Are you over 18 and want to see adult content?
More Annotations
![A complete backup of survinitsolutions.com](https://www.archivebay.com/archive2/717b1e41-02de-435c-887b-9644b53ab2df.png)
A complete backup of survinitsolutions.com
Are you over 18 and want to see adult content?
![A complete backup of rabodirect.co.nz](https://www.archivebay.com/archive2/996ad4fb-a373-4630-b5c6-d69b96973349.png)
A complete backup of rabodirect.co.nz
Are you over 18 and want to see adult content?
![A complete backup of powerweldinc.com](https://www.archivebay.com/archive2/18704314-2a2b-4d0b-9a69-a0f4c1092c66.png)
A complete backup of powerweldinc.com
Are you over 18 and want to see adult content?
![A complete backup of enfermedadesyemociones.blogspot.com](https://www.archivebay.com/archive2/b90df366-78bc-4912-8503-274d45112bb9.png)
A complete backup of enfermedadesyemociones.blogspot.com
Are you over 18 and want to see adult content?
![A complete backup of singaporespine.org](https://www.archivebay.com/archive2/8a93f1a9-532b-4bc8-89d5-02b7a9587424.png)
A complete backup of singaporespine.org
Are you over 18 and want to see adult content?
Favourite Annotations
![A complete backup of elenazvezdnaya.ru](https://www.archivebay.com/archive/a8ce87b9-9de8-4cb5-8d08-e1735cae6d6e.png)
A complete backup of elenazvezdnaya.ru
Are you over 18 and want to see adult content?
![A complete backup of montessori-russia.ru](https://www.archivebay.com/archive/64bde097-5f05-45f1-be6e-735d706b6033.png)
A complete backup of montessori-russia.ru
Are you over 18 and want to see adult content?
![A complete backup of kimberlyannjimenez.com](https://www.archivebay.com/archive/c98b4663-3ac3-4983-b337-bb9a576df2bf.png)
A complete backup of kimberlyannjimenez.com
Are you over 18 and want to see adult content?
![A complete backup of libertyseguros.es](https://www.archivebay.com/archive/2956c3a9-99f4-4cd9-a07f-993588c0442d.png)
A complete backup of libertyseguros.es
Are you over 18 and want to see adult content?
![A complete backup of coordinacionempresarial.com](https://www.archivebay.com/archive/6439a2c5-ed1f-47cf-8bde-57b32135fec8.png)
A complete backup of coordinacionempresarial.com
Are you over 18 and want to see adult content?
![A complete backup of seoprimetools.com](https://www.archivebay.com/archive/d77a4eba-4bd9-4a1e-bf69-25b9e8b42797.png)
A complete backup of seoprimetools.com
Are you over 18 and want to see adult content?
Text
member.
MYOTONIC DYSTROPHY TESTING & DIAGNOSIS Diagnosis of myotonic dystrophy is not difficult once the disorder is suspected. Your path to a correct myotonic dystrophy (DM) diagnosis can be long and complex, as medical professionals see these cases so infrequently that they often aren’t familiar with DM. WHAT IS THE PROGNOSIS FOR MYOTONIC DYSTROPHY DIAGNOSES Myotonic dystrophy is a progressive or degenerative disease. Symptoms tend to worsen gradually over several decades. While no treatment exists that slows the progression of myotonic dystrophy, management of its symptoms can greatly improve patient quality of life. Early intervention can reduce or avert complications that sometimes arise. DM2 tends to be less severe than DM1REHABILITATION
Myotonic dystrophy is a progressive disorder that affects multiple body systems. Currently there is no cure for myotonic dystrophy (DM1, DM2), and therefore managing the disease symptoms is essential to enhancing quality of life for individuals living with DM. In addition to physicians, physical therapists, occupational therapists and speech therapists are essential members of MYOTONIC DYSTROPHY ANESTHESIA GUIDELINES Myotonic Dystrophy Anesthesia Guidelines. Please know that the use of anesthesia raises special risks to those living with myotonic dystrophy (DM), as the disease results in heightened sensitivity to sedatives and analgesics. Pay particular attention to the serious complications that can arise in the post-anesthesia period, when riskof
