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FACTS & STATISTICS
Facts About the SUDC Foundation. The SUDC Foundation is a registered 501 (c) (3). The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to the people it serves. Learn More About theFoundation.
FOR MEDICAL PROFESSIONALS The SUDC Foundation advocates for research in many ways. Through funding, producing, endorsing, and participating in research, we are committed to a future free of SUDC. The Foundation also connects professionals and families with research opportunities which can often provide access to additional testing, such as genetic analysis, andFAMILY RETREAT 2021
Family Retreat 2021. The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect andrenew.
SUDC AWARENESS MONTH SUDC Awareness Month 2021 was an astounding success! Some of our highlights include: Our supporters participated in weekly activities to raise awareness throughout the month – shining a light on SUDC, wearing their hearts on their sleeves, spreading kindness, and taking strides for awareness. HELP FOR FAMILIES BROCHURE Help for Families Brochure. To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.”. This free, personalized brochure can be created and printed for any medical examiner orcoroner office.
FAMILY RETREAT 2021 REGISTRATION Photo and Video Waiver. By submitting this form and participating in online and/or in person activities as part of the SUDC Foundation's 2021 Family Retreat, I hereby grant permission to the SUDC Foundation and its representatives to take photographs and video recordings of myself and any other family attendees I have registered in this form, including legally dependent minors, and to make WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. PRINCIPLES FOR COMMUNICATING WITH NEXT OF KIN DURING 1 | www.swgmdi.org Published June 2012 SWGMDI’s NOK Services and Communication Committee Principles for Communicating with Next of Kin during Medicolegal Death Investigations ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS $SSURYHG)RU3HULRG Version 2.23.18 ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS As of March 2013 (updated 2016) the ACMG specifically recommends testing for the SUDDEN UNEXPLAINED DEATH IN CHILDHOOD The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC). Love Beyond Reason I'm a Bereaved Family Member or Friend I'm a MedicalProfessional.
FACTS & STATISTICS
Facts About the SUDC Foundation. The SUDC Foundation is a registered 501 (c) (3). The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to the people it serves. Learn More About theFoundation.
FOR MEDICAL PROFESSIONALS The SUDC Foundation advocates for research in many ways. Through funding, producing, endorsing, and participating in research, we are committed to a future free of SUDC. The Foundation also connects professionals and families with research opportunities which can often provide access to additional testing, such as genetic analysis, andFAMILY RETREAT 2021
Family Retreat 2021. The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect andrenew.
SUDC AWARENESS MONTH SUDC Awareness Month 2021 was an astounding success! Some of our highlights include: Our supporters participated in weekly activities to raise awareness throughout the month – shining a light on SUDC, wearing their hearts on their sleeves, spreading kindness, and taking strides for awareness. HELP FOR FAMILIES BROCHURE Help for Families Brochure. To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.”. This free, personalized brochure can be created and printed for any medical examiner orcoroner office.
FAMILY RETREAT 2021 REGISTRATION Photo and Video Waiver. By submitting this form and participating in online and/or in person activities as part of the SUDC Foundation's 2021 Family Retreat, I hereby grant permission to the SUDC Foundation and its representatives to take photographs and video recordings of myself and any other family attendees I have registered in this form, including legally dependent minors, and to make WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. PRINCIPLES FOR COMMUNICATING WITH NEXT OF KIN DURING 1 | www.swgmdi.org Published June 2012 SWGMDI’s NOK Services and Communication Committee Principles for Communicating with Next of Kin during Medicolegal Death Investigations ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS $SSURYHG)RU3HULRG Version 2.23.18 ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS As of March 2013 (updated 2016) the ACMG specifically recommends testing for the DONATE NOW - SUDC FOUNDATION We use this information to process your payment and to ensure your payment is correctly credited to your account. Contact Us: The SUDC Foundation • 101 Eisenhower Pkwy, Ste 300, Roseland, NJ 07068 • 800.620.SUDC • info@sudc.org. SHOP - SUDC FOUNDATION Shop. Showing 1–12 of 14 results. Default sorting Sort by popularity Sort by average rating Sort by latest Sort by price: low to high Sort by price: high to low. Select options. FAMILY RETREAT 2021 REGISTRATION Photo and Video Waiver. By submitting this form and participating in online and/or in person activities as part of the SUDC Foundation's 2021 Family Retreat, I hereby grant permission to the SUDC Foundation and its representatives to take photographs and video recordings of myself and any other family attendees I have registered in this form, including legally dependent minors, and to make FAMILY RETREAT 2021 SCHOLARSHIP APPLICATION Greater than $217,001 USD. (USD= United States Dollars) Please choose your scholarship level: *. $700 USD Scholarship for a family of 4 (or more) $600 USD Scholarship for a family of 3. $500 USD Scholarship for a Couple. $300 USD Scholarship for a Single attendee. $300 EDUCATIONAL VIDEOS & WEBINARS Understanding SUDC Conference May 2017 The conference was the first multidisciplinary medical conference on SUDC, which featured research updates and best practices from the fields of epidemiology, pathology, genetics, cardiology, neurology and palliative care. View Videos from the Conference SUDC Education Through Pediatric Conferences On INFORMATION FOR ENROLLED SUDCRRC SUBJECTS The SUDCRRC will need all of your child’s medical records. These include: prenatal records, hospital birth records, pediatric records, ER and hospitalizations records, specialists records and any medical tests they had performed during their life. This can be time consuming and the review process cannot begin until all records have beenobtained.
