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Text
THE TEARS
Let’s change that right now. The Caregiver Space isn’t a front for a pharmaceutical company, a healthcare conglomerate, or the government. We’re a bunch of caregivers from all walks of life, coming together to support each other. We can be totally honest about our experiences because this is a judgement-free-zone. WHAT IS CAREGIVER STRESS SYNDROME AND ITS SYMPTOMS? The excessive stress felt by caregivers manifests in a variety of ways. They include: Depression. Feelings of overwhelm or constant worry. Weight loss or gain. Not setting aside time for yourself. Physical problems like headaches, stomach upset and muscle soreness. Tiredness. Losing interest in activities you loved. HOW TECHNOLOGY IS IMPROVING PATIENT CARE New Technology Is Making Positive Changes In Healthcare. With all that aside, technology is slowly proving how much of a positive impact it can make on the healthcare industry. 3D printing can be used for custom dental work or hearing aids. Virtual reality can be used to help a patient with PTSD or ease their anxiety pre- or post-surgery. PROGRAMS THAT ACTUALLY PAY FAMILY CAREGIVERS FOR THEIR The brother-in-law living in a MA group home costs the government approximately $300,000 per year. To care for my other special needs brother-in-law, I get paid $30,000 per year, tax free. Just look at that massive difference! Government saves $270,000 annually and I make a living wage. Win-win. CAN CAREGIVING LEAD TO PTSD? Risk factors for PTSD will sound familiar to family caregivers. They include: Living through dangerous events and traumas. Seeing another person hurt, or seeing a dead body. Feeling horror, helplessness, or extreme fear. Having little or no social support after the event. Dealing with extra stress after the event, such as loss of a loved one A THANK YOU TO OUR HOSPICE CARERS October 10th was World Hospice Day. We asked our community how hospice helped them and their families. This is what they had to say: Thank You! In a world, fearful of death and dying, hospice caregivers, understand the journey in a way that other healthcare professionalsdon’t.
HOW DO WE COPE WITH ANGER AS A CAREGIVER? We all recognize that caregiving is a complex task. It can bring a new closeness with the person you are caring for. It can inevitably bring a flood of emotions including compassion, nostalgia, gratitude, devotion, frustration, grief, sadness, love, guilt, and anger. HOW SOCIAL INTERACTION PLAYS A PRINCIPAL ROLE IN DEMENTIA Engaging in group exercises builds a strong social circle, improves mood, boosts physical strength, and reduces the risk of age-related ailments. 4. Socializing Improves the Overall Quality of Life. Dementia can significantly impact your senior’s quality of life, causing him/her to feel isolated, agitated, frustrated, depressed, andembarrassed.
THE SECRET TO COUNTING YOUR BLESSINGS: A JEWISH STORY The secret to counting your blessings: A Jewish story. Counting our blessings is not something that always comes naturally. Often it’s easier to count our problems. We are late on a project. Our house needs work. If, God forbid, we have a serious health problem or lose our job, it can consume us. Focusing on our problems, we sometimes HOW TO HELP A PARENT WHO REFUSES TO BATHE OR SHOWER Study their reaction. When you take your loved one to the bathroom, fill the tub with 2-3 inches of water—or turn on the shower—and wait for their reaction. If they become agitated, drop the idea of bathing them that day. If, however, they seem comfortable, fill in more water after they’ve gotten in. THE CAREGIVER SPACE, A PLACE FOR ALL CAREGIVERSGRIEFHOUSINGCAN'T STOPTHE TEARS
Let’s change that right now. The Caregiver Space isn’t a front for a pharmaceutical company, a healthcare conglomerate, or the government. We’re a bunch of caregivers from all walks of life, coming together to support each other. We can be totally honest about our experiences because this is a judgement-free-zone. WHAT IS CAREGIVER STRESS SYNDROME AND ITS SYMPTOMS? The excessive stress felt by caregivers manifests in a variety of ways. They include: Depression. Feelings of overwhelm or constant worry. Weight loss or gain. Not setting aside time for yourself. Physical problems like headaches, stomach upset and muscle soreness. Tiredness. Losing interest in activities you loved. HOW TECHNOLOGY IS IMPROVING PATIENT CARE New Technology Is Making Positive Changes In Healthcare. With all that aside, technology is slowly proving how much of a positive impact it can make on the healthcare industry. 3D printing can be used for custom dental work or hearing aids. Virtual reality can be used to help a patient with PTSD or ease their anxiety pre- or post-surgery. PROGRAMS THAT ACTUALLY PAY FAMILY CAREGIVERS FOR THEIR The brother-in-law living in a MA group home costs the government approximately $300,000 per year. To care for my other special needs brother-in-law, I get paid $30,000 per year, tax free. Just look at that massive difference! Government saves $270,000 annually and I make a living wage. Win-win. CAN CAREGIVING LEAD TO PTSD? Risk factors for PTSD will sound familiar to family caregivers. They include: Living through dangerous events and traumas. Seeing another person hurt, or seeing a dead body. Feeling horror, helplessness, or extreme fear. Having little or no social support after the event. Dealing with extra stress after the event, such as loss of a loved one A THANK YOU TO OUR HOSPICE CARERS October 10th was World Hospice Day. We asked our community how hospice helped them and their families. This is what they had to say: Thank You! In a world, fearful of death and dying, hospice caregivers, understand the journey in a way that other healthcare professionalsdon’t.