GENETIC TESTING FOR MYOTONIC DYSTROPHY The current diagnostic code for myotonic dystrophy is 359.21. Updated ICD-10 codes will be implemented in October 2014 and at that time the DM code will change to G71.1. Insurance companies should be able to explain what percentage of the cost of a DM genetic test they will cover. Individuals with very low incomes can sometimes qualify for EXERCISE GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY EXERCISE GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY MYOTONIC DYSTROPHY FOUNDATION www.myotonic.org 1 This guide for exercise should be used with recommendations from your health care providers. All individuals should talk to their health care providers before starting a new exercise program. NUTRITION GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY Q NUTRITION GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY MYOTONIC DYSTROPHY FOUNDATION www.myotonic.org 1 Getting Started on a Healthy Diet Here are some strategies and tips to consider when you firstbegin
CARE GUIDELINES FOR SPEECH AND LANGUAGE PATHOLOGISTS 663 Thirteenth Street, Suite 100, Oakland, California 94612 415.800.7777 | info@myotonic.org | www.myotonic.org The Myotonic Dystrophy Foundation (MDF) is ANESTHETIC MANAGEMENT OF PATIENTS WITH MYOTONIC DYSTROPHY 1 Anesthetic Risks, as detailed in the Guidelines, result from DM effects that include: • Cardiac conduction defects and potentially fatal arrhythmias • Ventilatory insufficiency and poor airway protection • Gastrointestinal dysmotility that frequently results in pseudo-obstruction • Erratic responses to succinylcholine - though DM does not increase true malignant hyperthermia MYOTONIC DYSTROPHY FOUNDATIONMYOTONIC DYSTROPHYRESEARCHSUPPORT & CAREGET INVOLVEDABOUT USCOVID-19 MDF is proud to recognize Richard T. Moxley, III, MD for his distinguished service in the field of myotonic dystrophy and his role on the MDF Scientific Advisory Committee. This month Dr. Moxley is retiring from MDF’s Scientific Advisory Committee (SAC), after supporting MDF since our inception, and will now serve as an Emeritusmember.
MYOTONIC DYSTROPHY TESTING & DIAGNOSIS Diagnosis of myotonic dystrophy is not difficult once the disorder is suspected. Your path to a correct myotonic dystrophy (DM) diagnosis can be long and complex, as medical professionals see these cases so infrequently that they often aren’t familiar with DM. WHAT IS THE PROGNOSIS FOR MYOTONIC DYSTROPHY DIAGNOSES Myotonic dystrophy is a progressive or degenerative disease. Symptoms tend to worsen gradually over several decades. While no treatment exists that slows the progression of myotonic dystrophy, management of its symptoms can greatly improve patient quality of life. Early intervention can reduce or avert complications that sometimes arise. DM2 tends to be less severe than DM1REHABILITATION
Myotonic dystrophy is a progressive disorder that affects multiple body systems. Currently there is no cure for myotonic dystrophy (DM1, DM2), and therefore managing the disease symptoms is essential to enhancing quality of life for individuals living with DM. In addition to physicians, physical therapists, occupational therapists and speech therapists are essential members of MYOTONIC DYSTROPHY ANESTHESIA GUIDELINES Myotonic Dystrophy Anesthesia Guidelines. Please know that the use of anesthesia raises special risks to those living with myotonic dystrophy (DM), as the disease results in heightened sensitivity to sedatives and analgesics. Pay particular attention to the serious complications that can arise in the post-anesthesia period, when riskof