SUDC MEMORIAL TRIBUTES SUDC Awareness Proclamations. Literature & Brochures. Memorial Tributes. SUDC Awareness Month. Advocate for Research. SUDC Registry & Research Collaborative. Published Research. Understanding SUDC Conference 2017. Love Beyond Reason.SUDC AND THE
What is SUDC? Sudden Unexplained Death in Childhood (SUDC) is a category of death in children between the ages of 1 and 18 that remains unexplained after a thorough investigation, including anautopsy.
SUDC BEREAVEMENT SERIES TOPIC 3 If you have any questions about this, or would like additional support please contact The SUDC Foundation. 800-620-SUDC or 973-783-2592 (Not a Hotline) Support@SUDC.org. If this is an emergency, or you are in crisis, please call the National Suicide Prevention Lifeline hotline 24/7 at 1-800-273-8255. SPOTLIGHT ON SUDC: ADELINE'S STORY Spotlight on SUDC: Adeline’s Story. Adeline’s story is lovingly told by her mother. Adeline Margaret made her grand entrance into the world on Friday, August 12, 2011 at 10:54 p.m. in Pittsburgh, PA bringing so much love and joy with her. It was the best day of mylife!
SUDDEN UNEXPLAINED DEATH IN CHILDHOOD The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC). Love Beyond Reason I'm a Bereaved Family Member or Friend I'm a MedicalProfessional.
FACTS & STATISTICS
Facts About the SUDC Foundation. The SUDC Foundation is a registered 501 (c) (3). The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to the people it serves. Learn More About theFoundation.
FOR MEDICAL PROFESSIONALS The SUDC Foundation advocates for research in many ways. Through funding, producing, endorsing, and participating in research, we are committed to a future free of SUDC. The Foundation also connects professionals and families with research opportunities which can often provide access to additional testing, such as genetic analysis, andFAMILY RETREAT 2021
Family Retreat 2021. The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect andrenew.
SUDC AWARENESS MONTH SUDC Awareness Month 2021 was an astounding success! Some of our highlights include: Our supporters participated in weekly activities to raise awareness throughout the month – shining a light on SUDC, wearing their hearts on their sleeves, spreading kindness, and taking strides for awareness. HELP FOR FAMILIES BROCHURE Help for Families Brochure. To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.”. This free, personalized brochure can be created and printed for any medical examiner orcoroner office.
FAMILY RETREAT 2021 REGISTRATION Photo and Video Waiver. By submitting this form and participating in online and/or in person activities as part of the SUDC Foundation's 2021 Family Retreat, I hereby grant permission to the SUDC Foundation and its representatives to take photographs and video recordings of myself and any other family attendees I have registered in this form, including legally dependent minors, and to make WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. PRINCIPLES FOR COMMUNICATING WITH NEXT OF KIN DURING 1 | www.swgmdi.org Published June 2012 SWGMDI’s NOK Services and Communication Committee Principles for Communicating with Next of Kin during Medicolegal Death Investigations ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS $SSURYHG)RU3HULRG Version 2.23.18 ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS As of March 2013 (updated 2016) the ACMG specifically recommends testing for the SUDDEN UNEXPLAINED DEATH IN CHILDHOOD The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC). Love Beyond Reason I'm a Bereaved Family Member or Friend I'm a MedicalProfessional.
FACTS & STATISTICS
Facts About the SUDC Foundation. The SUDC Foundation is a registered 501 (c) (3). The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to the people it serves. Learn More About theFoundation.
FOR MEDICAL PROFESSIONALS The SUDC Foundation advocates for research in many ways. Through funding, producing, endorsing, and participating in research, we are committed to a future free of SUDC. The Foundation also connects professionals and families with research opportunities which can often provide access to additional testing, such as genetic analysis, andFAMILY RETREAT 2021
Family Retreat 2021. The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect andrenew.
SUDC AWARENESS MONTH SUDC Awareness Month 2021 was an astounding success! Some of our highlights include: Our supporters participated in weekly activities to raise awareness throughout the month – shining a light on SUDC, wearing their hearts on their sleeves, spreading kindness, and taking strides for awareness. HELP FOR FAMILIES BROCHURE Help for Families Brochure. To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.”. This free, personalized brochure can be created and printed for any medical examiner orcoroner office.
FAMILY RETREAT 2021 REGISTRATION Photo and Video Waiver. By submitting this form and participating in online and/or in person activities as part of the SUDC Foundation's 2021 Family Retreat, I hereby grant permission to the SUDC Foundation and its representatives to take photographs and video recordings of myself and any other family attendees I have registered in this form, including legally dependent minors, and to make WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. DONATE NOW - SUDC FOUNDATION We use this information to process your payment and to ensure your payment is correctly credited to your account. Contact Us: The SUDC Foundation • 101 Eisenhower Pkwy, Ste 300, Roseland, NJ 07068 • 800.620.SUDC • info@sudc.org. SHOP - SUDC FOUNDATION Shop. Showing 1–12 of 14 results. Default sorting Sort by popularity Sort by average rating Sort by latest Sort by price: low to high Sort by price: high to low. Select options. FAMILY RETREAT 2021 REGISTRATION Photo and Video Waiver. By submitting this form and participating in online and/or in person activities as part of the SUDC Foundation's 2021 Family Retreat, I hereby grant permission to the SUDC Foundation and its representatives to take photographs and video recordings of myself and any other family attendees I have registered in this form, including legally dependent minors, and to make FAMILY RETREAT 2021 SCHOLARSHIP APPLICATION Greater than $217,001 USD. (USD= United States Dollars) Please choose your scholarship level: *. $700 USD Scholarship for a family of 4 (or more) $600 USD Scholarship for a family of 3. $500 USD Scholarship for a Couple. $300 USD Scholarship for a Single attendee. $300 EDUCATIONAL VIDEOS & WEBINARS Understanding SUDC Conference May 2017 The conference was the first multidisciplinary medical conference on SUDC, which featured research updates and best practices from the fields of epidemiology, pathology, genetics, cardiology, neurology and palliative care. View Videos from the Conference SUDC Education Through Pediatric Conferences On INFORMATION FOR ENROLLED SUDCRRC SUBJECTS The SUDCRRC will need all of your child’s medical records. These include: prenatal records, hospital birth records, pediatric records, ER and hospitalizations records, specialists records and any medical tests they had performed during their life. This can be time consuming and the review process cannot begin until all records have beenobtained.
