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NEWS - ITSAN
Welcome to the ITSAN Fall Newsletter. Our community has grown significantly over the last 12 months; we count over 7500 people currently. ITSAN’s mission of the International Topical Steroid Awareness Network is to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. ITSAN is the only 501 (c)(3) non-profit
ABOUT ITSAN
About ITSAN. The International Topical Steroid Awareness Network is a nonprofit charity formed to raise awareness about a condition called Topical Steroid Withdrawal Syndrome, also known as Red Skin Syndrome or Topical Steroid Addiction. ITSAN is the only 501 (c) (3) non-profit charity serving the global TSW Syndrome community as a resource forITSAN - RESOURCES
Mechanism for how steroid addiction occurs is not understood – “Possible mechanisms might involve an effect on the “skin immune system,” a direct effect on blood vessels in the skin or effects on the pituitary-adrenal axis.”. Other resources from Dr. Rapaport:“The red
ITSAN 2021 "SPARK" VIRTUAL PATIENT CONFERENCE AGENDA May 15, 2021 11am – 3:30pm Eastern (US) Register here. Hope to see you there! Time Topic 11:00 - 11:15 Welcome to Spark 11:15 - 11:30 Introductions - ITSAN board 11:30 - 11:50 Dr. Olivia Friedman – Eastern Medicine and TSW 11:50 -DONATE TO ITSAN
Make a Donation to ITSAN. Thank you for making a donation today. It is generosity like yours that allows ITSAN to continue doing the important work of raising awareness, providing education, and giving support to those who desperately need it. You are participating in creating positive change for the TSW Syndrome community.FOR DOCTORS
TSW Syndrome and Resources for Doctors. ITSAN is a member in good standing of the Coalition of Skin Diseases and an affiliate cited in the Patient Advocate Resource Center of the American Academy of Dermatology. See our About ITSAN tab for more information.. This page is a resource for Healthcare Providers seeking answers from the literature about Topical Steroid Withdrawal Syndrome (TSWS). WHAT IS TOPICAL STEROID WITHDRAWAL SYNDROME? What is TSW Syndrome? Topical Steroid Withdrawal Syndrome (TSWS), also known as Topical Steroid Addiction (TSA) or Red Skin Syndrome (RSS), is a debilitating condition that can arise from the use of topical steroids to treat a skin problem, such as eczema. TOPICAL STEROIDS 101 Topical steroids are prescribed for use on “particular spots” of the skin and are not meant for application to the entire surface of the skin, injection or to be taken by mouth. Some examples of topical steroid preparations used on the skin are: creams, ointments, oils, gels, and lotions. Topical steroids are COPING W/ RED SKIN SYNDROME AND TOPICAL STEROID WITHDRAWAL During topical steroid withdrawal (TSW) Recuperating from TSW Syndrome is often extended and incapacitating. Many people experience painful symptoms and become covered in a full body rash or flushing that can last for weeks or months before clearing. Most have symptoms that are cyclical until the skin makes a full recovery. WELCOME TO ITSAN.ORGWHAT IS TSWSTOPICAL STEROIDS 101COPING WITH TSWSRESOURCESFOR DOCTORSSTORIES AND PHOTOS The International Topical Steroid Awareness Network (ITSAN), was formed in 2012 to raise awareness about Topical Steroid Withdrawal Syndrome, also known as Topical Steroid Addiction or Red Skin Syndrome. ITSAN is a diverse community of individuals, medical professionals, and caregivers united by our commitment to prevent TSWSyndrome and to
NEWS - ITSAN
Welcome to the ITSAN Fall Newsletter. Our community has grown significantly over the last 12 months; we count over 7500 people currently. ITSAN’s mission of the International Topical Steroid Awareness Network is to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. ITSAN is the only 501 (c)(3) non-profit
ABOUT ITSAN
About ITSAN. The International Topical Steroid Awareness Network is a nonprofit charity formed to raise awareness about a condition called Topical Steroid Withdrawal Syndrome, also known as Red Skin Syndrome or Topical Steroid Addiction. ITSAN is the only 501 (c) (3) non-profit charity serving the global TSW Syndrome community as a resource forITSAN - RESOURCES
