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INSTITUTEABOUTBLOG
Advocate ResourcesTraining Material. Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost to you. Many resources are available in print or by immediate download. Selected items are available in alternate languages. For information about current resources please click the link below.GENERAL RESOURCES
For Download, a link will be provided at no cost once the transaction is complete. Printed resources will be delivered free via USPS for all domestic requests. For multiple units, click the resource image and update the quantity prior to adding to the cart.Problems ordering? Contact us at orders@researchadvocacy.org.ADVOCATE INSTITUTE
The Research Advocacy Network’s Advocate Institute is designed to equip advocates with an understanding of the medical research system, scientific concepts and safeguards for research participants. We develop the tools and resources needed to comprehend research studies and communicate effectively with patients, researchers and otheradvocates.
PDF RESOURCES
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. TUMOR PROFILING: THE GOOD, THE BAD AND THE FUTURE Dr. Hamilton described tumor profiling, with emphasis on the emerging area of liquid biopsies. Based on a definition from the Mayo Clinic, tumor profiling is a method of testing that evaluates each person’s tumor to determine genomic and other molecular characteristics. The results are used as biomarkers that are targets for, or influences onELDA RAILEY
Elda Railey. Elda specializes in working with patient advocacy organizations to forge collaborations and train individuals how to be effective research advocates. Prior to the founding of Research Advocacy Network, she served for 12 years with Susan G. Komen in various capacities, primarily as Director of Grants and SponsoredPrograms, where
LIQUID BIOPSY TUTORIAL LIQUID BIOPSY TUTORIAL 1 Chapter 1: Introduction to Liquid Biopsies Several months ago, Glenda learned that she had a suspicious mass of tissue in her left lung.MARY LOU SMITH
Mary Lou Smith, JD, MBA. Prior to co-founding RAN, Mary Lou was the director of patient, payer and government relations for the Coalition of National Cancer Cooperative Groups. She currently serves as co-chair of the ECOG-ACRIN Cancer Research Group's Cancer ResearchAdvocacy Committee.
PATIENT DECISION AIDS Updating decision aids Advances in medicine necessitate updates of patient decision aids. These advances may include results from clinical trials evaluating a new therapy, new safety information abouta
QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER: A GUIDE FOR ADVOCATES Chapter 2: Measuring Health-Related Quality of Life Health-related quality of life is a subjective state and therefore must be reported or rated by HOME | RESEARCH ADVOCACY NETWORKRESEARCH ENGAGEMENTRESOURCESADVOCATEINSTITUTEABOUTBLOG
Advocate ResourcesTraining Material. Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost to you. Many resources are available in print or by immediate download. Selected items are available in alternate languages. For information about current resources please click the link below.GENERAL RESOURCES
For Download, a link will be provided at no cost once the transaction is complete. Printed resources will be delivered free via USPS for all domestic requests. For multiple units, click the resource image and update the quantity prior to adding to the cart.Problems ordering? Contact us at orders@researchadvocacy.org.ADVOCATE INSTITUTE
The Research Advocacy Network’s Advocate Institute is designed to equip advocates with an understanding of the medical research system, scientific concepts and safeguards for research participants. We develop the tools and resources needed to comprehend research studies and communicate effectively with patients, researchers and otheradvocates.
PDF RESOURCES
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. TUMOR PROFILING: THE GOOD, THE BAD AND THE FUTURE Dr. Hamilton described tumor profiling, with emphasis on the emerging area of liquid biopsies. Based on a definition from the Mayo Clinic, tumor profiling is a method of testing that evaluates each person’s tumor to determine genomic and other molecular characteristics. The results are used as biomarkers that are targets for, or influences onELDA RAILEY
Elda Railey. Elda specializes in working with patient advocacy organizations to forge collaborations and train individuals how to be effective research advocates. Prior to the founding of Research Advocacy Network, she served for 12 years with Susan G. Komen in various capacities, primarily as Director of Grants and SponsoredPrograms, where
LIQUID BIOPSY TUTORIAL LIQUID BIOPSY TUTORIAL 1 Chapter 1: Introduction to Liquid Biopsies Several months ago, Glenda learned that she had a suspicious mass of tissue in her left lung.MARY LOU SMITH
Mary Lou Smith, JD, MBA. Prior to co-founding RAN, Mary Lou was the director of patient, payer and government relations for the Coalition of National Cancer Cooperative Groups. She currently serves as co-chair of the ECOG-ACRIN Cancer Research Group's Cancer ResearchAdvocacy Committee.