GENETIC TESTING FOR MYOTONIC DYSTROPHY The current diagnostic code for myotonic dystrophy is 359.21. Updated ICD-10 codes will be implemented in October 2014 and at that time the DM code will change to G71.1. Insurance companies should be able to explain what percentage of the cost of a DM genetic test they will cover. Individuals with very low incomes can sometimes qualify for EXERCISE GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY EXERCISE GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY MYOTONIC DYSTROPHY FOUNDATION www.myotonic.org 1 This guide for exercise should be used with recommendations from your health care providers. All individuals should talk to their health care providers before starting a new exercise program. NUTRITION GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY Q NUTRITION GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY MYOTONIC DYSTROPHY FOUNDATION www.myotonic.org 1 Getting Started on a Healthy Diet Here are some strategies and tips to consider when you firstbegin
CARE GUIDELINES FOR SPEECH AND LANGUAGE PATHOLOGISTS 663 Thirteenth Street, Suite 100, Oakland, California 94612 415.800.7777 | info@myotonic.org | www.myotonic.org The Myotonic Dystrophy Foundation (MDF) is ANESTHETIC MANAGEMENT OF PATIENTS WITH MYOTONIC DYSTROPHY 1 Anesthetic Risks, as detailed in the Guidelines, result from DM effects that include: • Cardiac conduction defects and potentially fatal arrhythmias • Ventilatory insufficiency and poor airway protection • Gastrointestinal dysmotility that frequently results in pseudo-obstruction • Erratic responses to succinylcholine - though DM does not increase true malignant hyperthermia MYOTONIC DYSTROPHY FOUNDATION MDF is proud to recognize Richard T. Moxley, III, MD for his distinguished service in the field of myotonic dystrophy and his role on the MDF Scientific Advisory Committee. This month Dr. Moxley is retiring from MDF’s Scientific Advisory Committee (SAC), after supporting MDF since our inception, and will now serve as an Emeritusmember.
MUSCLE - DM1
Myotonia – sustained muscle contraction and difficulty relaxing muscles – is a hallmark of DM1 and is an aspect of the disease that distinguishes it from other forms of muscular dystrophy. It affects nearly 100 percent of adult-onset DM1. Myotonia can contribute to muscle stiffness, pain, prolonged hand grip, speech and swallowing CURRENT STUDIES AND TRIALS Current trial participants should view our short Clinical Trials Training Video to familiarize yourself with the clinical trials process and important do's and don'ts, such as what content is appropriate to share publicly. We strongly encourage you to join registries, including the Myotonic Dystrophy Family Registry and the DM and FSHD Registry at the University of Rochester, MDF COMMUNITY FORUM UPDATE MDF is proud to announce Maya Gosztyla as one of the MDF’s 2021 Fellowship Recipients! Maya Gosztyla’s project “Investigating RNA-binding Proteins and RNA Localization in cDM1 Organoids” plans to search for new RBPs, beyond those currently known, that are dysregulated in DM1. THE GENETICS OF DM1 REPEAT SIZE The Genetics of DM1 Repeat Size. Since its discovery almost 25 years ago, researchers have been working to try to understand the DNA mutation causing myotonic dystrophy type 1 (DM1). The mutation is known by many names, including “CTG repeat,” “triplet repeat,” “trinucleotide repeat,” “expansion mutation” and many more. ANESTHETIC MANAGEMENT OF PATIENTS WITH MYOTONIC DYSTROPHY 1 Anesthetic Risks, as detailed in the Guidelines, result from DM effects that include: • Cardiac conduction defects and potentially fatal arrhythmias • Ventilatory insufficiency and poor airway protection • Gastrointestinal dysmotility that frequently results in pseudo-obstruction • Erratic responses to succinylcholine - though DM does not increase true malignant hyperthermia TREATING SLEEP DISORDERS IN DM1 Treating Sleep Disorders in DM1. Patient-reported data from MDF’s Myotonic Dystrophy Family Registry (MDFR) indicate that impaired sleep or daytime sleepiness are among the most prevalent symptoms of DM1, experienced by over 76% of patients. Despite the prevalence and substantial burden imposed by sleep disorders, studies report thatmany