Mechanism for how steroid addiction occurs is not understood – “Possible mechanisms might involve an effect on the “skin immune system,” a direct effect on blood vessels in the skin or effects on the pituitary-adrenal axis.”. Other resources from Dr. Rapaport:“The red
ITSAN 2021 "SPARK" VIRTUAL PATIENT CONFERENCE AGENDA May 15, 2021 11am – 3:30pm Eastern (US) Register here. Hope to see you there! Time Topic 11:00 - 11:15 Welcome to Spark 11:15 - 11:30 Introductions - ITSAN board 11:30 - 11:50 Dr. Olivia Friedman – Eastern Medicine and TSW 11:50 -DONATE TO ITSAN
Make a Donation to ITSAN. Thank you for making a donation today. It is generosity like yours that allows ITSAN to continue doing the important work of raising awareness, providing education, and giving support to those who desperately need it. You are participating in creating positive change for the TSW Syndrome community.FOR DOCTORS
TSW Syndrome and Resources for Doctors. ITSAN is a member in good standing of the Coalition of Skin Diseases and an affiliate cited in the Patient Advocate Resource Center of the American Academy of Dermatology. See our About ITSAN tab for more information.. This page is a resource for Healthcare Providers seeking answers from the literature about Topical Steroid Withdrawal Syndrome (TSWS). WHAT IS TOPICAL STEROID WITHDRAWAL SYNDROME? What is TSW Syndrome? Topical Steroid Withdrawal Syndrome (TSWS), also known as Topical Steroid Addiction (TSA) or Red Skin Syndrome (RSS), is a debilitating condition that can arise from the use of topical steroids to treat a skin problem, such as eczema. TOPICAL STEROIDS 101 Topical steroids are prescribed for use on “particular spots” of the skin and are not meant for application to the entire surface of the skin, injection or to be taken by mouth. Some examples of topical steroid preparations used on the skin are: creams, ointments, oils, gels, and lotions. Topical steroids are COPING W/ RED SKIN SYNDROME AND TOPICAL STEROID WITHDRAWAL During topical steroid withdrawal (TSW) Recuperating from TSW Syndrome is often extended and incapacitating. Many people experience painful symptoms and become covered in a full body rash or flushing that can last for weeks or months before clearing. Most have symptoms that are cyclical until the skin makes a full recovery.ABOUT ITSAN
About ITSAN. The International Topical Steroid Awareness Network is a nonprofit charity formed to raise awareness about a condition called Topical Steroid Withdrawal Syndrome, also known as Red Skin Syndrome or Topical Steroid Addiction. ITSAN is the only 501 (c) (3) non-profit charity serving the global TSW Syndrome community as a resource forITSAN - RESOURCES
Mechanism for how steroid addiction occurs is not understood – “Possible mechanisms might involve an effect on the “skin immune system,” a direct effect on blood vessels in the skin or effects on the pituitary-adrenal axis.”. Other resources from Dr. Rapaport:“The red
FIRST QUARTER 2021 NEWSLETTER Welcome to ITSAN’s First Quarter 2021 Newsletter. Our community has grown significantly over the last few months; we count over 9k currently in ITSAN’s Private Facebook Support Group, over 3.7k followers on Instagram and have heard from TSW sufferers representing over 50 countries. ITSAN’s mission is to raise awareness of Topical Steroid Withdrawal Syndrome and WELCOME TO ITSAN.ORG Since its founding in 2012, ITSAN has grown into a wide online community of TSW sufferers around the world contributing ideas, support and inspiration. ITSAN raises awareness of Topical Steroid Withdrawal Syndrome, fosters physician and patient education, and supports affected individuals. Our board members work on a volunteerbasis, spending
FALL NEWS & TSW INFORMATION ITSAN’s mission of the International Topical Steroid Awareness Network is to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. ITSAN is the only 501 (c) (3) non-profit charity serving the global TSW Syndrome community as a resource for the individual, the caregiver, and the healthcareprovider.