PATIENT DECISION AIDS Updating decision aids Advances in medicine necessitate updates of patient decision aids. These advances may include results from clinical trials evaluating a new therapy, new safety information abouta
QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER: A GUIDE FOR ADVOCATES Chapter 2: Measuring Health-Related Quality of Life Health-related quality of life is a subjective state and therefore must be reported or rated byGENERAL RESOURCES
For Download, a link will be provided at no cost once the transaction is complete. Printed resources will be delivered free via USPS for all domestic requests. For multiple units, click the resource image and update the quantity prior to adding to the cart.Problems ordering? Contact us at orders@researchadvocacy.org.GENERAL RESOURCES
Involving Patients in Cancer Research: An Overview of Methods and Strategies. An important part of our work at Research Advocacy Network (RAN) is to advance patient care by encouraging and enabling cancer patient and advocate participation throughout the research process.*FREE.
QUICK DOWNLOAD OF PDF RESOURCE Biosimilars (20.5 MB) ( 6 MB lower resolution version) Clinical Trial Design (1 MB) Genomics in Cancer (7.2 MB) Liquid Biopsy (3MB) Molecular Diagnostics (14.5 MB) Pathology and Tissue Research (1 MB) Precision Medicine in Oncology (2.0 MB) Quality of Life and Patient Reported Outcomes (1.2 MB) Targeted Therapies (2 MB) UNDERSTANDING CLINICAL TRIAL DESIGN: A TUTORIAL FOR This section should assist research advocatesto formulate useful questions to raise about clinical trialdesign.The questions are generic, but not exhaustive. Asking generic questions is often possible and even preferable to raising specific sugges-MARY LOU SMITH
Mary Lou Smith, JD, MBA. Prior to co-founding RAN, Mary Lou was the director of patient, payer and government relations for the Coalition of National Cancer Cooperative Groups. She currently serves as co-chair of the ECOG-ACRIN Cancer Research Group's Cancer ResearchAdvocacy Committee.
RESEARCH ADVOCACY NETWORK Overall Tips It is important that patients understand the difference between a tissue sample that could affect their treatment and one thatis used for future
HELPING PATIENTS UNDERSTAND, REPORT AND MANAGE - Other difficulties. These include loss of balance, shuffling, shaking or feeling like you’re walking with a pebble in your shoe. Or it may be having trouble feeling the shape of small TARGETED THERAPIES IN CANCER 2 Cancer Chemotherapies Chemotherapies capitalize on the fact that cancer cells continuously replicate themselves. Like normal cells, cancer cells replicate themselves and proliferate by copying theirDNA.
ROADMAP TO RESEARCH ADVOCACY IN TRANSLATIONAL SCIENCES Research advocates serve on Institutional Review Boards (IRB) at academic medical centers and their local hospitals. Research conducted at an institution that is federally funded must have IRB approval. METASTATIC BREAST CANCER: USING CONJOINT ANALYSIS TO Metastatic Breast Cancer: Using Conjoint Analysis to Analyze Patient Preferences Authors: M. Smith, C. B. White, E. Railey, G. W. Sledge KEY QUESTIONS/AIMS OF THE PROJECT HOME | RESEARCH ADVOCACY NETWORKRESEARCH ENGAGEMENTRESOURCESADVOCATEINSTITUTEABOUTBLOG
Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost to you. Many resources are available in print or by immediate download.GENERAL RESOURCES
Helping Patients Understand, Report and Manage CIPN –Companion piece to the patient brochure with talking points to aid the healthcare team in communication with their patients.PDF RESOURCES
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. TUMOR PROFILING: THE GOOD, THE BAD AND THE FUTURE Dr. Hamilton described tumor profiling, with emphasis on the emerging area of liquid biopsies. Based on a definition from the Mayo Clinic, tumor profiling is a method of testing that evaluates each person’s tumor to determine genomic and other molecular characteristics.ELDA RAILEY
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support.MARY LOU SMITH
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. LIQUID BIOPSY TUTORIAL LIQUID BIOPSY TUTORIAL 1 Chapter 1: Introduction to Liquid Biopsies Several months ago, Glenda learned that she had a suspicious mass of tissue in her left lung. PATIENT DECISION AIDS Updating decision aids Advances in medicine necessitate updates of patient decision aids. These advances may include results from clinical trials evaluating a new therapy, new safety information abouta
TARGETED THERAPIES IN CANCER 2 Cancer Chemotherapies Chemotherapies capitalize on the fact that cancer cells continuously replicate themselves. Like normal cells, cancer cells replicate themselves and proliferate by copying theirDNA.
QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER: A GUIDE FOR ADVOCATES Chapter 2: Measuring Health-Related Quality of Life Health-related quality of life is a subjective state and therefore must be reported or rated by HOME | RESEARCH ADVOCACY NETWORKRESEARCH ENGAGEMENTRESOURCESADVOCATEINSTITUTEABOUTBLOG
Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost to you. Many resources are available in print or by immediate download.GENERAL RESOURCES
Helping Patients Understand, Report and Manage CIPN –Companion piece to the patient brochure with talking points to aid the healthcare team in communication with their patients.PDF RESOURCES
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. TUMOR PROFILING: THE GOOD, THE BAD AND THE FUTURE Dr. Hamilton described tumor profiling, with emphasis on the emerging area of liquid biopsies. Based on a definition from the Mayo Clinic, tumor profiling is a method of testing that evaluates each person’s tumor to determine genomic and other molecular characteristics.ELDA RAILEY
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support.MARY LOU SMITH
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. LIQUID BIOPSY TUTORIAL LIQUID BIOPSY TUTORIAL 1 Chapter 1: Introduction to Liquid Biopsies Several months ago, Glenda learned that she had a suspicious mass of tissue in her left lung. PATIENT DECISION AIDS Updating decision aids Advances in medicine necessitate updates of patient decision aids. These advances may include results from clinical trials evaluating a new therapy, new safety information abouta
TARGETED THERAPIES IN CANCER 2 Cancer Chemotherapies Chemotherapies capitalize on the fact that cancer cells continuously replicate themselves. Like normal cells, cancer cells replicate themselves and proliferate by copying theirDNA.
QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER: A GUIDE FOR ADVOCATES Chapter 2: Measuring Health-Related Quality of Life Health-related quality of life is a subjective state and therefore must be reported or rated byGENERAL RESOURCES
This 52 page tutorial was developed by Research Advocacy Network to assist research advocates in developing strategies and contributing to discussions about clinical trial design. QUICK DOWNLOAD OF PDF RESOURCE Tutorials (file size is indicated as some files are quite large):. Biomarkers in Cancer (6.8 MB); Biosimilars (20.5 MB) (6 MB lower resolution version); Clinical Trial Design (1 MB); Genomics in Cancer (7.2 MB); Liquid Biopsy (3MB); Molecular Diagnostics (14.5 MB); Pathology and Tissue Research (1 MB); Precision Medicine in Oncology (2.0 MB); Quality of Life and Patient Reported Outcomes (1.2 MB)GENERAL RESOURCES
Certified Spanish translation of "Importance of Tissue Samples in Research". Please note: there is a maximum of 25 printed copies perorder.
AN INTRODUCTORY GUIDE FOR ADVOCATES BIOMARKERS IN CANCER: AN INTRODUCTORY GUIDE FOR ADVOCATES 1 When we go into our physician’s office for an annual check-up, we are likely to have our cholesterol levels and blood pressure checked.Theseprocedures are
COMMUNICATIONS SKILLS The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support.MARY LOU SMITH
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. PRECISION MEDICINE IN ONCOLOGY EDUCATIONAL RESOURCES The Precision Medicine in Oncology online course is a free, self paced, narrated course. Each of the five chapters will take 15-25 minutes to complete. You may complete all five chapters in one session or stop and return to the course at a later time. UNDERSTANDING CLINICAL TRIAL DESIGN: A TUTORIAL FOR This section should assist research advocatesto formulate useful questions to raise about clinical trialdesign.The questions are generic, but not exhaustive. Asking generic questions is often possible and even preferable to raising specific sugges- HELPING PATIENTS UNDERSTAND, REPORT AND MANAGE - Other difficulties. These include loss of balance, shuffling, shaking or feeling like you’re walking with a pebble in your shoe. Or it may be having trouble feeling the shape of small QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER: A GUIDE FOR ADVOCATES Chapter 2: Measuring Health-Related Quality of Life Health-related quality of life is a subjective state and therefore must be reported or rated by HOME | RESEARCH ADVOCACY NETWORKRESEARCH ENGAGEMENTRESOURCESADVOCATEINSTITUTEABOUTBLOG
Advocate ResourcesTraining Material. Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost to you. Many resources are available in print or by immediate download. Selected items are available in alternate languages. For information about current resources please click the link below.ADVOCATE INSTITUTE
The Research Advocacy Network’s Advocate Institute is designed to equip advocates with an understanding of the medical research system, scientific concepts and safeguards for research participants. We develop the tools and resources needed to comprehend research studies and communicate effectively with patients, researchers and otheradvocates.
