one from Dad. When a person has one mutated copy, he or she is called a carrier or heterozygote. When a person has two of the same mutated copies, he or she is called a homozygote. When a person has two different – but mutated – copies, he or she is called a compound heterozygote. Genetics can be very difficult to understand at first. What is most important is that you know which gene combination causes the greatest known risk of loading iron.MOST AT RISK
C282Y homozygote and the C282Y/H63D compound heterozygoteMODERATE RISK
H63D homozygote or other compound heterozygote combinationsLOW RISK
C282Y heterozygote (carrier); H63D heterozygote (carrier) or S65C heterozygote (carrier) Risk can be modified by other genes, the environment, or unknown factors. Therefore, anyone with a mutated copy of HFE should periodically ask their doctor to check iron levels through hemoglobin, fasting serum iron, TIBC, and serum ferritin. > “I started loading iron when I was a teen. My family was shocked > to learn what Hemochromatosis was and that it was genetic. We later > learned that my Dad was a carrier and my grandfather’s premature > death was caused by Hemochromatosis. Today, I am equipped with the > knowledge I need to stay healthy. ”— Eric B
TREATMENT
TREATING HEMOCHROMATOSISTREATMENT
TREATING HEMOCHROMATOSISTREATMENT
It is very important to get iron levels down to normal. Therapeutic blood removal, or phlebotomy, is the most common means of iron reduction. Therapeutic phlebotomy (TP) is the same as regular blood donation but TP requires a doctor’s order (prescription). Regular blood donation can be done every 8 weeks. A person with severe iron overload may need to give blood as much as 8 times in a single month! The goal is to bring blood ferritin levels to an ideal range of 50-150ng/mL. Depending on the amount of iron overload at the time of diagnosis, reaching normal levels can require several phlebotomies. Serum ferritin drops about 30ng/mL with each full unit (500cc) of blood removed. When ferritin falls more rapidly following a phlebotomy, there is likely some other reason for the fast rate other than the blood donation. These reasons are specific to the individual but can include the presence of inflammation, changes in alcohol consumption, or changes to medication. Once iron levels reach normal, a person can begin maintenance therapy, which involves making a blood donation every 2 to 4 months for life. Some people may need to give blood more or less depending on what they eat and how quickly their body absorbs iron. The TS% and serum ferritin tests can be done periodically to help determine how often blood should be removed. When hemochromatosis is diagnosed early and treated before organs are damaged, a person can live a normal life expectancy. For people who have the disease at the time of diagnosis, life expectancy may be shortened depending upon the disease. If a person is diagnosed and treated before serum ferritin is above 1,000ng/mL the risk of cirrhosis or liver cancer is less than 1%.DIET
HEMOCHROMATOSIS AND DIETDIET
HEMOCHROMATOSIS AND DIET FOLLOWING A HEMOCHROMATOSIS-FRIENDLY DIET Humans consume two types of iron: heme and non-heme. Heme iron is the most easily absorbed form of iron. Highest in heme iron is red meat such as beef, venison, lamb, and buffalo. Additionally, blue fin tuna is higher in heme iron than most other types of fish. All meat and fish also contain non-heme iron, which is found mostly in vegetables, fruits, nuts, grains, and most over-the-counter iron supplements. Visit the Iron Disorders Institute Library for more details about diet, including meal and food planning suggestions and a list of ironcontent in foods.
HTTP://WWW.IRONDISORDERS.ORG/DIET/ Also, please consider purchasing our book, The Hemochromatosis Cookbook. It features dozens of recipes for the hemochromatosis patient and also makes a great gift! The Hemochromatosis Cookbook: Recipes and Meals for Reducing the Absorption of Iron in Your Diet$16.93
By Cheryl Garrison
> “Diet is such a crucial part of a hemochromatosis patient’s > life. I’ve used The Hemochromatosis Cookbook for years to make > healthy recipes and it’s perfect for me.”— David G.
PATIENT STORIES
PATIENTS AND FAMILY MEMBERS LIVING WITH HEMOCHROMATOSIS A video gallery documenting their journey with this disorderPATIENT STORIES
PATIENTS AND FAMILY MEMBERS LIVING WITH HEMOCHROMATOSIS A video gallery documenting their journey with this disorder AS A HEMOCHROMATOSIS PATIENT, YOU ARE NOT ALONE Hemochromatosis is believed to affect over 1 million Americans according to the Centers for Disease Control (CDC). This statistic means that 1-250 Americans have full-blown Hemochromatosis and 1-8 Americans are carriers for the genetic make-up. Below are video stories of patients that have immense experience withHemochromatosis.