CITATIONS | MYOTONIC DYSTROPHY FOUNDATION Medical References & Citations for Myotonic Dystrophy Disease Mechanism Prevalence Nicholas E. Johnson, Russell J. Butterfield, Katie Mayne, Tara Newcomb,Carina Imburgia, Diane Dunn, Brett Duval, Marcia L. Feldkamp, Robert B. Weiss. Population-Based Prevalence of Myotonic Dystrophy Type 1 Using Genetic Analysis of Statewide Blood Screening Program, Neurology Feb 2021, 96 (7) e1045-e1053, DM STRENGTH TRAINING WITH RACHEL KAHN 1:00 PM Pacific TimeNov 19th, Dec 3rd,10th &17th. This class will begin with a warm-up including a body scan, breath work, active-stretching, and joint/spinal mobility work. The intensity will build as we layer on full-body strength training with functional, task-oriented movements, and some balance and coordination exercises.We will wrap up
PRACTICAL SUGGESTIONS FOR THE ANESTHETIC … The following are some of the key management issues for the anesthesiologist to consider when caring for a patient with DM: 1. General: Myotonic dystrophy was identified because of its unique effects on skeletal muscle, but was subsequently shown to result in MYOTONIC DYSTROPHY TESTING & DIAGNOSIS Diagnosis of myotonic dystrophy is not difficult once the disorder is suspected. Your path to a correct myotonic dystrophy (DM) diagnosis can be long and complex, as medical professionals see these cases so infrequently that they often aren’t familiar with DM.REHABILITATION
Myotonic dystrophy is a progressive disorder that affects multiple body systems. Currently there is no cure for myotonic dystrophy (DM1, DM2), and therefore managing the disease symptoms is essential to enhancing quality of life for individuals living with DM. In addition to physicians, physical therapists, occupational therapists and speech therapists are essential members of WHAT IS THE PROGNOSIS FOR MYOTONIC DYSTROPHY DIAGNOSES Myotonic dystrophy is a progressive or degenerative disease. Symptoms tend to worsen gradually over several decades. While no treatment exists that slows the progression of myotonic dystrophy, management of its symptoms can greatly improve patient quality of life. Early intervention can reduce or avert complications that sometimes arise. DM2 tends to be less severe than DM1FIND A DOCTOR
One of the requests Myotonic gets most frequently from community members is for referrals to doctors, therapists and other medical professionals who understand myotonic dystrophy (DM) and have experience in treating DM patients. To meet that need, Myotonic offers the Find a Doctor Program, a constantly-expanding, community-generated list that features clinicians based in MYOTONIC DYSTROPHY ANESTHESIA GUIDELINES Myotonic Dystrophy Anesthesia Guidelines. Please know that the use of anesthesia raises special risks to those living with myotonic dystrophy (DM), as the disease results in heightened sensitivity to sedatives and analgesics. Pay particular attention to the serious complications that can arise in the post-anesthesia period, when riskof
MDF COMMUNITY FORUM UPDATE MDF is proud to announce Maya Gosztyla as one of the MDF’s 2021 Fellowship Recipients! Maya Gosztyla’s project “Investigating RNA-binding Proteins and RNA Localization in cDM1 Organoids” plans to search for new RBPs, beyond those currently known, that are dysregulated in DM1. EXERCISE GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY EXERCISE GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY MYOTONIC DYSTROPHY FOUNDATION www.myotonic.org 1 This guide for exercise should be used with recommendations from your health care providers. All individuals should talk to their health care providers before starting a new exercise program. NUTRITION GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY Q NUTRITION GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY MYOTONIC DYSTROPHY FOUNDATION www.myotonic.org 1 Getting Started on a Healthy Diet Here are some strategies and tips to consider when you firstbegin