GENERAL RESOURCES
For Download, a link will be provided at no cost once the transaction is complete. Printed resources will be delivered free via USPS for all domestic requests. For multiple units, click the resource image and update the quantity prior to adding to the cart.Problems ordering? Contact us at orders@researchadvocacy.org.PDF RESOURCES
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. TUMOR PROFILING: THE GOOD, THE BAD AND THE FUTURE Dr. Hamilton described tumor profiling, with emphasis on the emerging area of liquid biopsies. Based on a definition from the Mayo Clinic, tumor profiling is a method of testing that evaluates each person’s tumor to determine genomic and other molecular characteristics. The results are used as biomarkers that are targets for, or influences onELDA RAILEY
Elda Railey. Elda specializes in working with patient advocacy organizations to forge collaborations and train individuals how to be effective research advocates. Prior to the founding of Research Advocacy Network, she served for 12 years with Susan G. Komen in various capacities, primarily as Director of Grants and SponsoredPrograms, where
NCI-MATCH: PERSPECTIVES FROM INDUSTRY COLLABORATOR Ms. Brockman discussed the participation of Genentech in precision medicine trials. It takes the presence of cutting edge medicines + diagnostics and genomic sequencing + new technologies to bring new medicines to market for patients. LIQUID BIOPSY TUTORIAL LIQUID BIOPSY TUTORIAL 1 Chapter 1: Introduction to Liquid Biopsies Several months ago, Glenda learned that she had a suspicious mass of tissue in her left lung.MARY LOU SMITH
Mary Lou Smith, JD, MBA. Prior to co-founding RAN, Mary Lou was the director of patient, payer and government relations for the Coalition of National Cancer Cooperative Groups. She currently serves as co-chair of the ECOG-ACRIN Cancer Research Group's Cancer ResearchAdvocacy Committee.
PATIENT DECISION AIDS Updating decision aids Advances in medicine necessitate updates of patient decision aids. These advances may include results from clinical trials evaluating a new therapy, new safety information abouta
HOME | RESEARCH ADVOCACY NETWORKRESEARCH ENGAGEMENTRESOURCESADVOCATEINSTITUTEABOUTBLOG
Advocate ResourcesTraining Material. Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost to you. Many resources are available in print or by immediate download. Selected items are available in alternate languages. For information about current resources please click the link below.ADVOCATE INSTITUTE
The Research Advocacy Network’s Advocate Institute is designed to equip advocates with an understanding of the medical research system, scientific concepts and safeguards for research participants. We develop the tools and resources needed to comprehend research studies and communicate effectively with patients, researchers and otheradvocates.
GENERAL RESOURCES
For Download, a link will be provided at no cost once the transaction is complete. Printed resources will be delivered free via USPS for all domestic requests. For multiple units, click the resource image and update the quantity prior to adding to the cart.Problems ordering? Contact us at orders@researchadvocacy.org.PDF RESOURCES
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. TUMOR PROFILING: THE GOOD, THE BAD AND THE FUTURE Dr. Hamilton described tumor profiling, with emphasis on the emerging area of liquid biopsies. Based on a definition from the Mayo Clinic, tumor profiling is a method of testing that evaluates each person’s tumor to determine genomic and other molecular characteristics. The results are used as biomarkers that are targets for, or influences onELDA RAILEY
Elda Railey. Elda specializes in working with patient advocacy organizations to forge collaborations and train individuals how to be effective research advocates. Prior to the founding of Research Advocacy Network, she served for 12 years with Susan G. Komen in various capacities, primarily as Director of Grants and SponsoredPrograms, where
NCI-MATCH: PERSPECTIVES FROM INDUSTRY COLLABORATOR Ms. Brockman discussed the participation of Genentech in precision medicine trials. It takes the presence of cutting edge medicines + diagnostics and genomic sequencing + new technologies to bring new medicines to market for patients. LIQUID BIOPSY TUTORIAL LIQUID BIOPSY TUTORIAL 1 Chapter 1: Introduction to Liquid Biopsies Several months ago, Glenda learned that she had a suspicious mass of tissue in her left lung.MARY LOU SMITH
Mary Lou Smith, JD, MBA. Prior to co-founding RAN, Mary Lou was the director of patient, payer and government relations for the Coalition of National Cancer Cooperative Groups. She currently serves as co-chair of the ECOG-ACRIN Cancer Research Group's Cancer ResearchAdvocacy Committee.