SUDC MEMORIAL TRIBUTES SUDC Awareness Proclamations. Literature & Brochures. Memorial Tributes. SUDC Awareness Month. Advocate for Research. SUDC Registry & Research Collaborative. Published Research. Understanding SUDC Conference 2017. Love Beyond Reason.SUDC AND THE
What is SUDC? Sudden Unexplained Death in Childhood (SUDC) is a category of death in children between the ages of 1 and 18 that remains unexplained after a thorough investigation, including anautopsy.
SUDC BEREAVEMENT SERIES TOPIC 3 If you have any questions about this, or would like additional support please contact The SUDC Foundation. 800-620-SUDC or 973-783-2592 (Not a Hotline) Support@SUDC.org. If this is an emergency, or you are in crisis, please call the National Suicide Prevention Lifeline hotline 24/7 at 1-800-273-8255. SPOTLIGHT ON SUDC: ADELINE'S STORY Spotlight on SUDC: Adeline’s Story. Adeline’s story is lovingly told by her mother. Adeline Margaret made her grand entrance into the world on Friday, August 12, 2011 at 10:54 p.m. in Pittsburgh, PA bringing so much love and joy with her. It was the best day of mylife!
SUDDEN UNEXPLAINED DEATH IN CHILDHOOD The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC). Love Beyond Reason I'm a Bereaved Family Member or Friend I'm a MedicalProfessional.
FACTS & STATISTICS
Facts About the SUDC Foundation. The SUDC Foundation is a registered 501 (c) (3). The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to the people it serves. Learn More About theFoundation.
FOR MEDICAL PROFESSIONALS The SUDC Foundation advocates for research in many ways. Through funding, producing, endorsing, and participating in research, we are committed to a future free of SUDC. The Foundation also connects professionals and families with research opportunities which can often provide access to additional testing, such as genetic analysis, andFAMILY RETREAT 2021
Family Retreat 2021. The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect andrenew.
HELP FOR FAMILIES BROCHURE Help for Families Brochure. To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.”. This free, personalized brochure can be created and printed for any medical examiner orcoroner office.
WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. SPOTLIGHT ON SUDC: ADELINE'S STORY Spotlight on SUDC: Adeline’s Story. Adeline’s story is lovingly told by her mother. Adeline Margaret made her grand entrance into the world on Friday, August 12, 2011 at 10:54 p.m. in Pittsburgh, PA bringing so much love and joy with her. It was the best day of mylife!
SUDDEN UNEXPLAINED DEATH IN CHILDHOOD The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC). Love Beyond Reason I'm a Bereaved Family Member or Friend I'm a MedicalProfessional.
FACTS & STATISTICS
Facts About the SUDC Foundation. The SUDC Foundation is a registered 501 (c) (3). The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to the people it serves. Learn More About theFoundation.
FOR MEDICAL PROFESSIONALS The SUDC Foundation advocates for research in many ways. Through funding, producing, endorsing, and participating in research, we are committed to a future free of SUDC. The Foundation also connects professionals and families with research opportunities which can often provide access to additional testing, such as genetic analysis, andFAMILY RETREAT 2021
Family Retreat 2021. The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect andrenew.
HELP FOR FAMILIES BROCHURE Help for Families Brochure. To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.”. This free, personalized brochure can be created and printed for any medical examiner orcoroner office.
WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. SPOTLIGHT ON SUDC: ADELINE'S STORY Spotlight on SUDC: Adeline’s Story. Adeline’s story is lovingly told by her mother. Adeline Margaret made her grand entrance into the world on Friday, August 12, 2011 at 10:54 p.m. in Pittsburgh, PA bringing so much love and joy with her. It was the best day of mylife!