HOW DO WE COPE WITH ANGER AS A CAREGIVER? We all recognize that caregiving is a complex task. It can bring a new closeness with the person you are caring for. It can inevitably bring a flood of emotions including compassion, nostalgia, gratitude, devotion, frustration, grief, sadness, love, guilt, and anger. HOW SOCIAL INTERACTION PLAYS A PRINCIPAL ROLE IN DEMENTIA Engaging in group exercises builds a strong social circle, improves mood, boosts physical strength, and reduces the risk of age-related ailments. 4. Socializing Improves the Overall Quality of Life. Dementia can significantly impact your senior’s quality of life, causing him/her to feel isolated, agitated, frustrated, depressed, andembarrassed.
THE SECRET TO COUNTING YOUR BLESSINGS: A JEWISH STORY The secret to counting your blessings: A Jewish story. Counting our blessings is not something that always comes naturally. Often it’s easier to count our problems. We are late on a project. Our house needs work. If, God forbid, we have a serious health problem or lose our job, it can consume us. Focusing on our problems, we sometimes HOW TO HELP A PARENT WHO REFUSES TO BATHE OR SHOWER Study their reaction. When you take your loved one to the bathroom, fill the tub with 2-3 inches of water—or turn on the shower—and wait for their reaction. If they become agitated, drop the idea of bathing them that day. If, however, they seem comfortable, fill in more water after they’ve gotten in. HOW TO ENCOURAGE THE ELDERLY TO EXERCISE Set short-term goals. This is one of the best strategies to keep your loved one motivated. By setting these goals, seniors are motivated to continue their exercise. Make sure you do not include weight loss in these short-term goals. More important goals could WHAT HAPPENS WHEN THE CAREGIVER GETS SICK? What Happens When the Caregiver Gets Sick? While the patient may get all the attention, caregivers can easily go unnoticed. Often the primary caregiver is a family member who has been suddenly thrust into this demanding role and they’re unprepared, untrained and ill equipped emotionally or even physically to handle it. WITH CANCER AND DEMENTIA, THE CAREGIVER MUST BE HYPER It improves a caregiver’s self-esteem and can also help during time of bereavement. The support a caregiver receives, in effect, makes them more resilient. Researchers agree that more standards of care protocol need to be implemented when it comes to dealing with dementia paired with cancer. As medicine advances to where we keep gettingolder
TIPS TO DEAL WITH A CONTROLLING AGING LOVED ONE Kurt Kazanowski is an author, speaker, coach and consultant in the areas of aging, hospice and home care.He is a native of Detroit, Michigan, and has over three decades of experience in the field of healthcare. He received his bachelor’s degree in nursing from Mercy College of Detroit and practiced as a public health nurse for manyyears.
HOW TO TALK TO SOMEONE WITH ALZHEIMER’S Do not talk down to them as if they do not exist. Use sight, touch, taste, and smell as the primary source of communication. Just be there for them. They may no longer be able to recognize you, but your presence will be comforting to them. Caring for someone withAlzheimer’s is
CAREGIVING 101
What has God got to do with it? Part 2. by Bob Harrison | Feb 10, 2015 | baby boom, Because of Annie, Caregiver Stories, long-term, Partner | 2 comments. Miracle or coincidence? This is part 2 of What has God got to do with it? You can read part 1 here. 15 August, 2008 The following statement from Dr. Moore Sr., Annie’s Oncologist, was made on the fifth day of her hospital stay. THE CAREGIVER’S TOOLBOX Caregivers share the essential knowledge, tips, and tricks that maketheir lives easier.