LETTER FROM THE PRESIDENT Dr. Koushik Lahiri is a Senior Consultant Dermatologist of Apollo Gleneagles Hospital in Kolkata, India and the Honorary Director of WIZDERM. He also serves as Vice President of the International Society of Dermatology, is a Member of IADVL and ACSI, Fellow of IADVL Academy of Dermatology, International Fellow of American Academy of Dermatology, Foundation Fellow of Asian Academy ofTERMS OF USE
TERMS OF USE 1. AGREEMENT This itsan.org web site (the “Service”) is an online information service provided by itsan.org that contains information from various content providers (“Suppliers”). The Service is offered to you, the user of this Service (“You” or “Your”), subject to your acceptance of and compliance with the terms and conditions as presented KELLY BARTA, AUTHOR AT ITSAN April. Kelly Barta becomes ITSAN President. ITSAN acquires non-profit status in the state of GA allowing more access to future grant applications. Briana Banos and Kelly Barta at the IID Conference. Development of a series of over 50 TSW case studies to share with doctors and researchers. 10 TIPS FOR PARENTS TO HELP SOOTH THEIR CHILDREN WITH RED Dr. Koushik Lahiri is a Senior Consultant Dermatologist of Apollo Gleneagles Hospital in Kolkata, India and the Honorary Director of WIZDERM. He also serves as Vice President of the International Society of Dermatology, is a Member of IADVL and ACSI, Fellow of IADVL Academy of Dermatology, International Fellow of American Academy of Dermatology, Foundation Fellow of Asian Academy of SZABRISKIE, AUTHOR AT ITSAN A new website – www.MoreThanSkinDeep-Eczema.org – is dedicated to empowering people living with eczema and their caregivers and care partners. It provides 3 ways for you to get involved: Complete the “More Than Skin Deep” survey – Your input will shape meeting discussion and will be included in the report that follows themeeting.
WELCOME TO ITSAN.ORGWHAT IS TSWSTOPICAL STEROIDS 101COPING WITH TSWSRESOURCESFOR DOCTORSSTORIES AND PHOTOS The International Topical Steroid Awareness Network (ITSAN), was formed in 2012 to raise awareness about Topical Steroid Withdrawal Syndrome, also known as Topical Steroid Addiction or Red Skin Syndrome. ITSAN is a diverse community of individuals, medical professionals, and caregivers united by our commitment to prevent TSWSyndrome and to
NEWS - ITSAN
Welcome to the ITSAN Fall Newsletter. Our community has grown significantly over the last 12 months; we count over 7500 people currently. ITSAN’s mission of the International Topical Steroid Awareness Network is to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. ITSAN is the only 501 (c)(3) non-profit
ITSAN - RESOURCES
Mechanism for how steroid addiction occurs is not understood – “Possible mechanisms might involve an effect on the “skin immune system,” a direct effect on blood vessels in the skin or effects on the pituitary-adrenal axis.”. Other resources from Dr. Rapaport:“The red
FOR DOCTORS
TSW Syndrome and Resources for Doctors. ITSAN is a member in good standing of the Coalition of Skin Diseases and an affiliate cited in the Patient Advocate Resource Center of the American Academy of Dermatology. See our About ITSAN tab for more information.. This page is a resource for Healthcare Providers seeking answers from the literature about Topical Steroid Withdrawal Syndrome (TSWS).DONATE TO ITSAN
Dr. Koushik Lahiri is a Senior Consultant Dermatologist of Apollo Gleneagles Hospital in Kolkata, India and the Honorary Director of WIZDERM. He also serves as Vice President of the International Society of Dermatology, is a Member of IADVL and ACSI, Fellow of IADVL Academy of Dermatology, International Fellow of American Academy of Dermatology, Foundation Fellow of Asian Academy of WHAT IS TOPICAL STEROID WITHDRAWAL SYNDROME? What is TSW Syndrome? Topical Steroid Withdrawal Syndrome (TSWS), also known as Topical Steroid Addiction (TSA) or Red Skin Syndrome (RSS), is a debilitating condition that can arise from the use of topical steroids to treat a skin problem, such as eczema. FIRST QUARTER 2021 NEWSLETTER Welcome to ITSAN’s First Quarter 2021 Newsletter. Our community has grown significantly over the last few months; we count over 9k currently in ITSAN’s Private Facebook Support Group, over 3.7k followers on Instagram and have heard from TSW sufferers representing over 50 countries. ITSAN’s mission is to raise awareness of Topical Steroid Withdrawal Syndrome and TOPICAL STEROIDS 101 Topical steroids are prescribed for use on “particular spots” of the skin and are not meant for application