SCARLETT'S SUNSHINE ACT Scarlett’s Sunshine Act takes the following critical steps: Supporting state fetal and infant mortality and child death review programs. Improving data collection related to unexpected infant and child deaths by improving the completion of comprehensive death scene investigations and autopsies, and training death scene investigators. PRINCIPLES FOR COMMUNICATING WITH NEXT OF KIN DURING 1 | www.swgmdi.org Published June 2012 SWGMDI’s NOK Services and Communication Committee Principles for Communicating with Next of Kin during Medicolegal Death Investigations ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS $SSURYHG)RU3HULRG Version 2.23.18 ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS As of March 2013 (updated 2016) the ACMG specifically recommends testing for the DONATE NOW - SUDC FOUNDATION We use this information to process your payment and to ensure your payment is correctly credited to your account. Contact Us: The SUDC Foundation • 101 Eisenhower Pkwy, Ste 300, Roseland, NJ 07068 • 800.620.SUDC • info@sudc.org. SUDC AWARENESS MONTH SUDC Awareness Month 2021 was an astounding success! Some of our highlights include: Our supporters participated in weekly activities to raise awareness throughout the month – shining a light on SUDC, wearing their hearts on their sleeves, spreading kindness, and taking strides for awareness. SHOP - SUDC FOUNDATION Shop. Showing 1–12 of 14 results. Default sorting Sort by popularity Sort by average rating Sort by latest Sort by price: low to high Sort by price: high to low. Select options. WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. SERVICES FOR BEREAVED FAMILIES We currently serve over 1000 families worldwide. If you are a bereaved parent or family member, connect with the SUDC Foundation to receive: Individualized case advocacy to assist families with navigating the death investigation process. Personalized support from family services staff, including a social worker. FAMILY RETREAT 2021 REGISTRATION Photo and Video Waiver. By submitting this form and participating in online and/or in person activities as part of the SUDC Foundation's 2021 Family Retreat, I hereby grant permission to the SUDC Foundation and its representatives to take photographs and video recordings of myself and any other family attendees I have registered in this form, including legally dependent minors, and to make FAMILY RETREAT 2021 SCHOLARSHIP APPLICATION Greater than $217,001 USD. (USD= United States Dollars) Please choose your scholarship level: *. $700 USD Scholarship for a family of 4 (or more) $600 USD Scholarship for a family of 3. $500 USD Scholarship for a Couple. $300 USD Scholarship for a Single attendee. $300 SPOTLIGHT ON SUDC: ADELINE'S STORY Spotlight on SUDC: Adeline’s Story. Adeline’s story is lovingly told by her mother. Adeline Margaret made her grand entrance into the world on Friday, August 12, 2011 at 10:54 p.m. in Pittsburgh, PA bringing so much love and joy with her. It was the best day of mylife!
OUR STAFF - SUDC FOUNDATION Elizabeth Milliken Director of Development elizabeth@sudc.org 973.795.1268 Amanda Brindle Family Services Coordinator amanda.brindle@sudc.org 973.795.1257 Stephanie Zarecky Public Relations Manager stephanie@sudc.org 973.795.1257 Michelle Brodeur Family Services Assistant michelle@sudc.org 973.795.1257 Heather Maher, MSFS Family Advocate heather@sudc.org SUDC MEMORIAL TRIBUTES SUDC Awareness Proclamations. Literature & Brochures. Memorial Tributes. SUDC Awareness Month. Advocate for Research. SUDC Registry & Research Collaborative. Published Research. Understanding SUDC Conference 2017. Love Beyond Reason. SUDDEN UNEXPLAINED DEATH IN CHILDHOOD The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC). Love Beyond Reason I'm a Bereaved Family Member or Friend I'm a MedicalProfessional.
FACTS & STATISTICS
Facts About the SUDC Foundation. The SUDC Foundation is a registered 501 (c) (3). The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to the people it serves. Learn More About theFoundation.
FOR MEDICAL PROFESSIONALS The SUDC Foundation advocates for research in many ways. Through funding, producing, endorsing, and participating in research, we are committed to a future free of SUDC. The Foundation also connects professionals and families with research opportunities which can often provide access to additional testing, such as genetic analysis, and SUDC AWARENESS MONTH SUDC Awareness Month 2021 was an astounding success! Some of our highlights include: Our supporters participated in weekly activities to raise awareness throughout the month – shining a light on SUDC, wearing their hearts on their sleeves, spreading kindness, and taking strides for awareness.FAMILY RETREAT 2021
Family Retreat 2021. The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect andrenew.
HELP FOR FAMILIES BROCHURE Help for Families Brochure. To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.”. This free, personalized brochure can be created and printed for any medical examiner orcoroner office.
DONATE NOW - SUDC FOUNDATION We use this information to process your payment and to ensure your payment is correctly credited to your account. Contact Us: The SUDC Foundation • 101 Eisenhower Pkwy, Ste 300, Roseland, NJ 07068 • 800.620.SUDC • info@sudc.org. WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. SPOTLIGHT ON SUDC: ADELINE'S STORY Spotlight on SUDC: Adeline’s Story. Adeline’s story is lovingly told by her mother. Adeline Margaret made her grand entrance into the world on Friday, August 12, 2011 at 10:54 p.m. in Pittsburgh, PA bringing so much love and joy with her. It was the best day of mylife!
PRINCIPLES FOR COMMUNICATING WITH NEXT OF KIN DURING 1 | www.swgmdi.org Published June 2012 SWGMDI’s NOK Services and Communication Committee Principles for Communicating with Next of Kin during Medicolegal Death Investigations SUDDEN UNEXPLAINED DEATH IN CHILDHOOD The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC). Love Beyond Reason I'm a Bereaved Family Member or Friend I'm a MedicalProfessional.
FACTS & STATISTICS
Facts About the SUDC Foundation. The SUDC Foundation is a registered 501 (c) (3). The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to the people it serves. Learn More About theFoundation.
FOR MEDICAL PROFESSIONALS The SUDC Foundation advocates for research in many ways. Through funding, producing, endorsing, and participating in research, we are committed to a future free of SUDC. The Foundation also connects professionals and families with research opportunities which can often provide access to additional testing, such as genetic analysis, and SUDC AWARENESS MONTH SUDC Awareness Month 2021 was an astounding success! Some of our highlights include: Our supporters participated in weekly activities to raise awareness throughout the month – shining a light on SUDC, wearing their hearts on their sleeves, spreading kindness, and taking strides for awareness.FAMILY RETREAT 2021
Family Retreat 2021. The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect andrenew.
