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LYMPHORRHOEA
Lymphorrhoea is most commonly associated with cancer-related lymphoedema, however, it can happen to people who have lymphoedemafrom any cause.
COVID-19 VACCINATION AND LYMPHOEDEMA V3 FINAL Produced by the Lymphoedema Support Network Revised: 25th January 2021 www.lymphoedema.org COVID-19 vaccination and lymphoedema Whilst it is great news that the COVID-19 vaccine is being rolled out, the LSN hasbeen
EXERCISE AND MOVEMENT Tips for Patients with Lymphoedema. Wear your compression garment or bandages when exercising to get the best out of the muscle pump action; Do a little every day and build up to about 30 minutes of activity, 5 days a week CONSENSUS DOCUMENT ON COVID-19 VACCINATION FOR PATIENTS 12th February 2021 • Patients are recommended to accept whichever vaccine is offered, providing they have no other reason not to. The vaccination is usually given as an injection into the upper arm. Within the areas of the body affected by lymphoedema, the immune cells which fight infection may not work as well. ALTERNATIVE THERAPIES FOR THE MANAGEMENT OF LYMPHOEDEMA Introduction. The standard approach to the management of lymphoedema as stated by the International Consensus, Best Practice for the Management of Lymphoedema (2006) – often referred to as the ‘gold standard care model’ – includes an intensive treatment phase of Multi-layered Lymphoedema Bandaging, Manual Lymphatic Drainage, Skin Care and Exercise followed by a maintenance phase of HAVE YOU GOT CELLULITIS… OR RED LEGS? Fig 2: shows mild gravitational eczema (also known as varicose eczema or stasis eczema). There is an inverted champagne bottle shape (sclerosis), reddy brown colour, some itchy, scaly, weepy skin which is rough and no associated pain. NHS LYMPHOEDEMA SERVICES IN ENGLAND This article is taken from the Autumn 2019 issue of LymphLine, the LSN’s quarterly newsletter available to all LSN members. For details of how to become a member, click here.. As most of you will know, one of the things that the LSN provides to both patients and cliniciansalike
HOME - LYMPHOEDEMA SUPPORT NETWORK - LSNINFORMATIONHEALTHCARE PROFESSIONALSCELLULITISCHILDHOOD LYMPHOEDEMAGET INVOLVEDSHOP LSN charity appeal on BBC Radio 4. We hope you managed to listen to our Radio 4 Appeal, made by Professor Peter Mortimer. If you missed it, you can still listen to it via the Radio 4 Appeal website.. We are very grateful to everyone who has given to the appeal but if you would still like to donate, please do it directly through the LSN website using the Donate button above and not the Radio 4 CELLULITIS IN LYMPHOEDEMA Your lymphatic system is not only important for draining fluid away from tissues, but is also important for ‘policing’ or ‘patrolling’ for infection. PRACTICAL ASSESSMENT OF LYMPHOEDEMA It is important to determine the extent of the oedema and which parts of the body are involved. In secondary lymphoedema the swelling should be confined to areas of known lymphatic damage.LYMPHORRHOEA
Lymphorrhoea is most commonly associated with cancer-related lymphoedema, however, it can happen to people who have lymphoedemafrom any cause.