to the entire surface of the skin, injection or to be taken by mouth. Some examples of topical steroid preparations used on the skin are: creams, ointments, oils, gels, and lotions. Topical steroids are COPING W/ RED SKIN SYNDROME AND TOPICAL STEROID WITHDRAWAL During topical steroid withdrawal (TSW) Recuperating from TSW Syndrome is often extended and incapacitating. Many people experience painful symptoms and become covered in a full body rash or flushing that can last for weeks or months before clearing. Most have symptoms that are cyclical until the skin makes a full recovery. RED SKIN SYNDROME IMAGE GALLERY, STORIES OF HEALING The intense symptoms of RSS were soon to follow. Maxine experienced burning sensations, skin tightness, rashes and skin shedding, redness in the skin, sleeplessness, crazy constant itch, nail infections and nail loss due to scratching. The only typical RSS symptom she hasn’texperienced is
WELCOME TO ITSAN.ORGWHAT IS TSWSTOPICAL STEROIDS 101COPING WITH TSWSRESOURCESFOR DOCTORSSTORIES AND PHOTOS The International Topical Steroid Awareness Network (ITSAN), was formed in 2012 to raise awareness about Topical Steroid Withdrawal Syndrome, also known as Topical Steroid Addiction or Red Skin Syndrome. ITSAN is a diverse community of individuals, medical professionals, and caregivers united by our commitment to prevent TSWSyndrome and to
NEWS - ITSAN
Welcome to the ITSAN Fall Newsletter. Our community has grown significantly over the last 12 months; we count over 7500 people currently. ITSAN’s mission of the International Topical Steroid Awareness Network is to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. ITSAN is the only 501 (c)(3) non-profit
ITSAN - RESOURCES
Mechanism for how steroid addiction occurs is not understood – “Possible mechanisms might involve an effect on the “skin immune system,” a direct effect on blood vessels in the skin or effects on the pituitary-adrenal axis.”. Other resources from Dr. Rapaport:“The red
FOR DOCTORS
TSW Syndrome and Resources for Doctors. ITSAN is a member in good standing of the Coalition of Skin Diseases and an affiliate cited in the Patient Advocate Resource Center of the American Academy of Dermatology. See our About ITSAN tab for more information.. This page is a resource for Healthcare Providers seeking answers from the literature about Topical Steroid Withdrawal Syndrome (TSWS).DONATE TO ITSAN
Dr. Koushik Lahiri is a Senior Consultant Dermatologist of Apollo Gleneagles Hospital in Kolkata, India and the Honorary Director of WIZDERM. He also serves as Vice President of the International Society of Dermatology, is a Member of IADVL and ACSI, Fellow of IADVL Academy of Dermatology, International Fellow of American Academy of Dermatology, Foundation Fellow of Asian Academy of WHAT IS TOPICAL STEROID WITHDRAWAL SYNDROME? What is TSW Syndrome? Topical Steroid Withdrawal Syndrome (TSWS), also known as Topical Steroid Addiction (TSA) or Red Skin Syndrome (RSS), is a debilitating condition that can arise from the use of topical steroids to treat a skin problem, such as eczema. FIRST QUARTER 2021 NEWSLETTER Welcome to ITSAN’s First Quarter 2021 Newsletter. Our community has grown significantly over the last few months; we count over 9k currently in ITSAN’s Private Facebook Support Group, over 3.7k followers on Instagram and have heard from TSW sufferers representing over 50 countries. ITSAN’s mission is to raise awareness of Topical Steroid Withdrawal Syndrome and TOPICAL STEROIDS 101 Topical steroids are prescribed for use on “particular spots” of the skin and are not meant for application to the entire surface of the skin, injection or to be taken by mouth. Some examples of topical steroid preparations used on the skin are: creams, ointments, oils, gels, and lotions. Topical steroids are COPING W/ RED SKIN SYNDROME AND TOPICAL STEROID WITHDRAWAL During topical steroid withdrawal (TSW) Recuperating from TSW Syndrome is often extended and incapacitating. Many people experience painful symptoms and become covered in a full body rash or flushing that can last for weeks or months before clearing. Most have symptoms that are cyclical until the skin makes a full recovery. RED SKIN SYNDROME IMAGE GALLERY, STORIES OF HEALING The intense symptoms of RSS were soon to follow. Maxine experienced burning sensations, skin tightness, rashes and skin shedding, redness in the skin, sleeplessness, crazy constant itch, nail infections and nail loss due to scratching. The only typical RSS symptom she hasn’texperienced is
ABOUT ITSAN