HELP FOR FAMILIES BROCHURE Help for Families Brochure. To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.”. This free, personalized brochure can be created and printed for any medical examiner orcoroner office.
DONATE NOW - SUDC FOUNDATION We use this information to process your payment and to ensure your payment is correctly credited to your account. Contact Us: The SUDC Foundation • 101 Eisenhower Pkwy, Ste 300, Roseland, NJ 07068 • 800.620.SUDC • info@sudc.org. WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. SPOTLIGHT ON SUDC: ADELINE'S STORY Spotlight on SUDC: Adeline’s Story. Adeline’s story is lovingly told by her mother. Adeline Margaret made her grand entrance into the world on Friday, August 12, 2011 at 10:54 p.m. in Pittsburgh, PA bringing so much love and joy with her. It was the best day of mylife!
PRINCIPLES FOR COMMUNICATING WITH NEXT OF KIN DURING 1 | www.swgmdi.org Published June 2012 SWGMDI’s NOK Services and Communication Committee Principles for Communicating with Next of Kin during Medicolegal Death Investigations DONATE NOW - SUDC FOUNDATION We use this information to process your payment and to ensure your payment is correctly credited to your account. Contact Us: The SUDC Foundation • 101 Eisenhower Pkwy, Ste 300, Roseland, NJ 07068 • 800.620.SUDC • info@sudc.org. SHOP - SUDC FOUNDATION Shop. Showing 1–12 of 14 results. Default sorting Sort by popularity Sort by average rating Sort by latest Sort by price: low to high Sort by price: high to low. Select options. ADVOCATE FOR RESEARCH The SUDC Foundation performs research to better understand and advocate for the needs of families affected by sudden unexpected and unexplained deaths in childhood. We utilize data collected by the SUDC Foundation to better understand and advocate for the needs of our community. This internal research does NOT investigate the causes ofSUDC.
INFORMATION FOR ENROLLED SUDCRRC SUBJECTS The SUDCRRC will need all of your child’s medical records. These include: prenatal records, hospital birth records, pediatric records, ER and hospitalizations records, specialists records and any medical tests they had performed during their life. This can be time consuming and the review process cannot begin until all records have beenobtained.
EDUCATIONAL VIDEOS & WEBINARS Understanding SUDC Conference May 2017 The conference was the first multidisciplinary medical conference on SUDC, which featured research updates and best practices from the fields of epidemiology, pathology, genetics, cardiology, neurology and palliative care. View Videos from the Conference SUDC Education Through Pediatric Conferences On MEDICAL CARE AFTER SUDC Cardiogenetic Clinics for Families. Some specially trained clinics exist to screen and evaluate families with a history of sudden unexplained death. Arizona, Minnesota, Florida: The Long QT Syndrome Clinic of the Mayo Clinic. Bronx, NY: The Children's Hospital at Montefiore Center for CardioGenetics.FINANCIAL OVERVIEW
Financial Statements. The SUDC Foundation is committed to complete transparency with its financial information. Click the images to read our most current financial statement as well as our annual report. If you are looking for past information, please contact us here and it will be provided, at no cost. SUDC MEMORIAL TRIBUTES SUDC Awareness Proclamations. Literature & Brochures. Memorial Tributes. SUDC Awareness Month. Advocate for Research. SUDC Registry & Research Collaborative. Published Research. Understanding SUDC Conference 2017. Love Beyond Reason. OUR STAFF - SUDC FOUNDATION Elizabeth Milliken Director of Development elizabeth@sudc.org 973.795.1268 Amanda Brindle Family Services Coordinator amanda.brindle@sudc.org 973.795.1257 Stephanie Zarecky Public Relations Manager stephanie@sudc.org 973.795.1257 Michelle Brodeur Family Services Assistant michelle@sudc.org 973.795.1257 Heather Maher, MSFS Family Advocate heather@sudc.org SUDC BEREAVEMENT SERIES TOPIC 3 If you have any questions about this, or would like additional support please contact The SUDC Foundation. 800-620-SUDC or 973-783-2592 (Not a Hotline) Support@SUDC.org. If this is an emergency, or you are in crisis, please call the National Suicide Prevention Lifeline hotline 24/7 at 1-800-273-8255. SUDDEN UNEXPLAINED DEATH IN CHILDHOOD The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC). Love Beyond Reason I'm a Bereaved Family Member or Friend I'm a MedicalProfessional.
FACTS & STATISTICS
Facts About the SUDC Foundation. The SUDC Foundation is a registered 501 (c) (3). The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to the people it serves. Learn More About theFoundation.
FOR MEDICAL PROFESSIONALS The SUDC Foundation advocates for research in many ways. Through funding, producing, endorsing, and participating in research, we are committed to a future free of SUDC. The Foundation also connects professionals and families with research opportunities which can often provide access to additional testing, such as genetic analysis, and SUDC AWARENESS MONTH SUDC Awareness Month 2021 was an astounding success! Some of our highlights include: Our supporters participated in weekly activities to raise awareness throughout the month – shining a light on SUDC, wearing their hearts on their sleeves, spreading kindness, and taking strides for awareness.FAMILY RETREAT 2021
Family Retreat 2021. The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect andrenew.
HELP FOR FAMILIES BROCHURE Help for Families Brochure. To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.”. This free, personalized brochure can be created and printed for any medical examiner orcoroner office.