COVID-19 VACCINATION AND LYMPHOEDEMA V3 FINAL Produced by the Lymphoedema Support Network Revised: 25th January 2021 www.lymphoedema.org COVID-19 vaccination and lymphoedema Whilst it is great news that the COVID-19 vaccine is being rolled out, the LSN hasbeen
EXERCISE AND MOVEMENT Tips for Patients with Lymphoedema. Wear your compression garment or bandages when exercising to get the best out of the muscle pump action; Do a little every day and build up to about 30 minutes of activity, 5 days a week CONSENSUS DOCUMENT ON COVID-19 VACCINATION FOR PATIENTS 12th February 2021 • Patients are recommended to accept whichever vaccine is offered, providing they have no other reason not to. The vaccination is usually given as an injection into the upper arm. Within the areas of the body affected by lymphoedema, the immune cells which fight infection may not work as well. ALTERNATIVE THERAPIES FOR THE MANAGEMENT OF LYMPHOEDEMA Introduction. The standard approach to the management of lymphoedema as stated by the International Consensus, Best Practice for the Management of Lymphoedema (2006) – often referred to as the ‘gold standard care model’ – includes an intensive treatment phase of Multi-layered Lymphoedema Bandaging, Manual Lymphatic Drainage, Skin Care and Exercise followed by a maintenance phase of HAVE YOU GOT CELLULITIS… OR RED LEGS? Fig 2: shows mild gravitational eczema (also known as varicose eczema or stasis eczema). There is an inverted champagne bottle shape (sclerosis), reddy brown colour, some itchy, scaly, weepy skin which is rough and no associated pain. NHS LYMPHOEDEMA SERVICES IN ENGLAND This article is taken from the Autumn 2019 issue of LymphLine, the LSN’s quarterly newsletter available to all LSN members. For details of how to become a member, click here.. As most of you will know, one of the things that the LSN provides to both patients and cliniciansalike
HOME - LYMPHOEDEMA SUPPORT NETWORK - LSN LSN charity appeal on BBC Radio 4. We hope you managed to listen to our Radio 4 Appeal, made by Professor Peter Mortimer. If you missed it, you can still listen to it via the Radio 4 Appeal website.. We are very grateful to everyone who has given to the appeal but if you would still like to donate, please do it directly through the LSN website using the Donate button above and not the Radio 4 PRACTICAL ASSESSMENT OF LYMPHOEDEMA It is important to determine the extent of the oedema and which parts of the body are involved. In secondary lymphoedema the swelling should be confined to areas of known lymphatic damage. HOW TO RECOGNISE LYMPHOEDEMA There is usually evidence of chronic venous hypertension, e.g. as a result of post-thrombotic syndrome or severe varicose veins. Venous dilatation, e.g. submalleolar venous flare, telangiectasia, varicose veins, skin changes such as pigmentation especially around the gaiter area, venous eczema and lipodermatosclerosis may be present. COVID-19 VACCINATION AND LYMPHOEDEMA V3 FINAL Produced by the Lymphoedema Support Network Revised: 25th January 2021 www.lymphoedema.org COVID-19 vaccination and lymphoedema Whilst it is great news that the COVID-19 vaccine is being rolled out, the LSN hasbeen
USEFUL ARTICLES
The information contained in the articles below is not intended to replace individual advice you may receive from your healthcare practitioner and falls outside the scope of the Information Standard.ABOUT CELLULITIS
Contact your doctor immediately as you will need antibiotic treatment. For information on the type of antibiotics used in the treatment of cellulitis in lymphoedema, see the Cellulitis Consensus Document (in pdf format).. Treatment of cellulitis in lymphoedema is very important, not only because the sufferer may become very ill, but because lymph drainage routes risk being damaged further. SELF-MANAGEMENT VIDEOS A series of 16 online self-management videos, initially funded by Welsh Government, have been made by Lymphoedema Network Wales, the group of health care professionals leading lymphoedema care in Wales, and were produced by eHealth Digital Media. COMMISSIONING GUIDANCE As a patient group, the LSN has a specific role within the NLP to ‘champion’ the cause of people living with lymphoedema and one of the biggest frustrations for so many is the differences in care offered, depending on where you live or what has caused your swelling.GENITAL LYMPHOEDEMA