About ITSAN. The International Topical Steroid Awareness Network is a nonprofit charity formed to raise awareness about a condition called Topical Steroid Withdrawal Syndrome, also known as Red Skin Syndrome or Topical Steroid Addiction. ITSAN is the only 501 (c) (3) non-profit charity serving the global TSW Syndrome community as a resource forITSAN - RESOURCES
Mechanism for how steroid addiction occurs is not understood – “Possible mechanisms might involve an effect on the “skin immune system,” a direct effect on blood vessels in the skin or effects on the pituitary-adrenal axis.”. Other resources from Dr. Rapaport:“The red
FIRST QUARTER 2021 NEWSLETTER Welcome to ITSAN’s First Quarter 2021 Newsletter. Our community has grown significantly over the last few months; we count over 9k currently in ITSAN’s Private Facebook Support Group, over 3.7k followers on Instagram and have heard from TSW sufferers representing over 50 countries. ITSAN’s mission is to raise awareness of Topical Steroid Withdrawal Syndrome and WELCOME TO ITSAN.ORG Since its founding in 2012, ITSAN has grown into a wide online community of TSW sufferers around the world contributing ideas, support and inspiration. ITSAN raises awareness of Topical Steroid Withdrawal Syndrome, fosters physician and patient education, and supports affected individuals. Our board members work on a volunteerbasis, spending
LETTER FROM THE PRESIDENT Dr. Koushik Lahiri is a Senior Consultant Dermatologist of Apollo Gleneagles Hospital in Kolkata, India and the Honorary Director of WIZDERM. He also serves as Vice President of the International Society of Dermatology, is a Member of IADVL and ACSI, Fellow of IADVL Academy of Dermatology, International Fellow of American Academy of Dermatology, Foundation Fellow of Asian Academy ofTERMS OF USE
TERMS OF USE 1. AGREEMENT This itsan.org web site (the “Service”) is an online information service provided by itsan.org that contains information from various content providers (“Suppliers”). The Service is offered to you, the user of this Service (“You” or “Your”), subject to your acceptance of and compliance with the terms and conditions as presented KELLY BARTA, AUTHOR AT ITSAN April. Kelly Barta becomes ITSAN President. ITSAN acquires non-profit status in the state of GA allowing more access to future grant applications. Briana Banos and Kelly Barta at the IID Conference. Development of a series of over 50 TSW case studies to share with doctors and researchers. JOHR@ITSAN.ORG, AUTHOR AT ITSAN ITSAN’s mission of the International Topical Steroid Awareness Network is to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. ITSAN is the only 501 (c) (3) non-profit charity serving the global TSW Syndrome community as a resource for the individual, the caregiver, and the healthcareprovider.
SZABRISKIE, AUTHOR AT ITSAN A new website – www.MoreThanSkinDeep-Eczema.org – is dedicated to empowering people living with eczema and their caregivers and care partners. It provides 3 ways for you to get involved: Complete the “More Than Skin Deep” survey – Your input will shape meeting discussion and will be included in the report that follows themeeting.
10 TIPS FOR PARENTS TO HELP SOOTH THEIR CHILDREN WITH RED Dr. Koushik Lahiri is a Senior Consultant Dermatologist of Apollo Gleneagles Hospital in Kolkata, India and the Honorary Director of WIZDERM. He also serves as Vice President of the International Society of Dermatology, is a Member of IADVL and ACSI, Fellow of IADVL Academy of Dermatology, International Fellow of American Academy of Dermatology, Foundation Fellow of Asian Academy of WELCOME TO ITSAN.ORGWHAT IS TSWSTOPICAL STEROIDS 101COPING WITH TSWSRESOURCESFOR DOCTORSSTORIES AND PHOTOS The International Topical Steroid Awareness Network (ITSAN), was formed in 2012 to raise awareness about Topical Steroid Withdrawal Syndrome, also known as Topical Steroid Addiction or Red Skin Syndrome. ITSAN is a diverse community of individuals, medical professionals, and caregivers united by our commitment to prevent TSWSyndrome and to
NEWS - ITSAN
Welcome to the ITSAN Fall Newsletter. Our community has grown significantly over the last 12 months; we count over 7500 people currently. ITSAN’s mission of the International Topical Steroid Awareness Network is to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. ITSAN is the only 501 (c)(3) non-profit
ITSAN - RESOURCES
Mechanism for how steroid addiction occurs is not understood – “Possible mechanisms might involve an effect on the “skin immune system,” a direct effect on blood vessels in the skin or effects on the pituitary-adrenal axis.”. Other resources from Dr. Rapaport:“The red