8 SCIENCE-BACKED HEALTH BENEFITS TO WALKING FOR SENIORS Walking may be the best form of physical exercise for seniors. Packed with health benefits, walking has all of the hallmarks of senior-friendly physical exercise: it can be performed at low or moderate intensity, it’s easy on joints, it has a low risk of injury, and it’s easy to get started with. CARING FOR DEMENTIA PATIENTS AT HOSPITALS The hospital should ensure that the care for a dementia patient is based on the specific needs of that individual. Their preferences and understanding of their abilities are crucial when developing a care plan. Moreover, to make the patient more comfortable in the hospital environment, family and friends should also be involved in the careplan.
CAREGIVING 101
Essential information for caregivers on a wide range of topics. Why a ‘miracle’ drug exists but you can’t have it yet. by Guest Author | Mar 15, 2015 | Caregiving 101, For Friends & Family | 0 comments. It’s supposedly getting easier for innovative drugs for rare diseases like Duchenne muscular dystrophy to reach the market. THE CAREGIVER SPACE, A PLACE FOR ALL CAREGIVERSGRIEFHOUSINGCAN'T STOPTHE TEARS
Let’s change that right now. The Caregiver Space isn’t a front for a pharmaceutical company, a healthcare conglomerate, or the government. We’re a bunch of caregivers from all walks of life, coming together to support each other. We can be totally honest about our experiences because this is a judgement-free-zone. HOW TECHNOLOGY IS IMPROVING PATIENT CARE New Technology Is Making Positive Changes In Healthcare. With all that aside, technology is slowly proving how much of a positive impact it can make on the healthcare industry. 3D printing can be used for custom dental work or hearing aids. Virtual reality can be used to help a patient with PTSD or ease their anxiety pre- or post-surgery. WITH CANCER AND DEMENTIA, THE CAREGIVER MUST BE HYPER It improves a caregiver’s self-esteem and can also help during time of bereavement. The support a caregiver receives, in effect, makes them more resilient. Researchers agree that more standards of care protocol need to be implemented when it comes to dealing with dementia paired with cancer. As medicine advances to where we keep gettingolder
LIVING A NORMAL LIFE AFTER SURVIVING A STROKE Living a Normal Life after Surviving a Stroke. A stroke is considered by many as a form of “brain attack”. It starts with sudden dizziness, headaches, and numbness in the face, arm, and legs on one side of the body. A stroke is mostly caused by a blocked artery or a burst of a blood vessel that causes a temporary disruption of bloodflow to
CAREGIVING AND RESENTMENT Caregiving and resentment. Resentment seems to be a regular companion for caregivers. It comes in flash points when we feel presumed upon, undervalued, and unappreciated. That resentment, however, cripples us as caregivers far more than it negatively affects others. A pianist for even longer than my three decades as a caregiver, I often find 8 SCIENCE-BACKED HEALTH BENEFITS TO WALKING FOR SENIORS Walking may be the best form of physical exercise for seniors. Packed with health benefits, walking has all of the hallmarks of senior-friendly physical exercise: it can be performed at low or moderate intensity, it’s easy on joints, it has a low risk of injury, and it’s easy to get started with. THE FAMILY CAREGIVER’S GUIDE TO ADAPTIVE CLOTHING Buck & Buck has been selling adaptive clothing for men and women since 1978 and offers items like velcro-closure trousers and shirts for easier dressing as well as zipper-back garments for dementia patients who sometimes need assistance to stay dressed during the day. CareZips makes an easy-to-access casual pant to make adult undergarment WHAT’S YOUR ADVICE TO THOSE CARING FOR SOMEONE THAT’S What’s your advice for those caring for someone that’s dying? Share with us. Christy P: Keep them as comfortable as possible, encourage laughter, and make sure they feel well-loved and preserve as much of their dignity as possible. That’s really about all you WHEN CAREGIVING MEANS SELLING YOUR HOME So, if you bought a home for $100k, spent $25k in renovations, and sold it for $250k, the IRS sees $125k as the price you paid for the home and you get $125k in tax-free profit. If you own your home with someone you aren’t married to, you can each claim the $250k tax exemption, for a total of $500k, as long as you both qualify. WHAT 40 STEPS TAUGHT ME ABOUT LOVE AND GRIEF What 40 steps taught me about love and grief. When I took the stage last spring to share insights on love, caregiving and loss, my deepest desire was to stand in the truth of what I know. I hoped to communicate the universal need for unconditional love and connection in our daily lives. It was brave, bold and lovingly terrifying. THE CAREGIVER SPACE, A PLACE FOR ALL CAREGIVERSGRIEFHOUSINGCAN'T STOPTHE TEARS