By Dr Kristiana Gordon, Consultant in Dermatology and Lymphovascular Medicine, Lymphoedema Clinical Lead, St. George’s Hospital, London. This article is taken from the Spring 2018 issue of LymphLine, the LSN’s quarterly newsletter available to all LSN members. OBESITY AND LYMPHOEDEMA What we eat in our ‘normal’ diet and how it may affect the development of lymphoedema is unclear. However, we do know that some primary lymphoedema patients experience symptoms similar to Irritable Bowel Syndrome due to abnormal gut lymphatics. HOW TO RECOGNISE LYMPHOEDEMA Two main types of lymphoedema are recognised: a) Primary lymphoedema. This term describes lymphoedema where there is an intrinsic genetic abnormality of the lymphatic system. It may be inherited. b) Secondary lymphoedema. In secondary lymphoedema, where lymphatic failure is a result of damage to an otherwise normal lymphatic system, e.g. due to CELLULITIS IN LYMPHOEDEMA The most common infection in lymphoedema is cellulitis, a sudden, non-contagious infection of the skin, characterised by redness, swelling and heat accompanied by pain and tenderness. The treatment for cellulitis when one has lymphoedema varies from the treatment for those who develop the condition who do not have lymphoedema.LYMPHORRHOEA
Lymphorrhoea is defined as ‘leaking of lymph fluid from the surface of skin’. This simple description does little justice to this condition as lymphorrhoea can be very distressing to experience. The affected area can feel tender, fragile, cold and constantly wet. It is important to know that there is GUIDELINES - LYMPHOEDEMA SUPPORT NETWORK - LSN Guidelines - Lymphoedema Support Network - LSN. Guidelines. Some of the most frequently asked questions that we receive on our information and support line are in relation to having blood pressure readings, blood samples and injections in limbs that have, or are at risk of developing, lymphoedema. Like so many things to do with the conditionUSEFUL ARTICLES
The information contained in the articles below is not intended to replace individual advice you may receive from your healthcare practitioner and falls outside the scope of the Information Standard. COVID-19 VACCINATION AND LYMPHOEDEMA V3 FINAL Produced by the Lymphoedema Support Network Revised: 25th January 2021 www.lymphoedema.org COVID-19 vaccination and lymphoedema Whilst it is great news that the COVID-19 vaccine is being rolled out, the LSN hasbeen
EXERCISE AND MOVEMENT Breathe in and feel your stomach rising (imagine a balloon inflating under your hands) Slowly breathe out and press gently inwards with your hands. Repeat five times. Specific Exercises for Lower Limb Lymphoedema. Repeat 10 times both sides. You can increase the CONSENSUS DOCUMENT ON COVID-19 VACCINATION FOR PATIENTS 12th February 2021 • Patients are recommended to accept whichever vaccine is offered, providing they have no other reason not to. The vaccination is usually given as an injection into the upper arm. Within the areas of the body affected by lymphoedema, the immune cells which fight infection may not work as well. ALTERNATIVE THERAPIES FOR THE MANAGEMENT OF LYMPHOEDEMA Introduction. The standard approach to the management of lymphoedema as stated by the International Consensus, Best Practice for the Management of Lymphoedema (2006) – often referred to as the ‘gold standard care model’ – includes an intensive treatment phase of Multi-layered Lymphoedema Bandaging, Manual Lymphatic Drainage, Skin Care and Exercise followed by a maintenance phase ofGENITAL LYMPHOEDEMA
By Dr Kristiana Gordon, Consultant in Dermatology and Lymphovascular Medicine, Lymphoedema Clinical Lead, St. George’s Hospital, London. This article is taken from the Spring 2018 issue of LymphLine, the LSN’s quarterly newsletter available to all LSN members. HOW TO RECOGNISE LYMPHOEDEMA Two main types of lymphoedema are recognised: a) Primary lymphoedema. This term describes lymphoedema where there is an intrinsic genetic abnormality of the lymphatic system. It may be inherited. b) Secondary lymphoedema. In secondary lymphoedema, where lymphatic failure is a result of damage to an otherwise normal lymphatic system, e.g. due to CELLULITIS IN LYMPHOEDEMA The most common infection in lymphoedema is cellulitis, a sudden, non-contagious infection of the skin, characterised by redness, swelling and heat accompanied by pain and tenderness. The treatment for cellulitis when one has lymphoedema varies from the treatment for those who develop the condition who do not have lymphoedema.LYMPHORRHOEA