DONATE TO ITSAN
Make a Donation to ITSAN. Thank you for making a donation today. It is generosity like yours that allows ITSAN to continue doing the important work of raising awareness, providing education, and giving support to those who desperately need it. You are participating in creating positive change for the TSW Syndrome community.FOR DOCTORS
TSW Syndrome and Resources for Doctors. ITSAN is a member in good standing of the Coalition of Skin Diseases and an affiliate cited in the Patient Advocate Resource Center of the American Academy of Dermatology. See our About ITSAN tab for more information.. This page is a resource for Healthcare Providers seeking answers from the literature about Topical Steroid Withdrawal Syndrome (TSWS). WHAT IS TOPICAL STEROID WITHDRAWAL SYNDROME? What is TSW Syndrome? Topical Steroid Withdrawal Syndrome (TSWS), also known as Topical Steroid Addiction (TSA) or Red Skin Syndrome (RSS), is a debilitating condition that can arise from the use of topical steroids to treat a skin problem, such as eczema.DONOR DASHBOARD
Dr. Koushik Lahiri is a Senior Consultant Dermatologist of Apollo Gleneagles Hospital in Kolkata, India and the Honorary Director of WIZDERM. He also serves as Vice President of the International Society of Dermatology, is a Member of IADVL and ACSI, Fellow of IADVL Academy of Dermatology, International Fellow of American Academy of Dermatology, Foundation Fellow of Asian Academy of TOPICAL STEROIDS 101 Topical steroids are prescribed for use on “particular spots” of the skin and are not meant for application to the entire surface of the skin, injection or to be taken by mouth. Some examples of topical steroid preparations used on the skin are: creams, ointments, oils, gels, and lotions. Topical steroids are COPING W/ RED SKIN SYNDROME AND TOPICAL STEROID WITHDRAWAL During topical steroid withdrawal (TSW) Recuperating from TSW Syndrome is often extended and incapacitating. Many people experience painful symptoms and become covered in a full body rash or flushing that can last for weeks or months before clearing. Most have symptoms that are cyclical until the skin makes a full recovery. RED SKIN SYNDROME IMAGE GALLERY, STORIES OF HEALING The intense symptoms of RSS were soon to follow. Maxine experienced burning sensations, skin tightness, rashes and skin shedding, redness in the skin, sleeplessness, crazy constant itch, nail infections and nail loss due to scratching. The only typical RSS symptom she hasn’texperienced is
WELCOME TO ITSAN.ORGWHAT IS TSWSTOPICAL STEROIDS 101COPING WITH TSWSRESOURCESFOR DOCTORSSTORIES AND PHOTOS The International Topical Steroid Awareness Network (ITSAN), was formed in 2012 to raise awareness about Topical Steroid Withdrawal Syndrome, also known as Topical Steroid Addiction or Red Skin Syndrome. ITSAN is a diverse community of individuals, medical professionals, and caregivers united by our commitment to prevent TSWSyndrome and to
NEWS - ITSAN
Welcome to the ITSAN Fall Newsletter. Our community has grown significantly over the last 12 months; we count over 7500 people currently. ITSAN’s mission of the International Topical Steroid Awareness Network is to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. ITSAN is the only 501 (c)(3) non-profit
ITSAN - RESOURCES
Mechanism for how steroid addiction occurs is not understood – “Possible mechanisms might involve an effect on the “skin immune system,” a direct effect on blood vessels in the skin or effects on the pituitary-adrenal axis.”. Other resources from Dr. Rapaport:“The red
DONATE TO ITSAN
Make a Donation to ITSAN. Thank you for making a donation today. It is generosity like yours that allows ITSAN to continue doing the important work of raising awareness, providing education, and giving support to those who desperately need it. You are participating in creating positive change for the TSW Syndrome community.FOR DOCTORS
TSW Syndrome and Resources for Doctors. ITSAN is a member in good standing of the Coalition of Skin Diseases and an affiliate cited in the Patient Advocate Resource Center of the American Academy of Dermatology. See our About ITSAN tab for more information.. This page is a resource for Healthcare Providers seeking answers from the literature about Topical Steroid Withdrawal Syndrome (TSWS). WHAT IS TOPICAL STEROID WITHDRAWAL SYNDROME? What is TSW Syndrome? Topical Steroid Withdrawal Syndrome (TSWS), also known as Topical Steroid Addiction (TSA) or Red Skin Syndrome (RSS), is a debilitating condition that can arise from the use of topical steroids to treat a skin problem, such as eczema.DONOR DASHBOARD
