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REGISTRYNXT!
The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
REGISTRYNXT!
The system is expected to come back online on Tuesday 8 June 2021. During this time period Case Report Form (CRF) changes across the ICGG Gaucher Registry, Fabry Registry, MPS I Registry and Pompe Registry will be implemented. N OF 1 PORTAL > HOME The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
N OF 1 PORTAL > HOME Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME AGREEMENT BETWEEN USER AND N of 1 Portal. The N of 1 Portal Web Site is comprised of various Web pages operated by N of 1 Portal. The N of 1 Portal Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices containedherein.
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REGISTRYNXT!
The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
REGISTRYNXT!
The system is expected to come back online on Tuesday 8 June 2021. During this time period Case Report Form (CRF) changes across the ICGG Gaucher Registry, Fabry Registry, MPS I Registry and Pompe Registry will be implemented. N OF 1 PORTAL > HOME The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
N OF 1 PORTAL > HOME Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME AGREEMENT BETWEEN USER AND N of 1 Portal. The N of 1 Portal Web Site is comprised of various Web pages operated by N of 1 Portal. The N of 1 Portal Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices containedherein.
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REGISTRYNXT!
The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
REGISTRYNXT!
The system is expected to come back online on Tuesday 8 June 2021. During this time period Case Report Form (CRF) changes across the ICGG Gaucher Registry, Fabry Registry, MPS I Registry and Pompe Registry will be implemented. N OF 1 PORTAL > HOME The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
N OF 1 PORTAL > HOME Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME AGREEMENT BETWEEN USER AND N of 1 Portal. The N of 1 Portal Web Site is comprised of various Web pages operated by N of 1 Portal. The N of 1 Portal Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices containedherein.
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REGISTRYNXT!
The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
REGISTRYNXT!
The system is expected to come back online on Tuesday 8 June 2021. During this time period Case Report Form (CRF) changes across the ICGG Gaucher Registry, Fabry Registry, MPS I Registry and Pompe Registry will be implemented. N OF 1 PORTAL > HOME The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
N OF 1 PORTAL > HOME Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME AGREEMENT BETWEEN USER AND N of 1 Portal. The N of 1 Portal Web Site is comprised of various Web pages operated by N of 1 Portal. The N of 1 Portal Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices containedherein.
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REGISTRYNXT!
The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
REGISTRYNXT!
The system is expected to come back online on Tuesday 8 June 2021. During this time period Case Report Form (CRF) changes across the ICGG Gaucher Registry, Fabry Registry, MPS I Registry and Pompe Registry will be implemented. N OF 1 PORTAL > HOME The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
N OF 1 PORTAL > HOME Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME AGREEMENT BETWEEN USER AND N of 1 Portal. The N of 1 Portal Web Site is comprised of various Web pages operated by N of 1 Portal. The N of 1 Portal Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices containedherein.
USER REGISTRATION
Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME Remember Login . Reset PasswordUSER REGISTRATION
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REGISTRYNXT!
The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
REGISTRYNXT!
The system is expected to come back online on Tuesday 8 June 2021. During this time period Case Report Form (CRF) changes across the ICGG Gaucher Registry, Fabry Registry, MPS I Registry and Pompe Registry will be implemented. N OF 1 PORTAL > HOME The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
N OF 1 PORTAL > HOME Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME AGREEMENT BETWEEN USER AND N of 1 Portal. The N of 1 Portal Web Site is comprised of various Web pages operated by N of 1 Portal. The N of 1 Portal Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices containedherein.
USER REGISTRATION
Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME Remember Login . Reset PasswordUSER REGISTRATION
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REGISTRYNXT
The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
REGISTRYNXT!
The system is expected to come back online on Tuesday 8 June 2021. During this time period Case Report Form (CRF) changes across the ICGG Gaucher Registry, Fabry Registry, MPS I Registry and Pompe Registry will be implemented. N OF 1 PORTAL > HOME The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
N OF 1 PORTAL > HOME Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME AGREEMENT BETWEEN USER AND N of 1 Portal. The N of 1 Portal Web Site is comprised of various Web pages operated by N of 1 Portal. The N of 1 Portal Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices containedherein.
USER REGISTRATION
Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME Remember Login . Reset PasswordUSER REGISTRATION
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REGISTRYNXT
The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
REGISTRYNXT!
The system is expected to come back online on Tuesday 8 June 2021. During this time period Case Report Form (CRF) changes across the ICGG Gaucher Registry, Fabry Registry, MPS I Registry and Pompe Registry will be implemented. N OF 1 PORTAL > HOME The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
N OF 1 PORTAL > HOME Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME AGREEMENT BETWEEN USER AND N of 1 Portal. The N of 1 Portal Web Site is comprised of various Web pages operated by N of 1 Portal. The N of 1 Portal Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices containedherein.
USER REGISTRATION
Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME Remember Login . Reset PasswordUSER REGISTRATION
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REGISTRYNXT
The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
REGISTRYNXT!
The system is expected to come back online on Tuesday 8 June 2021. During this time period Case Report Form (CRF) changes across the ICGG Gaucher Registry, Fabry Registry, MPS I Registry and Pompe Registry will be implemented. N OF 1 PORTAL > HOME The Sanofi Genzyme Rare Disease Registries are a global, observational, and voluntary program designed to track natural history and outcomes of patients with Gaucher, Fabry, MPS I or Pompe disease. Since its inception in 1991, more than 1000 Health Care Professionals from over 65 countries have participated in the Registry andcontributed data
N OF 1 PORTAL > HOME Your session is about to expire! You will be logged out in seconds.. Do you want to stay signed in? N OF 1 PORTAL > HOME AGREEMENT BETWEEN USER AND N of 1 Portal. The N of 1 Portal Web Site is comprised of various Web pages operated by N of 1 Portal. The N of 1 Portal Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices containedherein.
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REPORTING. COLLABORATING. ADVANCING. Helping to improve the quality of care for patients with the rare diseases Gaucher, Fabry, MPS I and Pompe with over 930 participating sites, 1,200 participating HCPs, and 16,000 patients and counting! RegistryNXT! is a novel, web-based data collection and reporting technology platform that underlies the Sanofi Genzyme Rare Disease Registries. The Rare Disease Registries are a global, observational, and voluntary program designed to collect patient clinical data related to the onset, progression, and treatment course of Gaucher, Fabry, MPS I and Pompe diseases. Publication of these data in peer-reviewed biomedical journals is a major emphasis of the Rare Disease Registries. In addition, such data are used to fulfill various global regulatory commitments of Sanofi Genzyme. Regional and International Advisory Boards provide scientific oversight and direction to the Rare Disease Registries. Advisory Board members are physicians with expertise in the diseases included in the Rare Disease Registries and serve as liaisons between the Rare Disease Registries and the respective medical communities. RESEARCHING LYSOSOMAL STORAGE DISORDERS A disease registry can help improve disease understanding by enablingphysicians to:
* Contribute and share data by entering participating patient data and having the ability to report on and share that data with other practitioners or their patient in near real time. * Gain insight and understanding of the variations in the disease across multiple patients and assessing an individual patient’s progress compared to that of other patient’s, through aggregate datareporting.
* Improve research globally by contributing their data to aggregate analyses to help understand progression of the disease and ultimately improve patient care. LEARN MORE ABOUT THE SANOFI GENZYME RARE DISEASE REGISTRIES For Patients and Families, click here. For Healthcare Professionals, click here.To Register
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