Let’s change that right now. The Caregiver Space isn’t a front for a pharmaceutical company, a healthcare conglomerate, or the government. We’re a bunch of caregivers from all walks of life, coming together to support each other. We can be totally honest about our experiences because this is a judgement-free-zone. HOW TECHNOLOGY IS IMPROVING PATIENT CARE New Technology Is Making Positive Changes In Healthcare. With all that aside, technology is slowly proving how much of a positive impact it can make on the healthcare industry. 3D printing can be used for custom dental work or hearing aids. Virtual reality can be used to help a patient with PTSD or ease their anxiety pre- or post-surgery. WITH CANCER AND DEMENTIA, THE CAREGIVER MUST BE HYPER It improves a caregiver’s self-esteem and can also help during time of bereavement. The support a caregiver receives, in effect, makes them more resilient. Researchers agree that more standards of care protocol need to be implemented when it comes to dealing with dementia paired with cancer. As medicine advances to where we keep gettingolder
LIVING A NORMAL LIFE AFTER SURVIVING A STROKE Living a Normal Life after Surviving a Stroke. A stroke is considered by many as a form of “brain attack”. It starts with sudden dizziness, headaches, and numbness in the face, arm, and legs on one side of the body. A stroke is mostly caused by a blocked artery or a burst of a blood vessel that causes a temporary disruption of bloodflow to
CAREGIVING AND RESENTMENT Caregiving and resentment. Resentment seems to be a regular companion for caregivers. It comes in flash points when we feel presumed upon, undervalued, and unappreciated. That resentment, however, cripples us as caregivers far more than it negatively affects others. A pianist for even longer than my three decades as a caregiver, I often find 8 SCIENCE-BACKED HEALTH BENEFITS TO WALKING FOR SENIORS Walking may be the best form of physical exercise for seniors. Packed with health benefits, walking has all of the hallmarks of senior-friendly physical exercise: it can be performed at low or moderate intensity, it’s easy on joints, it has a low risk of injury, and it’s easy to get started with. THE FAMILY CAREGIVER’S GUIDE TO ADAPTIVE CLOTHING Buck & Buck has been selling adaptive clothing for men and women since 1978 and offers items like velcro-closure trousers and shirts for easier dressing as well as zipper-back garments for dementia patients who sometimes need assistance to stay dressed during the day. CareZips makes an easy-to-access casual pant to make adult undergarment WHAT’S YOUR ADVICE TO THOSE CARING FOR SOMEONE THAT’S What’s your advice for those caring for someone that’s dying? Share with us. Christy P: Keep them as comfortable as possible, encourage laughter, and make sure they feel well-loved and preserve as much of their dignity as possible. That’s really about all you WHEN CAREGIVING MEANS SELLING YOUR HOME So, if you bought a home for $100k, spent $25k in renovations, and sold it for $250k, the IRS sees $125k as the price you paid for the home and you get $125k in tax-free profit. If you own your home with someone you aren’t married to, you can each claim the $250k tax exemption, for a total of $500k, as long as you both qualify. WHAT 40 STEPS TAUGHT ME ABOUT LOVE AND GRIEF What 40 steps taught me about love and grief. When I took the stage last spring to share insights on love, caregiving and loss, my deepest desire was to stand in the truth of what I know. I hoped to communicate the universal need for unconditional love and connection in our daily lives. It was brave, bold and lovingly terrifying. PROGRAMS THAT ACTUALLY PAY FAMILY CAREGIVERS FOR THEIR The brother-in-law living in a MA group home costs the government approximately $300,000 per year. To care for my other special needs brother-in-law, I get paid $30,000 per year, tax free. Just look at that massive difference! Government saves $270,000 annually and I make a living wage. Win-win. HOW TO TALK TO SOMEONE WITH ALZHEIMER’S Do not talk down to them as if they do not exist. Use sight, touch, taste, and smell as the primary source of communication. Just be there for them. They may no longer be able to recognize you, but your presence will be comforting to them. Caring for someone withAlzheimer’s is
WHAT DO WE OWE ABUSIVE PARENTS? Every year over 500 children in the US are murdered by their parents. In fact, that number is a low estimate. Other organizations say over 1,500 children died of abuse or neglect in 2012. 80% of murdered children are under the age of 7. TIPS TO DEAL WITH A CONTROLLING AGING LOVED ONE Kurt Kazanowski is an author, speaker, coach and consultant in the areas of aging, hospice and home care.He is a native of Detroit, Michigan, and has over three decades of experience in the field of healthcare. He received his bachelor’s degree in nursing from Mercy College of Detroit and practiced as a public health nurse for manyyears.