Lymphorrhoea is defined as ‘leaking of lymph fluid from the surface of skin’. This simple description does little justice to this condition as lymphorrhoea can be very distressing to experience. The affected area can feel tender, fragile, cold and constantly wet. It is important to know that there is GUIDELINES - LYMPHOEDEMA SUPPORT NETWORK - LSN Guidelines - Lymphoedema Support Network - LSN. Guidelines. Some of the most frequently asked questions that we receive on our information and support line are in relation to having blood pressure readings, blood samples and injections in limbs that have, or are at risk of developing, lymphoedema. Like so many things to do with the conditionUSEFUL ARTICLES
The information contained in the articles below is not intended to replace individual advice you may receive from your healthcare practitioner and falls outside the scope of the Information Standard. COVID-19 VACCINATION AND LYMPHOEDEMA V3 FINAL Produced by the Lymphoedema Support Network Revised: 25th January 2021 www.lymphoedema.org COVID-19 vaccination and lymphoedema Whilst it is great news that the COVID-19 vaccine is being rolled out, the LSN hasbeen
EXERCISE AND MOVEMENT Breathe in and feel your stomach rising (imagine a balloon inflating under your hands) Slowly breathe out and press gently inwards with your hands. Repeat five times. Specific Exercises for Lower Limb Lymphoedema. Repeat 10 times both sides. You can increase the CONSENSUS DOCUMENT ON COVID-19 VACCINATION FOR PATIENTS 12th February 2021 • Patients are recommended to accept whichever vaccine is offered, providing they have no other reason not to. The vaccination is usually given as an injection into the upper arm. Within the areas of the body affected by lymphoedema, the immune cells which fight infection may not work as well. ALTERNATIVE THERAPIES FOR THE MANAGEMENT OF LYMPHOEDEMA Introduction. The standard approach to the management of lymphoedema as stated by the International Consensus, Best Practice for the Management of Lymphoedema (2006) – often referred to as the ‘gold standard care model’ – includes an intensive treatment phase of Multi-layered Lymphoedema Bandaging, Manual Lymphatic Drainage, Skin Care and Exercise followed by a maintenance phase ofGENITAL LYMPHOEDEMA
By Dr Kristiana Gordon, Consultant in Dermatology and Lymphovascular Medicine, Lymphoedema Clinical Lead, St. George’s Hospital, London. This article is taken from the Spring 2018 issue of LymphLine, the LSN’s quarterly newsletter available to all LSN members. HOME - LYMPHOEDEMA SUPPORT NETWORK - LSN Information for Health Care Professionals. About Us. ‘The Lymphoedema Support Network is a registered charity and the UK's national patient support organisation for those living with or affected by lymphoedema.’. The Lymphoedema Support Network (LSN) takes the lead role in educating and supporting people with this condition by providing a EXERCISE AND MOVEMENT Breathe in and feel your stomach rising (imagine a balloon inflating under your hands) Slowly breathe out and press gently inwards with your hands. Repeat five times. Specific Exercises for Lower Limb Lymphoedema. Repeat 10 times both sides. You can increase the GUIDELINES - LYMPHOEDEMA SUPPORT NETWORK - LSN Guidelines - Lymphoedema Support Network - LSN. Guidelines. Some of the most frequently asked questions that we receive on our information and support line are in relation to having blood pressure readings, blood samples and injections in limbs that have, or are at risk of developing, lymphoedema. Like so many things to do with the condition PRACTICAL ASSESSMENT OF LYMPHOEDEMA It is important to determine the extent of the oedema and which parts of the body are involved. In secondary lymphoedema the swelling should be confined to areas of known lymphatic damage. If more extensive oedema is present, other causes such as heart failure, liver disease, renal disease, advanced malignancy, etc. should be considered.ABOUT CELLULITIS
Cellulitis is a sudden, non contagious infection of the skin, characterised by redness, swelling and heat, with associated pain and tenderness. It is usually accompanied by fever, nausea/vomiting and a feeling of generally being unwell. People with lymphoedema are particularly susceptible to cellulitis because the lymphatic system isdamaged or