DONATE NOW - SUDC FOUNDATION We use this information to process your payment and to ensure your payment is correctly credited to your account. Contact Us: The SUDC Foundation • 101 Eisenhower Pkwy, Ste 300, Roseland, NJ 07068 • 800.620.SUDC • info@sudc.org. WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. SPOTLIGHT ON SUDC: ADELINE'S STORY Spotlight on SUDC: Adeline’s Story. Adeline’s story is lovingly told by her mother. Adeline Margaret made her grand entrance into the world on Friday, August 12, 2011 at 10:54 p.m. in Pittsburgh, PA bringing so much love and joy with her. It was the best day of mylife!
PRINCIPLES FOR COMMUNICATING WITH NEXT OF KIN DURING 1 | www.swgmdi.org Published June 2012 SWGMDI’s NOK Services and Communication Committee Principles for Communicating with Next of Kin during Medicolegal Death Investigations SUDDEN UNEXPLAINED DEATH IN CHILDHOOD The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC). Love Beyond Reason I'm a Bereaved Family Member or Friend I'm a MedicalProfessional.
FACTS & STATISTICS
Facts About the SUDC Foundation. The SUDC Foundation is a registered 501 (c) (3). The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to the people it serves. Learn More About theFoundation.
FOR MEDICAL PROFESSIONALS The SUDC Foundation advocates for research in many ways. Through funding, producing, endorsing, and participating in research, we are committed to a future free of SUDC. The Foundation also connects professionals and families with research opportunities which can often provide access to additional testing, such as genetic analysis, and SUDC AWARENESS MONTH SUDC Awareness Month 2021 was an astounding success! Some of our highlights include: Our supporters participated in weekly activities to raise awareness throughout the month – shining a light on SUDC, wearing their hearts on their sleeves, spreading kindness, and taking strides for awareness.FAMILY RETREAT 2021
Family Retreat 2021. The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect andrenew.
HELP FOR FAMILIES BROCHURE Help for Families Brochure. To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.”. This free, personalized brochure can be created and printed for any medical examiner orcoroner office.
DONATE NOW - SUDC FOUNDATION We use this information to process your payment and to ensure your payment is correctly credited to your account. Contact Us: The SUDC Foundation • 101 Eisenhower Pkwy, Ste 300, Roseland, NJ 07068 • 800.620.SUDC • info@sudc.org. WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. SPOTLIGHT ON SUDC: ADELINE'S STORY Spotlight on SUDC: Adeline’s Story. Adeline’s story is lovingly told by her mother. Adeline Margaret made her grand entrance into the world on Friday, August 12, 2011 at 10:54 p.m. in Pittsburgh, PA bringing so much love and joy with her. It was the best day of mylife!
PRINCIPLES FOR COMMUNICATING WITH NEXT OF KIN DURING 1 | www.swgmdi.org Published June 2012 SWGMDI’s NOK Services and Communication Committee Principles for Communicating with Next of Kin during Medicolegal Death Investigations DONATE NOW - SUDC FOUNDATION We use this information to process your payment and to ensure your payment is correctly credited to your account. Contact Us: The SUDC Foundation • 101 Eisenhower Pkwy, Ste 300, Roseland, NJ 07068 • 800.620.SUDC • info@sudc.org. SHOP - SUDC FOUNDATION Shop. Showing 1–12 of 14 results. Default sorting Sort by popularity Sort by average rating Sort by latest Sort by price: low to high Sort by price: high to low. Select options. ADVOCATE FOR RESEARCH The SUDC Foundation performs research to better understand and advocate for the needs of families affected by sudden unexpected and unexplained deaths in childhood. We utilize data collected by the SUDC Foundation to better understand and advocate for the needs of our community. This internal research does NOT investigate the causes ofSUDC.
INFORMATION FOR ENROLLED SUDCRRC SUBJECTS The SUDCRRC will need all of your child’s medical records. These include: prenatal records, hospital birth records, pediatric records, ER and hospitalizations records, specialists records and any medical tests they had performed during their life. This can be time consuming and the review process cannot begin until all records have beenobtained.
EDUCATIONAL VIDEOS & WEBINARS Understanding SUDC Conference May 2017 The conference was the first multidisciplinary medical conference on SUDC, which featured research updates and best practices from the fields of epidemiology, pathology, genetics, cardiology, neurology and palliative care. View Videos from the Conference SUDC Education Through Pediatric Conferences On MEDICAL CARE AFTER SUDC Cardiogenetic Clinics for Families. Some specially trained clinics exist to screen and evaluate families with a history of sudden unexplained death. Arizona, Minnesota, Florida: The Long QT Syndrome Clinic of the Mayo Clinic. Bronx, NY: The Children's Hospital at Montefiore Center for CardioGenetics.FINANCIAL OVERVIEW
Financial Statements. The SUDC Foundation is committed to complete transparency with its financial information. Click the images to read our most current financial statement as well as our annual report. If you are looking for past information, please contact us here and it will be provided, at no cost. SUDC MEMORIAL TRIBUTES SUDC Awareness Proclamations. Literature & Brochures. Memorial Tributes. SUDC Awareness Month. Advocate for Research. SUDC Registry & Research Collaborative. Published Research. Understanding SUDC Conference 2017. Love Beyond Reason. OUR STAFF - SUDC FOUNDATION Elizabeth Milliken Director of Development elizabeth@sudc.org 973.795.1268 Amanda Brindle Family Services Coordinator amanda.brindle@sudc.org 973.795.1257 Stephanie Zarecky Public Relations Manager stephanie@sudc.org 973.795.1257 Michelle Brodeur Family Services Assistant michelle@sudc.org 973.795.1257 Heather Maher, MSFS Family Advocate heather@sudc.org SUDC BEREAVEMENT SERIES TOPIC 3 If you have any questions about this, or would like additional support please contact The SUDC Foundation. 800-620-SUDC or 973-783-2592 (Not a Hotline) Support@SUDC.org. If this is an emergency, or you are in crisis, please call the National Suicide Prevention Lifeline hotline 24/7 at 1-800-273-8255. SUDDEN UNEXPLAINED DEATH IN CHILDHOOD The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC). Love Beyond Reason I'm a Bereaved Family Member or Friend I'm a MedicalProfessional.