Mystery Diagnosis episode featuring Iron Disorders Institute board member Aran Gordon on his journey living with Hemochromatosis.","source":" Mystery Diagnosis episode featuring Iron Disorders Institute board member Aran Gordon on his journey living with Hemochromatosis. "},"hSize":null,"floatDir":null,"customThumb":"54a2e5e9e4b0b119c20a00ee","html":"\n","url":"http://youtu.be/kIAwFO6Sbx4","resolvedBy":"youtube"}" data-block-type="32" id="block-yui_3_17_2_3_1419961299135_4558"> " data-provider-name="" id="yui_3_17_2_1_1589361675387_92"> Join Gerry as he explains is journey with Hemochromatosis and the misdiagnosis that cost him his liver.","source":" Join Gerry as he explains is journey with Hemochromatosis and the misdiagnosis that cost him his liver. "},"hSize":null,"floatDir":null,"customThumb":"54a2f903e4b098d743a72a11","html":"\n","url":"https://www.youtube.com/watch?v=ky36DyX-ZDg&feature=youtu.be","width":854,"height":480,"providerName":"YouTube","thumbnailUrl":"http://i.ytimg.com/vi/ky36DyX-ZDg/hqdefault.jpg","resolvedBy":"youtube"}" data-block-type="32" id="block-yui_3_17_2_6_1419961299135_9581"> " data-provider-name="YouTube" id="yui_3_17_2_1_1589361675387_150"> Join Christine as she shares her families story about hemochromatosis and how preventable this disorder actually is.","source":" Join Christine as she shares her families story about hemochromatosis and how preventable this disorder actually is. "},"hSize":null,"floatDir":null,"customThumb":"54a2e933e4b0365c017f3ec2","html":"\n","url":"https://www.youtube.com/watch?v=OSkd8EXWJUw&feature=youtu.be","width":854,"height":480,"providerName":"YouTube","thumbnailUrl":"http://i.ytimg.com/vi/OSkd8EXWJUw/hqdefault.jpg","resolvedBy":"youtube"}" data-block-type="32" id="block-yui_3_17_2_3_1419961299135_5295"> " data-provider-name="YouTube" id="yui_3_17_2_1_1589361675387_206"> Join Margaret Kennedy on her journey with Hemochromatosis.","source":" Join Margaret Kennedy on her journey with Hemochromatosis. "},"hSize":null,"floatDir":null,"customThumb":"54a2fb6ce4b04e50bec5bcd4","html":"\n","url":"https://www.youtube.com/watch?v=dBJ3_o5LVKM&feature=youtu.be","width":854,"height":480,"providerName":"YouTube","thumbnailUrl":"http://i.ytimg.com/vi/dBJ3_o5LVKM/hqdefault.jpg","resolvedBy":"youtube"}" data-block-type="32" id="block-yui_3_17_2_6_1419961299135_10653"> " data-provider-name="YouTube" id="yui_3_17_2_1_1589361675387_262"> _THE MAN WHO TURNED ORANGE SHOWN WITH PERMISSION BY DISCOVERY HEALTH WITH A LICENSE OBTAINED BY IRON DISORDERS INSTITUTE FOR EDUCATIONALUSE._
Uploaded by David Garrison on 2015-08-24.","source":" Uploaded by David Garrison on 2015-08-24. "},"hSize":null,"floatDir":null,"customThumb":"55db6be1e4b046e163c9fed3","html":"\n","url":"https://www.youtube.com/watch?v=_2HDeSNQbio&feature=youtu.be","width":854,"height":480,"providerName":"YouTube","resolvedBy":"youtube"}" data-block-type="32" id="block-yui_3_17_2_3_1440443222614_7624"> " data-provider-name="YouTube" id="yui_3_17_2_1_1589361675387_318"> Liked This Movie? Become A MemberHELPFUL FORMS
KEEPING RECORDS CAN SAVE LIVES. Use these helpful charts to manage your hemochromatosis.HELPFUL FORMS
KEEPING RECORDS CAN SAVE LIVES. Use these helpful charts to manage your hemochromatosis. HELPFUL FORMS AND CHARTS Feel free to download our forms and charts. They are designed to help you as a patient. Each year the Iron Disorders Institute Scientific & Medical Advisory Board issues updated Physician Reference Charts, which contain the most current best practice guidelines for patients with hemochromatosis. NEW TO HEMOCHROMATOSISDownload This Chart
PHYSICIAN REFERENCE CHARTDownload This Chart
PERSONAL HEALTH PROFILEDownload This Chart
SYMPTOMS LOG
Download This Chart
PHLEBOTOMY GUIDELINESDownload this chart
HHC INTRODUCTION
Download This Chart
DO YOU SUFFER?
Download THIS CHART
GENETIC WORKSHEET
Download This Chart
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