SELF-MANAGEMENT VIDEOS Self-Management Videos. A series of 16 online self-management videos, initially funded by Welsh Government, have been made by Lymphoedema Network Wales, the group of health care professionals leading lymphoedema care in Wales, and were produced by eHealth Digital Media. The videos are informative and practical, aimed at giving information OBESITY AND LYMPHOEDEMA It is well recognised that obesity is associated with the development of secondary lower limb lymphoedema, especially in patients who already have chronic venous insufficiency (CVI), which is also often initiated by a high Body Mass Index (BMI). BMI is a recognised measurement tool that uses body weight and height to determine if weare
COMMISSIONING GUIDANCE Commissioning Guidance. We are delighted that ‘Commissioning Guidance for Lymphoedema Services for Adults in the United Kingdom’ has now been published and can be viewed here. The document is part of the work being undertaken by the National Lymphoedema Partnership (NLP). The NLP is a collaboration of groups from across the UK andIreland
CONSENSUS DOCUMENT ON THE MANAGEMENT OF CELLULITIS IN 1 Final Version Revised Cellulitis Guidelines December 2016 Consensus Document on the Management of Cellulitis in Lymphoedema Cellulitis isan acute spreading
NHS LYMPHOEDEMA SERVICES IN ENGLAND After our update in 2018 we had 202 NHS provider clinics in England. Our 2019 update shows a net loss of 24 services leaving us with 178 services. These 178 services are made up of the following types of services: 119 see individuals with lymphoedema of any cause. 51 only see people with cancer related lymphoedema – 33 see those with anytype
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JOIN THE LYMPHOEDEMA SUPPORT NETWORK Joining the LSN could not be easier. Joining will not only give you access to all our information and support but your £15.00 annual membership fee will also allow us to continue our vital work.READ MORE
FUNDRAISING FOR LSN
What do the Lymphoedema Support Network need to raise funds for?READ MORE
THE NATIONAL LYMPHOEDEMA PARTNERSHIP TEAM The NLP is a collaboration of groups from across the UK and Ireland working in the field of lymphoedema, including the LSN. The NLP has recently published ‘Commissioning Guidance for Lymphoedema Services for Adults in the United Kingdom’…READ MORE
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LATEST NEWS
LSN CHARITY APPEAL ON BBC RADIO 4 We hope you managed to listen to our Radio 4 Appeal, made by Professor Peter Mortimer. If you missed it, you can still listen to it via the Radio 4 Appeal website. We are very grateful to everyone who has given to the appeal but if you would still like to donate, please do it directly through the LSN website using the Donatebutton
above and NOT the Radio 4 Appeal website. It is not often that lymphoedema has a national audience so we are very grateful to have had this opportunity. CONSENSUS DOCUMENT ON COVID-19 VACCINATION Revised information about the COVID-19 vaccination. Updated 25th May2021.
Consensus Document on COVID Vaccination Lymphoedema and COVID-19 (coronavirus) guidanceRead more
HOW CAN WE HELP?
Please know you are not alone, at least 400,000 men, women and children in the UK live with lymphoedema/chronic oedema. Whether you are newly diagnosed, are concerned that you may be at risk, live with or care for someone with the condition, or are a Health Care Professional interested in lymphoedema, the LSN is here for you. With appropriate information and the help and support of a lymphoedema practitioner, there is much that patients can do to help themselves in the management and control of their condition. Indeed, patient education, advice and support is now at the forefront of care, ensuring all patients diagnosed with lymphoedema, become an expert in managing their own condition.* Just diagnosed?
* Think you might be at risk? * Your questions answered * Information for Health Care ProfessionalsABOUT US
‘The Lymphoedema Support Network is a registered charity and the UK's national patient support organisation for those living with or affected by lymphoedema.’ The Lymphoedema Support Network (LSN) takes the lead role in educating and supporting people with this condition by providing a high standard of information that can be trusted and promoting supported self-management. Since its inception in 1991, when there was very little information or help available for patients, the LSN has evolved into an independent and influential charity. Having a unique understanding of the patient experience of lymphoedema allows us to work to raise awareness, campaign at a national and local level for equal access to care, provide patient input to research studies and commission and sponsor GP and other health care professional onlineeducation.