ANESTHETIC MANAGEMENT OF PATIENTS WITH MYOTONIC DYSTROPHY 1 Anesthetic Risks, as detailed in the Guidelines, result from DM effects that include: • Cardiac conduction defects and potentially fatal arrhythmias • Ventilatory insufficiency and poor airway protection • Gastrointestinal dysmotility that frequently results in pseudo-obstruction • Erratic responses to succinylcholine - though DM does not increase true malignant hyperthermia OCCUPATIONAL THERAPY SUGGESTIONS FOR THE … MDF | TOOLKIT 81 OCCUPATIONAL THERAPY SUGGESTIONS FOR THE MANAGEMENT OF A MYOTONIC DYSTROPHY PATIENT Cynthia Gagnon, erg, Ph.D. Professeur adjoint, École de réadaptation, Faculté de médecine et des sciences de la santé MYOTONIC DYSTROPHY TESTING & DIAGNOSIS Diagnosis of myotonic dystrophy is not difficult once the disorder is suspected. Your path to a correct myotonic dystrophy (DM) diagnosis can be long and complex, as medical professionals see these cases so infrequently that they often aren’t familiar with DM.REHABILITATION
Myotonic dystrophy is a progressive disorder that affects multiple body systems. Currently there is no cure for myotonic dystrophy (DM1, DM2), and therefore managing the disease symptoms is essential to enhancing quality of life for individuals living with DM. In addition to physicians, physical therapists, occupational therapists and speech therapists are essential members of WHAT IS THE PROGNOSIS FOR MYOTONIC DYSTROPHY DIAGNOSES Myotonic dystrophy is a progressive or degenerative disease. Symptoms tend to worsen gradually over several decades. While no treatment exists that slows the progression of myotonic dystrophy, management of its symptoms can greatly improve patient quality of life. Early intervention can reduce or avert complications that sometimes arise. DM2 tends to be less severe than DM1FIND A DOCTOR
One of the requests Myotonic gets most frequently from community members is for referrals to doctors, therapists and other medical professionals who understand myotonic dystrophy (DM) and have experience in treating DM patients. To meet that need, Myotonic offers the Find a Doctor Program, a constantly-expanding, community-generated list that features clinicians based in MYOTONIC DYSTROPHY ANESTHESIA GUIDELINES Myotonic Dystrophy Anesthesia Guidelines. Please know that the use of anesthesia raises special risks to those living with myotonic dystrophy (DM), as the disease results in heightened sensitivity to sedatives and analgesics. Pay particular attention to the serious complications that can arise in the post-anesthesia period, when riskof
MDF COMMUNITY FORUM UPDATE MDF is proud to announce Maya Gosztyla as one of the MDF’s 2021 Fellowship Recipients! Maya Gosztyla’s project “Investigating RNA-binding Proteins and RNA Localization in cDM1 Organoids” plans to search for new RBPs, beyond those currently known, that are dysregulated in DM1. EXERCISE GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY EXERCISE GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY MYOTONIC DYSTROPHY FOUNDATION www.myotonic.org 1 This guide for exercise should be used with recommendations from your health care providers. All individuals should talk to their health care providers before starting a new exercise program. NUTRITION GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY Q NUTRITION GUIDE FOR PEOPLE LIVING WITH MYOTONIC DYSTROPHY MYOTONIC DYSTROPHY FOUNDATION www.myotonic.org 1 Getting Started on a Healthy Diet Here are some strategies and tips to consider when you firstbegin