FACTS & STATISTICS
Facts About the SUDC Foundation. The SUDC Foundation is a registered 501 (c) (3). The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. The SUDC Foundation provides all services at no cost to the people it serves. Learn More About theFoundation.
FOR MEDICAL PROFESSIONALS The SUDC Foundation advocates for research in many ways. Through funding, producing, endorsing, and participating in research, we are committed to a future free of SUDC. The Foundation also connects professionals and families with research opportunities which can often provide access to additional testing, such as genetic analysis, and SUDC AWARENESS MONTH SUDC Awareness Month 2021 was an astounding success! Some of our highlights include: Our supporters participated in weekly activities to raise awareness throughout the month – shining a light on SUDC, wearing their hearts on their sleeves, spreading kindness, and taking strides for awareness.FAMILY RETREAT 2021
Family Retreat 2021. The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect andrenew.
HELP FOR FAMILIES BROCHURE Help for Families Brochure. To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.”. This free, personalized brochure can be created and printed for any medical examiner orcoroner office.
WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. SPOTLIGHT ON SUDC: ADELINE'S STORY Spotlight on SUDC: Adeline’s Story. Adeline’s story is lovingly told by her mother. Adeline Margaret made her grand entrance into the world on Friday, August 12, 2011 at 10:54 p.m. in Pittsburgh, PA bringing so much love and joy with her. It was the best day of mylife!
PRINCIPLES FOR COMMUNICATING WITH NEXT OF KIN DURING 1 | www.swgmdi.org Published June 2012 SWGMDI’s NOK Services and Communication Committee Principles for Communicating with Next of Kin during Medicolegal Death Investigations ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS $SSURYHG)RU3HULRG Version 2.23.18 ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS As of March 2013 (updated 2016) the ACMG specifically recommends testing for the SUDDEN UNEXPLAINED DEATH IN CHILDHOOD The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC).FACTS & STATISTICS
Facts About Sudden Unexplained Death in Childhood Sudden Unexplained Death in Childhood (SUDC) is a category of death in children between the ages of 1 and 18 that remains unexplained after a thorough investigation, including an autopsy. Most often, a seemingly healthychild goes to
FOR MEDICAL PROFESSIONALS The SUDC Foundation knows that a sudden death of a child profoundly affects the professionals involved. Click on any of the resources below for additional information. Refer a Family The SUDC Foundation strives to provide the support and resources necessary for those whohave lost
SUDC AWARENESS MONTH SUDC Awareness Month 2021 was an astounding success! Some of our highlights include: Our supporters participated in weekly activities to raise awareness throughout the month – shining a light on SUDC, wearing their hearts on their sleeves, spreading kindness, and taking strides for awareness.FAMILY RETREAT 2021
The SUDC Foundation Family Retreat 2021 is scheduled to be held September 24th – 26th in San Antonio, TX, US. Families affected by the sudden, unexpected or unexplained loss of a child who are registered with the SUDC Foundation are invited to this one-of-a-kind opportunity to come together to restore, reconnect and renew. HELP FOR FAMILIES BROCHURE Click to see Full Sample To assist medical examiners and coroners’ offices during the investigation of all sudden pediatric deaths, the SUDC Foundation created the brochure “Help for Families: When an Infant or Young Child Dies.” This free, personalized brochure can be created and printed for WHERE TO GO FOR HELP When an infant or child dies suddenly, a team of professionals investigate his or her death. There may be many different professionals involved on this first day. SPOTLIGHT ON SUDC: ADELINE'S STORY Adeline Margaret made her grand entrance into the world on Friday, August 12, 2011 at 10:54 p.m. in Pittsburgh, PA bringing so much loveand joy with her.
PRINCIPLES FOR COMMUNICATING WITH NEXT OF KIN DURING 1 | www.swgmdi.org Published June 2012 SWGMDI’s NOK Services and Communication Committee Principles for Communicating with Next of Kin during Medicolegal Death Investigations ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS $SSURYHG)RU3HULRG Version 2.23.18 ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS As of March 2013 (updated 2016) the ACMG specifically recommends testing for the DONATE NOW - SUDC FOUNDATION We use this information to process your payment and to ensure your payment is correctly credited to your account. Contact Us: The SUDC Foundation • 101 Eisenhower Pkwy, Ste 300, Roseland, NJ 07068 • 800.620.SUDC • info@sudc.org. SHOP - SUDC FOUNDATION Shop. Showing 1–12 of 14 results. Default sorting Sort by popularity Sort by average rating Sort by latest Sort by price: low to high Sort by price: high to low. Select options. INFORMATION FOR ENROLLED SUDCRRC SUBJECTS The SUDCRRC will need all of your child’s medical records. These include: prenatal records, hospital birth records, pediatric records, ER and hospitalizations records, specialists records and any medical tests they had performed during their life. This can be time consuming and the review process cannot begin until all records have beenobtained.