For nearly 30 years the LSN has been there to provide information and support to those living with or affected by lymphoedema/chronic oedema and although we are now an award-winning charity we are proud still to be run by people with lymphoedema, for people with lymphoedema and we firmly believe that lymphoedema matters.Read more
LATEST NEWS
LSN CHARITY APPEAL ON BBC RADIO 4 We hope you managed to listen to our Radio 4 Appeal, made by Professor Peter Mortimer. If you missed it, you can still listen to it via the Radio 4 Appeal website. We are very grateful to everyone who has given to the appeal but if you would still like to donate, please do it directly through the LSN website using the Donatebutton
above and NOT the Radio 4 Appeal website. It is not often that lymphoedema has a national audience so we are very grateful to have had this opportunity. CONSENSUS DOCUMENT ON COVID-19 VACCINATION Revised information about the COVID-19 vaccination. Updated 25th May2021.
Consensus Document on COVID Vaccination Lymphoedema and COVID-19 (coronavirus) guidanceRead more
HOW CAN WE HELP?
Please know you are not alone, at least 400,000 men, women and children in the UK live with lymphoedema/chronic oedema. Whether you are newly diagnosed, are concerned that you may be at risk, live with or care for someone with the condition, or are a Health Care Professional interested in Lymphoedema, the LSN is here for you. With appropriate information and the help and support of a lymphoedema practitioner, there is much that patients can do to help themselves in the management and control of their condition. Indeed, patient education, advice and support is now at the forefront of care, ensuring all patients diagnosed with lymphoedema, become an expert in managing their own condition.* Just diagnosed?
* Think you might be at risk? * Your questions answered * Information for Health Care ProfessionalsABOUT US
‘The Lymphoedema Support Network is a registered charity and the UK's national patient support organisation for those living with or affected by lymphoedema.’ The Lymphoedema Support Network (LSN) takes the lead role in educating and supporting people with this condition by providing a high standard of information that can be trusted and promoting supported self-management. Since its inception in 1991, when there was very little information or help available for patients, the LSN has evolved into an independent and influential charity. Having a unique understanding of the patient experience of lymphoedema allows us to work to raise awareness, campaign at a national and local level for equal access to care, provide patient input to research studies and commission and sponsor GP and other health care professional onlineeducation.
For nearly 30 years the LSN has been there to provide information and support to those living with or affected by lymphoedema/chronic oedema and although we are now an award-winning charity we are proud still to be run by people with lymphoedema, for people with lymphoedema and we firmly believe that lymphoedema matters.Read more
NEED TO SPEAK TO US? We are available Monday to Friday – 09.30 to 16.30. Call our friendly team on 020 7351 4480 HOW YOU CAN GET INVOLVED The LSN receives no statutory or health service funding and is reliant on the generosity of our supporters to be able to continue our work. Call 020 7351 0990 to donate or Contact Usto get involved
HOLD AN EVENT
Why not hold a sponsored walk, cake sale, barn dance, you could even jump out of a plane if you are so inclined! And don’t forget to send us a picture so we can build up our photo wall.MAKE A DONATION
You can support our work by making a regular donation to the LSN via JustGiving or Virgin Money Giving or by setting up a standing order. Call our team for further information. RAISE FUNDS WHILE SHOPPING ONLINE! Easyfundraising – provides a FREE service where you can shop with your favourite online stores, and at no extra cost, raise funds for the LSN.Learn more
“THE FACT THAT I CAN CALL ON THE LSN AT ANYTIME IS A HUGE HELP. THEY ARE SUPPORTIVE AND PRO-ACTIVE ON MY BEHALF AND I AM HAPPY TO HELP INANY WAY I CAN."
LSN Member 2016
"I HAVE LEARNT MORE ABOUT MY CONDITION AND HOW TO MANAGE IT IN THE THREE MONTHS SINCE I JOINED THE LSN THAN IN ALL THE YEARS BEFORE…THANK YOU."Mrs J, Cambridge
“THE TELEPHONE SUPPORT LINE WAS INVALUABLE TO ME WHEN I WAS FIRST DIAGNOSED AND SCARED – A LIFELINE.”Ms D, Ilford
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Lymphoedema Support Network St. Luke’s Church CryptSydney Street
London
SW3 6NH
T: 020 7351 4480 – Information & Support T: 020 7351 0990 – AdministrationE: admin@lsn.org.uk
Registered Charity No. 1018749 Because Lymphoedema Matters GDPR Compliant Privacy Policy Terms and Conditions* Follow
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