ANESTHETIC MANAGEMENT OF PATIENTS WITH MYOTONIC DYSTROPHY 1 Anesthetic Risks, as detailed in the Guidelines, result from DM effects that include: • Cardiac conduction defects and potentially fatal arrhythmias • Ventilatory insufficiency and poor airway protection • Gastrointestinal dysmotility that frequently results in pseudo-obstruction • Erratic responses to succinylcholine - though DM does not increase true malignant hyperthermia OCCUPATIONAL THERAPY SUGGESTIONS FOR THE … MDF | TOOLKIT 81 OCCUPATIONAL THERAPY SUGGESTIONS FOR THE MANAGEMENT OF A MYOTONIC DYSTROPHY PATIENT Cynthia Gagnon, erg, Ph.D. Professeur adjoint, École de réadaptation, Faculté de médecine et des sciences de la santé MYOTONIC DYSTROPHY ANESTHESIA GUIDELINES Myotonic Dystrophy Anesthesia Guidelines. Please know that the use of anesthesia raises special risks to those living with myotonic dystrophy (DM), as the disease results in heightened sensitivity to sedatives and analgesics. Pay particular attention to the serious complications that can arise in the post-anesthesia period, when riskof
GENETIC TESTING FOR MYOTONIC DYSTROPHY The current diagnostic code for myotonic dystrophy is 359.21. Updated ICD-10 codes will be implemented in October 2014 and at that time the DM code will change to G71.1. Insurance companies should be able to explain what percentage of the cost of a DM genetic test they will cover. Individuals with very low incomes can sometimes qualify for MDF COMMUNITY FORUM UPDATE MDF is proud to announce Maya Gosztyla as one of the MDF’s 2021 Fellowship Recipients! Maya Gosztyla’s project “Investigating RNA-binding Proteins and RNA Localization in cDM1 Organoids” plans to search for new RBPs, beyond those currently known, that are dysregulated in DM1.MUSCLE - DM1
Myotonia – sustained muscle contraction and difficulty relaxing muscles – is a hallmark of DM1 and is an aspect of the disease that distinguishes it from other forms of muscular dystrophy. It affects nearly 100 percent of adult-onset DM1. Myotonia can contribute to muscle stiffness, pain, prolonged hand grip, speech and swallowingVIRTUAL CHAIR YOGA
0:00 / 43:46. Live. •. Presented during Myotonic's Friday Afternoon Webinar Series. Join Ellen Shapiro for a gentle chair yoga session. We will do some breath awareness, stretching, and mindful movements. Yoga helps to calm us and build flexibility and strength. If you are experiencing anxiety during these unusual times, this might be a nice TREATING SLEEP DISORDERS IN DM1 Treating Sleep Disorders in DM1. Patient-reported data from MDF’s Myotonic Dystrophy Family Registry (MDFR) indicate that impaired sleep or daytime sleepiness are among the most prevalent symptoms of DM1, experienced by over 76% of patients. Despite the prevalence and substantial burden imposed by sleep disorders, studies report thatmany
IDMC-13: INTERNATIONAL MYOTONIC DYSTROPHY CONSORTIUM TBD 2022 Osaka City Central Public Hall Osaka, Japan The upcoming 13th International Myotonic Dystrophy Consortium Meeting at the Osaka City Central Public Hall, Osaka, Japan has been postponed to 2022. We are looking forward to a scientifically interesting and important meeting with leading scientists in the field of Myotonic Dystrophy from allaround the world.
THE GENETICS OF DM1 REPEAT SIZE The Genetics of DM1 Repeat Size. Since its discovery almost 25 years ago, researchers have been working to try to understand the DNA mutation causing myotonic dystrophy type 1 (DM1). The mutation is known by many names, including “CTG repeat,” “triplet repeat,” “trinucleotide repeat,” “expansion mutation” and many more. PRACTICAL SUGGESTIONS FOR THE ANESTHETIC … The following are some of the key management issues for the anesthesiologist to consider when caring for a patient with DM: 1. General: Myotonic dystrophy was identified because of its unique effects on skeletal muscle, but was subsequently shown to result in IONIS-DMPKRX CLINICAL PROGRAM IN MYOTONIC DYSTROPHY 6 IONIS-DMPK-2.5 Rxis a Gen 2.5 Antisense Drug Designed to Reduce Toxic RNA Levels Cooper, T.. (2009) Science. 325:272-273 n First muscle target n IONIS-DMPK-2.5 Rxtargets toxic DMPK RNAs in multiple tissues n RNase H1-mediated degradation of DMPK RNA releases sequestered proteins and restores normal cellular Skip to main contentSEARCH FORM
Search
__ __
__
__
__ News
_ _Donate!