PATIENT DECISION AIDS Updating decision aids Advances in medicine necessitate updates of patient decision aids. These advances may include results from clinical trials evaluating a new therapy, new safety information abouta
HOME | RESEARCH ADVOCACY NETWORK Advocate ResourcesTraining Material. Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost to you. Many resources are available in print or by immediate download. Selected items are available in alternate languages. For information about current resources please click the link below.GENERAL RESOURCES
For Download, a link will be provided at no cost once the transaction is complete. Printed resources will be delivered free via USPS for all domestic requests. For multiple units, click the resource image and update the quantity prior to adding to the cart.Problems ordering? Contact us at orders@researchadvocacy.org. ONLINE COURSE: BASICS FOR RESEARCH ADVOCACY The Basics for Research Advocacy online course is a free, self paced, narrated course. Each of the three modules will take 15-20 minutes to complete. You may complete all three modules in one session or stop and return to the course at a later time.USER ACCOUNT
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. QUICK DOWNLOAD OF PDF RESOURCE Biosimilars (20.5 MB) ( 6 MB lower resolution version) Clinical Trial Design (1 MB) Genomics in Cancer (7.2 MB) Liquid Biopsy (3MB) Molecular Diagnostics (14.5 MB) Pathology and Tissue Research (1 MB) Precision Medicine in Oncology (2.0 MB) Quality of Life and Patient Reported Outcomes (1.2 MB) Targeted Therapies (2 MB) TISSUE DONATIONS MATERIALS Tissue Donations Materials. Most publications are available via electronic download or in hard copy by mail. Simply select your preferred delivery method and "Add to Cart". For Download, a link will be provided at no cost once the transaction is complete. Printed resources will be delivered free via USPS for all domestic requests.JUDY PEROTTI
Judy Perotti, MS. Judy was one of the original co-founders of the Research Advocacy Network. While she is retired from active involvement with the organization, her role in launching it will always be remembered as both instrumental and visionary. TARGETED THERAPIES IN CANCER 2 Cancer Chemotherapies Chemotherapies capitalize on the fact that cancer cells continuously replicate themselves. Like normal cells, cancer cells replicate themselves and proliferate by copying theirDNA.
AN INTRODUCTORY GUIDE FOR ADVOCATES BIOMARKERS IN CANCER: AN INTRODUCTORY GUIDE FOR ADVOCATES 1 When we go into our physician’s office for an annual check-up, we are likely to have our cholesterol levels and blood pressure checked.Theseprocedures are
QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER: A GUIDE FOR ADVOCATES Chapter 2: Measuring Health-Related Quality of Life Health-related quality of life is a subjective state and therefore must be reported or rated by HOME | RESEARCH ADVOCACY NETWORKRESEARCH ENGAGEMENTRESOURCESADVOCATEINSTITUTEABOUTBLOG
Advocate ResourcesTraining Material. Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost to you. Many resources are available in print or by immediate download. Selected items are available in alternate languages. For information about current resources please click the link below.ADVOCATE INSTITUTE
The Research Advocacy Network’s Advocate Institute is designed to equip advocates with an understanding of the medical research system, scientific concepts and safeguards for research participants. We develop the tools and resources needed to comprehend research studies and communicate effectively with patients, researchers and otheradvocates.
GENERAL RESOURCES
For Download, a link will be provided at no cost once the transaction is complete. Printed resources will be delivered free via USPS for all domestic requests. For multiple units, click the resource image and update the quantity prior to adding to the cart.Problems ordering? Contact us at orders@researchadvocacy.org.PDF RESOURCES
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. TUMOR PROFILING: THE GOOD, THE BAD AND THE FUTURE Dr. Hamilton described tumor profiling, with emphasis on the emerging area of liquid biopsies. Based on a definition from the Mayo Clinic, tumor profiling is a method of testing that evaluates each person’s tumor to determine genomic and other molecular characteristics. The results are used as biomarkers that are targets for, or influences onELDA RAILEY
Elda Railey. Elda specializes in working with patient advocacy organizations to forge collaborations and train individuals how to be effective research advocates. Prior to the founding of Research Advocacy Network, she served for 12 years with Susan G. Komen in various capacities, primarily as Director of Grants and SponsoredPrograms, where
LIQUID BIOPSY TUTORIAL LIQUID BIOPSY TUTORIAL 1 Chapter 1: Introduction to Liquid Biopsies Several months ago, Glenda learned that she had a suspicious mass of tissue in her left lung. PATIENT DECISION AIDS Updating decision aids Advances in medicine necessitate updates of patient decision aids. These advances may include results from clinical trials evaluating a new therapy, new safety information abouta
TARGETED THERAPIES IN CANCER 2 Cancer Chemotherapies Chemotherapies capitalize on the fact that cancer cells continuously replicate themselves. Like normal cells, cancer cells replicate themselves and proliferate by copying theirDNA.
AN INTRODUCTORY GUIDE FOR ADVOCATES BIOMARKERS IN CANCER: AN INTRODUCTORY GUIDE FOR ADVOCATES 1 When we go into our physician’s office for an annual check-up, we are likely to have our cholesterol levels and blood pressure checked.Theseprocedures are
HOME | RESEARCH ADVOCACY NETWORKRESEARCH ENGAGEMENTRESOURCESADVOCATEINSTITUTEABOUTBLOG
Advocate ResourcesTraining Material. Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost to you. Many resources are available in print or by immediate download. Selected items are available in alternate languages. For information about current resources please click the link below.ADVOCATE INSTITUTE
The Research Advocacy Network’s Advocate Institute is designed to equip advocates with an understanding of the medical research system, scientific concepts and safeguards for research participants. We develop the tools and resources needed to comprehend research studies and communicate effectively with patients, researchers and otheradvocates.
GENERAL RESOURCES
For Download, a link will be provided at no cost once the transaction is complete. Printed resources will be delivered free via USPS for all domestic requests. For multiple units, click the resource image and update the quantity prior to adding to the cart.Problems ordering? Contact us at orders@researchadvocacy.org.PDF RESOURCES
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. TUMOR PROFILING: THE GOOD, THE BAD AND THE FUTURE Dr. Hamilton described tumor profiling, with emphasis on the emerging area of liquid biopsies. Based on a definition from the Mayo Clinic, tumor profiling is a method of testing that evaluates each person’s tumor to determine genomic and other molecular characteristics. The results are used as biomarkers that are targets for, or influences onELDA RAILEY
Elda Railey. Elda specializes in working with patient advocacy organizations to forge collaborations and train individuals how to be effective research advocates. Prior to the founding of Research Advocacy Network, she served for 12 years with Susan G. Komen in various capacities, primarily as Director of Grants and SponsoredPrograms, where
LIQUID BIOPSY TUTORIAL LIQUID BIOPSY TUTORIAL 1 Chapter 1: Introduction to Liquid Biopsies Several months ago, Glenda learned that she had a suspicious mass of tissue in her left lung. PATIENT DECISION AIDS Updating decision aids Advances in medicine necessitate updates of patient decision aids. These advances may include results from clinical trials evaluating a new therapy, new safety information abouta
TARGETED THERAPIES IN CANCER 2 Cancer Chemotherapies Chemotherapies capitalize on the fact that cancer cells continuously replicate themselves. Like normal cells, cancer cells replicate themselves and proliferate by copying theirDNA.
AN INTRODUCTORY GUIDE FOR ADVOCATES BIOMARKERS IN CANCER: AN INTRODUCTORY GUIDE FOR ADVOCATES 1 When we go into our physician’s office for an annual check-up, we are likely to have our cholesterol levels and blood pressure checked.Theseprocedures are
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For Download, a link will be provided at no cost once the transaction is complete. Printed resources will be delivered free via USPS for all domestic requests. For multiple units, click the resource image and update the quantity prior to adding to the cart.Problems ordering? Contact us at orders@researchadvocacy.org. OUR APPROACH TO ADVOCACY Research Advocacy Network uses innovative approaches to change the system for the patient.Dissemination of research results. Options/ UpDate- companion newsletters aimed at patients and healthcare professionals focusing on a specific topic Issue 1: Breast Cancer, Issue 2: Colon Cancer. "What It Means for Me” Fact Sheets™ –short easy to
QUICK DOWNLOAD OF PDF RESOURCE Biosimilars (20.5 MB) ( 6 MB lower resolution version) Clinical Trial Design (1 MB) Genomics in Cancer (7.2 MB) Liquid Biopsy (3MB) Molecular Diagnostics (14.5 MB) Pathology and Tissue Research (1 MB) Precision Medicine in Oncology (2.0 MB) Quality of Life and Patient Reported Outcomes (1.2 MB) Targeted Therapies (2 MB) PRECISION MEDICINE IN ONCOLOGY EDUCATIONAL RESOURCES The Precision Medicine in Oncology online course is a free, self paced, narrated course. Each of the five chapters will take 15-25 minutes to complete. You may complete all five chapters in one session or stop and return to the course at a later time. After completing the course you will have the option to print a certificate of completion. COMMUNICATIONS SKILLS Good communication skills are essential for effective research advocacy. Research Advocacy Network's Advocate Institute has worked with communications expert to develop an online class to develop theseskills.