EDUCATIONAL VIDEOS & WEBINARS Understanding SUDC Conference May 2017 The conference was the first multidisciplinary medical conference on SUDC, which featured research updates and best practices from the fields of epidemiology, pathology, genetics, cardiology, neurology and palliative care. View Videos from the Conference SUDC Education Through Pediatric Conferences On MEDICAL CARE AFTER SUDC Cardiogenetic Clinics for Families. Some specially trained clinics exist to screen and evaluate families with a history of sudden unexplained death. Arizona, Minnesota, Florida: The Long QT Syndrome Clinic of the Mayo Clinic. Bronx, NY: The Children's Hospital at Montefiore Center for CardioGenetics.FINANCIAL OVERVIEW
Financial Statements. The SUDC Foundation is committed to complete transparency with its financial information. Click the images to read our most current financial statement as well as our annual report. If you are looking for past information, please contact us here and it will be provided, at no cost. SUDC MEMORIAL TRIBUTES SUDC Awareness Proclamations. Literature & Brochures. Memorial Tributes. SUDC Awareness Month. Advocate for Research. SUDC Registry & Research Collaborative. Published Research. Understanding SUDC Conference 2017. Love Beyond Reason. OUR STAFF - SUDC FOUNDATION Elizabeth Milliken Director of Development elizabeth@sudc.org 973.795.1268 Amanda Brindle Family Services Coordinator amanda.brindle@sudc.org 973.795.1257 Stephanie Zarecky Public Relations Manager stephanie@sudc.org 973.795.1257 Michelle Brodeur Family Services Assistant michelle@sudc.org 973.795.1257 Heather Maher, MSFS Family Advocate heather@sudc.org SUDC BEREAVEMENT SERIES TOPIC 3 If you have any questions about this, or would like additional support please contact The SUDC Foundation. 800-620-SUDC or 973-783-2592 (Not a Hotline) Support@SUDC.org. If this is an emergency, or you are in crisis, please call the National Suicide Prevention Lifeline hotline 24/7 at 1-800-273-8255. ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS $SSURYHG)RU3HULRG Version 2.23.18 ACMG GENE LIST FOR SECONDARY/UNRELATED FINDINGS As of March 2013 (updated 2016) the ACMG specifically recommends testing for the__
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The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by sudden unexplained death in childhood (SUDC). Love Beyond Reason I'm a Bereaved Family Member or Friend I'm a Medical ProfessionalPROMOTE AWARENESS
Working together to make vital information available to the public.Find Out How
ADVOCATE FOR RESEARCH Unlocking the power to answer important questions and preventtragedies.
Find Out How
SUPPORT THOSE AFFECTED Offering much needed hope and support for families in grief.Find Out How
A MESSAGE FROM OUR PRESIDENTONE SHARED VOICE
“WHAT STARTED AS A SMALL GROUP OF PARENTS AND SCIENTISTS IN 2001, HAS TURNED INTO AN INTERNATIONAL NETWORK OF FAMILIES, MEDICAL PROFESSIONALS, RESEARCHERS AND DEATH INVESTIGATORS COLLABORATING TO SOLVE THE MOST UNDER-RECOGNIZED MEDICAL MYSTERY OF OUR TIME. TODAY, WE SUPPORT OVER 1,000 FAMILIES IN MORE THAN 21 COUNTRIES, ADVOCATE FOR THE NEEDS OF OUR COMMUNITY AND FUND CRITICAL GROUNDBREAKING RESEARCH TO UNDERSTAND SUDC AND HELP PREVENT IT. THE SUDC FOUNDATION REPRESENTS A COMMUNITY WITH MANY STORIES, BUT ONE SHARED VOICE, ALL WORKING TOWARDS A FUTURE FREE OF SUDC.” GIVE FAMILIES AFFECTED BY SUDDEN UNEXPLAINED DEATH IN CHILDHOOD REASON TO HOPE WHEN ALL SEEMS LOST. TODAY, TOMORROW AND ALWAYS, WE’LL BE THERE FOR THEM— WITH YOURHELP.
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WHY IS SUDC RESEARCH IMPORTANT? Shared data, evaluation, research, and analytic strategies have the power to answer important questions and prevent tragedies.Donate Today
SUPPORT THE SUDC FOUNDATIONHOW YOU CAN HELP
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UNDERSTANDING THE RESEARCH “THOMAS’S CAUSE OF DEATH WAS UNDETERMINED, BUT THE MEDICAL EXAMINER SPOKE TO US SEVERAL TIMES TO TRY TO HELP ANSWER OUR QUESTIONS. SHE IDENTIFIED SUDC RESOURCES FOR US AND ASSISTED WITH OUR EFFORTS IN PURSUING RESEARCH OPPORTUNITIES TO HELP US TRY TO UNDERSTAND NOT ONLY HIS DEATH, BUT ALSO HELP MEDICAL RESEARCH BETTER UNDERSTAND THESE DEATHS IN ORDER TO PREVENT THIS TRAGEDY FOR ANOTHERFAMILY.”
UNEXPLAINED PEDIATRIC DEATHS: INVESTIGATION, CERTIFICATION & FAMILYNEEDS
PROCEDURAL GUIDANCE AND KEY CONSIDERATIONS DEVELOPED BY THE NATIONAL ASSOCIATION OF MEDICAL EXAMINERS PANEL ON SUDDEN UNEXPECTED DEATH INPEDIATRICS.
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SUDC INSIGHTS
* Stories Behind the Stride – How Different Paths Can Lead Us tothe Same Goal
* Kindness Takes Flight * Shining on for ScarlettUPCOMING EVENTS
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