Dr. Koushik Lahiri is a Senior Consultant Dermatologist of Apollo Gleneagles Hospital in Kolkata, India and the Honorary Director of WIZDERM. He also serves as Vice President of the International Society of Dermatology, is a Member of IADVL and ACSI, Fellow of IADVL Academy of Dermatology, International Fellow of American Academy of Dermatology, Foundation Fellow of Asian Academy of TOPICAL STEROIDS 101 Topical steroids are prescribed for use on “particular spots” of the skin and are not meant for application to the entire surface of the skin, injection or to be taken by mouth. Some examples of topical steroid preparations used on the skin are: creams, ointments, oils, gels, and lotions. Topical steroids are COPING W/ RED SKIN SYNDROME AND TOPICAL STEROID WITHDRAWAL During topical steroid withdrawal (TSW) Recuperating from TSW Syndrome is often extended and incapacitating. Many people experience painful symptoms and become covered in a full body rash or flushing that can last for weeks or months before clearing. Most have symptoms that are cyclical until the skin makes a full recovery. RED SKIN SYNDROME IMAGE GALLERY, STORIES OF HEALING The intense symptoms of RSS were soon to follow. Maxine experienced burning sensations, skin tightness, rashes and skin shedding, redness in the skin, sleeplessness, crazy constant itch, nail infections and nail loss due to scratching. The only typical RSS symptom she hasn’texperienced is
ITSAN - RESOURCES
Mechanism for how steroid addiction occurs is not understood – “Possible mechanisms might involve an effect on the “skin immune system,” a direct effect on blood vessels in the skin or effects on the pituitary-adrenal axis.”. Other resources from Dr. Rapaport:“The red
FIRST QUARTER 2021 NEWSLETTER Welcome to ITSAN’s First Quarter 2021 Newsletter. Our community has grown significantly over the last few months; we count over 9k currently in ITSAN’s Private Facebook Support Group, over 3.7k followers on Instagram and have heard from TSW sufferers representing over 50 countries. ITSAN’s mission is to raise awareness of Topical Steroid Withdrawal Syndrome and WELCOME TO ITSAN.ORG Since its founding in 2012, ITSAN has grown into a wide online community of TSW sufferers around the world contributing ideas, support and inspiration. ITSAN raises awareness of Topical Steroid Withdrawal Syndrome, fosters physician and patient education, and supports affected individuals. Our board members work on a volunteerbasis, spending
LETTER FROM THE PRESIDENT Dr. Koushik Lahiri is a Senior Consultant Dermatologist of Apollo Gleneagles Hospital in Kolkata, India and the Honorary Director of WIZDERM. He also serves as Vice President of the International Society of Dermatology, is a Member of IADVL and ACSI, Fellow of IADVL Academy of Dermatology, International Fellow of American Academy of Dermatology, Foundation Fellow of Asian Academy of GET ANSWERS. GET SUPPORT. ITSAN.org Get the support you’re searching for: @InternationalTopicalSteroid AwarenessNetworkITSAN/ @itsan.nonprofit @ITSANnonprofit PO Box 303, Dacula, GA 30019TERMS OF USE
TERMS OF USE 1. AGREEMENT This itsan.org web site (the “Service”) is an online information service provided by itsan.org that contains information from various content providers (“Suppliers”). The Service is offered to you, the user of this Service (“You” or “Your”), subject to your acceptance of and compliance with the terms and conditions as presented KELLY BARTA, AUTHOR AT ITSAN April. Kelly Barta becomes ITSAN President. ITSAN acquires non-profit status in the state of GA allowing more access to future grant applications. Briana Banos and Kelly Barta at the IID Conference. Development of a series of over 50 TSW case studies to share with doctors and researchers. LETTER FROM THE PRESIDENT Hello ITSAN Family and Friends, It’s been a very busy past two months, full of networking, advocating, and strategizing for the future of ITSAN and our members! Here are some highlights: International Alliance of Dermatology Patient Organizations (IADPO) Membership Earlier this year we were contacted by a few of our active International Members who are JOHR@ITSAN.ORG, AUTHOR AT ITSAN ITSAN’s mission of the International Topical Steroid Awareness Network is to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. ITSAN is the only 501 (c) (3) non-profit charity serving the global TSW Syndrome community as a resource for the individual, the caregiver, and the healthcareprovider.