UNDERSTANDING CLINICAL TRIAL DESIGN: A TUTORIAL FOR This section should assist research advocatesto formulate useful questions to raise about clinical trialdesign.The questions are generic, but not exhaustive. Asking generic questions is often possible and even preferable to raising specific sugges-MARY LOU SMITH
Mary Lou Smith, JD, MBA. Prior to co-founding RAN, Mary Lou was the director of patient, payer and government relations for the Coalition of National Cancer Cooperative Groups. She currently serves as co-chair of the ECOG-ACRIN Cancer Research Group's Cancer ResearchAdvocacy Committee.
HELPING PATIENTS UNDERSTAND, REPORT AND MANAGE - Other difficulties. These include loss of balance, shuffling, shaking or feeling like you’re walking with a pebble in your shoe. Or it may be having trouble feeling the shape of small AN INTRODUCTORY GUIDE FOR ADVOCATES BIOMARKERS IN CANCER: AN INTRODUCTORY GUIDE FOR ADVOCATES 1 When we go into our physician’s office for an annual check-up, we are likely to have our cholesterol levels and blood pressure checked.Theseprocedures are
QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER QUALITY OF LIFE AND PATIENT-REPORTED OUTCOMES IN CANCER: A GUIDE FOR ADVOCATES Chapter 2: Measuring Health-Related Quality of Life Health-related quality of life is a subjective state and therefore must be reported or rated by HOME | RESEARCH ADVOCACY NETWORKRESEARCH ENGAGEMENTRESOURCESADVOCATEINSTITUTEABOUTBLOG
Advocate ResourcesTraining Material. Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost to you. Many resources are available in print or by immediate download. Selected items are available in alternate languages. For information about current resources please click the link below.PDF RESOURCES
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. TUMOR PROFILING: THE GOOD, THE BAD AND THE FUTURE Dr. Hamilton described tumor profiling, with emphasis on the emerging area of liquid biopsies. Based on a definition from the Mayo Clinic, tumor profiling is a method of testing that evaluates each person’s tumor to determine genomic and other molecular characteristics. The results are used as biomarkers that are targets for, or influences on COMMUNICATIONS SKILLS Good communication skills are essential for effective research advocacy. Research Advocacy Network's Advocate Institute has worked with communications expert to develop an online class to develop theseskills.
PRECISION MEDICINE IN ONCOLOGY EDUCATIONAL RESOURCES The Precision Medicine in Oncology online course is a free, self paced, narrated course. Each of the five chapters will take 15-25 minutes to complete. You may complete all five chapters in one session or stop and return to the course at a later time. After completing the course you will have the option to print a certificate of completion.ELDA RAILEY
Elda Railey. Elda specializes in working with patient advocacy organizations to forge collaborations and train individuals how to be effective research advocates. Prior to the founding of Research Advocacy Network, she served for 12 years with Susan G. Komen in various capacities, primarily as Director of Grants and SponsoredPrograms, where
NCI-MATCH: PERSPECTIVES FROM INDUSTRY COLLABORATOR Ms. Brockman discussed the participation of Genentech in precision medicine trials. It takes the presence of cutting edge medicines + diagnostics and genomic sequencing + new technologies to bring new medicines to market for patients. LIQUID BIOPSY TUTORIAL LIQUID BIOPSY TUTORIAL 1 Chapter 1: Introduction to Liquid Biopsies Several months ago, Glenda learned that she had a suspicious mass of tissue in her left lung. PATIENT DECISION AIDS Updating decision aids Advances in medicine necessitate updates of patient decision aids. These advances may include results from clinical trials evaluating a new therapy, new safety information abouta
TARGETED THERAPIES IN CANCER 2 Cancer Chemotherapies Chemotherapies capitalize on the fact that cancer cells continuously replicate themselves. Like normal cells, cancer cells replicate themselves and proliferate by copying theirDNA.
HOME | RESEARCH ADVOCACY NETWORKRESEARCH ENGAGEMENTRESOURCESADVOCATEINSTITUTEABOUTBLOG
Advocate ResourcesTraining Material. Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost to you. Many resources are available in print or by immediate download. Selected items are available in alternate languages. For information about current resources please click the link below.PDF RESOURCES
The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. TUMOR PROFILING: THE GOOD, THE BAD AND THE FUTURE Dr. Hamilton described tumor profiling, with emphasis on the emerging area of liquid biopsies. Based on a definition from the Mayo Clinic, tumor profiling is a method of testing that evaluates each person’s tumor to determine genomic and other molecular characteristics. The results are used as biomarkers that are targets for, or influences on COMMUNICATIONS SKILLS Good communication skills are essential for effective research advocacy. Research Advocacy Network's Advocate Institute has worked with communications expert to develop an online class to develop theseskills.