__
* Myotonic Dystrophy* About DM
* FAQs
* Glossary
* Disease Mechanism
* Anticipation
* Causes of DM
* News
* Current Dispatch
* Dispatch Archive
* Family Stories
* Research
* For Researchers
* Fellows & Grant Recipients * Global Research News * Grant Opportunities & Awards * Induced Pluripotent Patient-derived Stem Cell Line (iPSC) Library * Myotonic Dystrophy Family Registry * Drug Development Pipeline * DM2 Landscape Analysis 2019* DM Research News
* Current Edition
* DM Research News Archive* Support & Care
* Living With DM
* Anesthesia Guidelines* Digital Academy
* Family Planning with DM* Find a Doctor
* Financial Resources * Insurance Considerations * Juvenile-onset Adults * Testing & Diagnosis * Toolkits & Publications * Working with Your Care Team* Find Support
* Phone Buddies
* Support Groups
* Warmline
* Get Involved
* Events
* 2020 Virtual Conference* Past Conferences
* 2020 Virtual Gala
* Friday Afternoon Webinar Series * Medical School Roadshow* Myotonic DM Days
* Camp JOA
* Take Action
* Advocate
* Grassroots Fundraising* Join the Registry
* Sign up for Emails!* About Us
* About Us
* The Myotonic Mission* Our Impact
* Our History
* Our Team
* Our Support Group Facilitators* Contact Us
* Press Room
* COVID-19
* Donate
*
Sign Up for Emails! Stay up to date on the latest advances in DM*
Clinical Care Recommendations MDF has published the first-ever Consensus-based Care Recommendations for DM1, CDM and DM2! Download and share them with your clinicians and help us improve care for DM families! Get the recommendations*
New Toolkit For DM Parents Going to school with myotonic dystrophy? Check out MDF's guide to understanding special education and the Individuals with Disabilities Education Act. Learn more about IDEA*
Help Find a Cure for DM Join the Myotonic Dystrophy Family Registry today and help us better understand and improve the lives of the people and families living with DM. Join Now*
Resources for Professionals Are you part of the medical or scientific community? We have DM resources just for you. Find Out MorePrevious Next
New Diagnosis? Click Here!TOOLKITS
Anesthesia Guidelines Body Systems ToolTHE LATEST
The 2020 Virtual Gala was a Massive Success! We simply cannot express the strength of our gratitude for everyone who participated in the Myotonic Dystrophy Foundation (MDF) 2020 Virtual Gala! We are truly blown away by the incredible outpouring of generosity and support.Read the rest
Supporting Myotonic Dystrophy through Biobank Sample Donations – AFamily Affair
Dr. Katharine Hagerman and Lisa Harvey-Duren share their experience with the Stanford Biobank. Donating the tissue or other clinical specimens of a loved one will help advance treatments for myotonic dystrophy and provides hope that our family and friends will have abetter future.
Read the rest
Will the U.S. Supreme Court Strike Down Obamacare’s Pre-Existing Condition Protections The U.S. Supreme Court met the week after the 2020 election to hear oral arguments in a case which could overturn the Affordable Care Act (ACA), also known as “Obamacare”, and eliminate protections for millions of Americans living with pre-existing conditions likemyotonic dystrophy.
Read the rest
MDF 2020 Virtual Gala We are delighted to invite you to the Myotonic Dystrophy Foundation (MDF) 2020 Virtual Gala. This one hour live streamed event will celebrate and support the MDF's critically important work on behalf of individuals and families living with myotonic dystrophy.Read the rest
ABOUT US
Our Mission
Our Impact
Our History
Our Team
Our Facilitators
Contact Us
Press Room
Office Address
Myotonic Dystrophy Foundation 663 Thirteenth Street, Suite 100 | Oakland, CA 94612Phone & Email
Toll Free (US only): 86-MYOTONIC (866-968-6642) Direct: 415-800-7777info@myotonic.org
__ __
__
__
Sitemap | User Agreement Myotonic Dystrophy Foundation. All rights reserved.Details
Copyright © 2024 ArchiveBay.com. All rights reserved. Terms of Use | Privacy Policy | DMCA | 2021 | Feedback | Advertising | RSS 2.0