SZABRISKIE, AUTHOR AT ITSAN A new website – www.MoreThanSkinDeep-Eczema.org – is dedicated to empowering people living with eczema and their caregivers and care partners. It provides 3 ways for you to get involved: Complete the “More Than Skin Deep” survey – Your input will shape meeting discussion and will be included in the report that follows themeeting.
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2019-08-15T22:30:34-05:00*
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ITSAN is here to help. Building bridges within the medical community. Supporting individuals affected by Red Skin Syndrome.*
Red Skin Syndrome
Red Skin Syndrome is a painful medical condition that can develop as an adverse effect of topical steroid use. RSS is growing in recognition, but much more research is needed.*
There is hope if you have RSS Topical steroid withdrawal can be a long road that requires a supportive doctor to help you navigate through it. While ITSAN does not offer medical advice, you can find much information and support.__
WHAT IS RSS?
Red Skin Syndrome, also known as Topical Steroid Addiction and Withdrawal, is a debilitating condition that can arise from the use of topical steroid creams to treat a skin problem such as eczema.Learn More
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PHOTOS AND STORIES OF RSS RSS affects thousands of people around the world, of every age and background. View photos and stories from some of our brave RSSveterans.
View photos
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TOPICAL STEROIDS 101 Topical steroids can be effective in treating eczema and other skin conditions, but proper use of these powerful drugs is essential.Learn More
The International Topical Steroid Addiction Network, ITSAN, was originally formed to raise awareness about a condition called Topical Steroid Addiction and Withdrawal, now known as Red Skin Syndrome. Since its founding in 2012, ITSAN has grown into a wide online community of RSS sufferers around the world contributing ideas, funds and inspiration. ITSAN raises awareness of Red Skin Syndrome (RSS), fosters physician and patient education, and supports affected individuals. Many of our participants, staff, and board members work on a volunteer basis, spending many hours per week to help the cause. All of ITSAN’s Executive Board have either suffered from Topical Steroid Withdrawal themselves or known or cared for a loved one who has.__
Who is ITSAN?
ITSAN is a diverse community of individuals, caregivers, medical professionals, and parents united by our commitment to understanding Red Skin Syndrome, and our desire to help alleviate the suffering of anyone facing this painful experience.__
Our hope
We hope that topical steroids will be prescribed with more caution and monitoring. We also hope that through sharing our experiences we can someday find a cure, or short of a cure, to identify best practices for treating RSS and reducing the pain and suffering of all who are affected by this debilitating condition. ANNOUNCEMENT: PATIENT-FOCUSED DRUG DEVELOPMENT MEETING ITSAN is so incredibly excited and proud to announce this very special event! For the past 8 months, we have been working tirelessly together with four nonprofit organizations serving the eczema community to launch “More Than Skin Deep” – a series of opportunities for your perspective to inform and shape the understanding of eczema and the development of drugs and medical devices designed to treat this condition. A focal point of the initiative is a patient-focused drug development (PFDD) meeting to be held September 23, 2019 in the Washington, D.C. area. It will provide the eczema community an opportunity to speak directly to Food and Drug Administration (FDA) staff, representatives of pharmaceutical and medical device companies, and other keystakeholders.
Learn more about this event > INTRO TO RSS/TSW VIDEO PHYSICIAN STATEMENTS > I have certainly seen Red Skin Syndrome, now multiple times. > Generally, I find that these patients tend to have more widespread > involvement on their body, but almost always have face and neck > involved. Unlike eczema, it tends to be more red and flushing or > blushing in appearance, although many patients will also have > eczematous and scaly lesions at the same time.PETER LIO, MD
> Steroid addiction is a more subtle and more insidious type of side > reaction. It is common but is not high in medical consciousness > because it frequently goes unrecognized. Hence, it is underreported > and not well characterized. Because it develops in stages, often > slowly, both the physician and the patient may fail to incriminate> the steroid.
ALBERT M. KLIGMAN, MD, PHD > Though the topic of topical steroid addiction (TSA) is troublesome > for physicians, we should not postpone facing it. It is not a > temporary tide, TSA is real. Please search articles in PubMed. At > the minimum, warning of TSA as a side-effect of topical steroids > must be added in the guidelines of all areas of atopic dermatitis> treatment.
MOTOTSUGU FUKAYA MD, JDASEARCH
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