PRECISION MEDICINE IN ONCOLOGY EDUCATIONAL RESOURCES The Precision Medicine in Oncology online course is a free, self paced, narrated course. Each of the five chapters will take 15-25 minutes to complete. You may complete all five chapters in one session or stop and return to the course at a later time. After completing the course you will have the option to print a certificate of completion.ELDA RAILEY
Elda Railey. Elda specializes in working with patient advocacy organizations to forge collaborations and train individuals how to be effective research advocates. Prior to the founding of Research Advocacy Network, she served for 12 years with Susan G. Komen in various capacities, primarily as Director of Grants and SponsoredPrograms, where
NCI-MATCH: PERSPECTIVES FROM INDUSTRY COLLABORATOR Ms. Brockman discussed the participation of Genentech in precision medicine trials. It takes the presence of cutting edge medicines + diagnostics and genomic sequencing + new technologies to bring new medicines to market for patients. LIQUID BIOPSY TUTORIAL LIQUID BIOPSY TUTORIAL 1 Chapter 1: Introduction to Liquid Biopsies Several months ago, Glenda learned that she had a suspicious mass of tissue in her left lung. PATIENT DECISION AIDS Updating decision aids Advances in medicine necessitate updates of patient decision aids. These advances may include results from clinical trials evaluating a new therapy, new safety information abouta
TARGETED THERAPIES IN CANCER 2 Cancer Chemotherapies Chemotherapies capitalize on the fact that cancer cells continuously replicate themselves. Like normal cells, cancer cells replicate themselves and proliferate by copying theirDNA.
ABOUT US | RESEARCH ADVOCACY NETWORK About Us. About Us. The Research Advocacy Network advances patient-focused cancer research by fostering interaction among advocates, researchers and related organizations. We are the only nonprofit organization dedicated to advancing cancer research through advocacy. While there are a myriad of organizations hard at work addressing the needs ofGENERAL RESOURCES
For Download, a link will be provided at no cost once the transaction is complete. Printed resources will be delivered free via USPS for all domestic requests. For multiple units, click the resource image and update the quantity prior to adding to the cart.Problems ordering? Contact us at orders@researchadvocacy.org.ADVOCATE INSTITUTE
The Research Advocacy Network’s Advocate Institute is designed to equip advocates with an understanding of the medical research system, scientific concepts and safeguards for research participants. We develop the tools and resources needed to comprehend research studies and communicate effectively with patients, researchers and otheradvocates.
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The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support.GENERAL RESOURCES
Involving Patients in Cancer Research: An Overview of Methods and Strategies. An important part of our work at Research Advocacy Network (RAN) is to advance patient care by encouraging and enabling cancer patient and advocate participation throughout the research process.*FREE.
ONLINE COURSE: BASICS FOR RESEARCH ADVOCACY The Basics for Research Advocacy online course is a free, self paced, narrated course. Each of the three modules will take 15-20 minutes to complete. You may complete all three modules in one session or stop and return to the course at a later time. QUICK DOWNLOAD OF PDF RESOURCE Biosimilars (20.5 MB) ( 6 MB lower resolution version) Clinical Trial Design (1 MB) Genomics in Cancer (7.2 MB) Liquid Biopsy (3MB) Molecular Diagnostics (14.5 MB) Pathology and Tissue Research (1 MB) Precision Medicine in Oncology (2.0 MB) Quality of Life and Patient Reported Outcomes (1.2 MB) Targeted Therapies (2 MB) LEADERSHIP | RESEARCH ADVOCACY NETWORK Leadership. The co-founders of the Research Advocacy Network know more than a little about channeling the passion of advocates to advance cancer research. Our leaders possess a wealth of knowledge in the areas of nonprofit management, education, patient services, grants management, research programs and the facilitation of collaborativeefforts.
COMMUNICATIONS SKILLS The mission of the Research Advocacy Network is to develop a network of advocates and researchers who influence cancer research–from initial concept to patient care delivery—through collaboration, education and mutual support. AN INTRODUCTORY GUIDE FOR ADVOCATES BIOMARKERS IN CANCER: AN INTRODUCTORY GUIDE FOR ADVOCATES 1 When we go into our physician’s office for an annual check-up, we are likely to have our cholesterol levels and blood pressure checked.Theseprocedures are
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VOICES IN HEALTH EQUITY SYMPOSIUM 2021Training
Knowledge about health equity is not the same as knowledge about how to communicate about health equity. And communication is the mightiest tool in a Research Advocate's toolkit. Join the Research Advocacy Network Symposium on Jan 6,13,19, 27 and Feb 3, 2021 to learn from some of the nation's leading voices inhealth equity.
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