CAREGIVING 101
Essential information for caregivers on a wide range of topics. Why a ‘miracle’ drug exists but you can’t have it yet. by Guest Author | Mar 15, 2015 | Caregiving 101, For Friends & Family | 0 comments. It’s supposedly getting easier for innovative drugs for rare diseases like Duchenne muscular dystrophy to reach the market. CAN CAREGIVING LEAD TO PTSD? Risk factors for PTSD will sound familiar to family caregivers. They include: Living through dangerous events and traumas. Seeing another person hurt, or seeing a dead body. Feeling horror, helplessness, or extreme fear. Having little or no social support after the event. Dealing with extra stress after the event, such as loss of a loved one WHAT HAPPENS WHEN THE CAREGIVER GETS SICK? What Happens When the Caregiver Gets Sick? While the patient may get all the attention, caregivers can easily go unnoticed. Often the primary caregiver is a family member who has been suddenly thrust into this demanding role and they’re unprepared, untrained and ill equipped emotionally or even physically to handle it.CAREGIVING 101
Grief and the empty bed. by Bob Harrison | May 4, 2015 | baby boom, Because of Annie, Caregiver Stories, long-term, Partner | 0 comments. When you look at Annie’s hospital bed, what do you see? I see colorful pillows, a colorful hot air balloon-fleece tied blanket-hand made by Annie, a colorful sheet, beauty, but most of all I see love, and feel a deep sadness and loneliness over the loss of PAID CAREGIVING VS. UNPAID CAREGIVING: WHAT YOU SHOULD 1. Freedom of Choice. Unpaid caregiving is free of any requirement to certify or take courses. In government programs, the government specifies what the caregiver has to learn and may also specify other regulations and restrictions in exchange for the payment. Unpaid caregivers may make any arrangements they wish in giving care. AN INTROVERT’S GUIDE TO SENIOR LIVING COMMUNITIES A few years ago, I took my 77-year-old mom, a classic introvert, on a tour of senior living communities. I wanted to show her how much easier life could be if she and Dad rented an independent living apartment and didn’t have to cook all their meals.* RSS
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My MOM has CANCER and I TAKE HER TO APPOINTMENTS My GIRLFRIEND has CELIACS and I COOK HEALTHY MEALS FOR US My BROTHER has SCHIZOPHRENIA and I DON’T KNOW HOW TO SUPPORT HIM My BROTHER has A TBI and IHELP HIM EVERY DAY
My ROOMMATE has CHRONIC FATIGUE and I TRY TO BE THERE FOR HER ANY WAY I CAN My DAD had A CAR ACCIDENT and I MOVED HOME WHILE HE RECOVERS My WIFE has POTS and I DO ALL THE HOUSEWORK AND CHILDCARE My GRANDFATHER has ALS and I MOVED IN WITH HIM TO HELP My BFF has MS and I AM ALWAYS GOING TO BE THERE FOR HER My MOTHER is ON HOSPICE and I DROPPED OUT OF SCHOOL TO BE WITH HER My HUSBAND has CANCER and I WONDER IF WE’LL EVER HAVE KIDS My GRANDSON has AUTISM and I TAKE CARE OF HIM ON TUESDAYS My EX has AIDS and I GO TO ALL OF THEIR DOCTOR APPOINTMENTS My GRANDDAUGHTER has LYME DISEASE and SHE STAYS WITH ME WHEN SHE’S TOO SICK FOR SCHOOL My SISTER has CEREBRAL PALSY and I KNOW SHE’LL MOVE IN WITH ME ONE DAY My UNCLE has A DRUG ADDICTION and I TAKE CARE OF HIS FINANCES My FIANCEE has AN UNDIAGNOSED CONDITION and I SUPPORT US BOTH WHILE WE FIGURE THINGS OUT My NEIGHBOR had HER HIP REPLACED and I RUN HER ERRANDS AND MOW HER LAWN My COUSIN has EARLY ONSET ALZ and I VISIT HER THREE TIMES A WEEK My SIGNIFICANT OTHER has AN AUTOIMMUNE DISEASE and we TAKE CARE OF EACH OTHER My ABUELA is 96 and I MOVED ACROSS THE COUNTRY TO TAKE CARE OF HER My SISTER has DIABETES and I STAYED WITH HER FOR SIX MONTHS AFTER HER LEG WAS AMPUTATED My DAUGHTER has BORDERLINE PERSONALITY DISORDER and I HELP HER MANAGE HER TREATMENT PLAN AND SUPPORT HER My DAD has DEMENTIA and I HAVE MANAGED HIS CARE FOR 14 YEARS My HUSBAND has DEGENERATIVE DISK DISEASE and I DO EVERYTHING HE USED TO DO AROUND THE HOUSE My DAD has ESRD and I USE ALL OF MY VACATION TO BE WITH HIM My HALF-SISTER has LUPUS and I MOVED NEXT DOOR SO I CAN WATCH HER KIDS My DAUGHTER had CYSTIC FIBROSIS and I GAVE UP MY CAREER TO TAKE CARE OF HER My EX-HUSBAND had A STROKE and I FEEL TORN ABOUT MY ROLE IN HIS CARE My MOM has COPD and I WORRY HOW I’LL PAY FOR HER CAREPreviousNext
Share your hard earned lessons and let your voice be heard. Here’show .
HURTFUL WORDS MAY COME WITH THE CAREGIVING TERRITORYPartner
In 2013 the connection between my husband’s Dacron descending aorta and his real aorta failed. John was bleeding to death. Surgeons operated on him three times in a desperate attempt to staunch blood loss. During the last operation—13 hours and four surgeons—he...Harriet Hodgson 0
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13 Aug
I MISSED FOUR WEEKS’ SCHOOL A YEAR CARING FOR MY SICK MUMmillennial parent
working
family caregivers
His mum had come to the UK from Bangladesh as a 19-year-old bride, so there was little support from extended family - but it was an accident when Thupayal was 15 and his brother, Mohammed, 11 that truly turned their lives upside down. Thupayal had to take charge of...External Article 0
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8 Aug
IN MED SCHOOL, A MISSION FOUND ME. BUT IT WILL NEVER BE JUST A JOB — CANCER AND GRIEF BROUGHT ME TO ITArt
Finances
grief
A young widow who lost her husband to cancer nearly drowned in grief and medical debt. Now Fumiko Chino is a cancer doctor who sees her own tragedy play out in other patients. Too often people are underinsured and financially burdened by the cost of cancer care. Faced...External Article 0
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11 Aug
WHAT CAUSES CAREGIVER DEPRESSION?Caregiving 101
Finding
support
When a loved one falls ill or get injured, it's never easy for anyone. It's especially difficult to see your family member or friend hurting, which is why loved ones will drop everything to care for those that are closest to them. In some cases, that care extends well...Kayla Matthews 0
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6 Aug
UNSUNG HEROES: VICTOR FROM MAINTENANCECaregiver Stories
Victor is one of Houselink’s maintenance workers — officially, he and two other workers are responsible for fixing what’s broken at Houselink’s 22 properties around Toronto. A lot of the work involves scrambling to cover urgent fixes like ruptured pipes, broken...External Article 0
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8 Aug
WHY MY PARENTS NEVER CAME TO LIVE WITH MEHousing
parent
Why didn’t my parents move in with me when they needed help? I didn’t invite them and they wouldn’t have wanted to come. Why not? Well, first, no one could accuse me of having the qualities that make a good carer. On the occasions when my dad has come to stay with us...External Article 0
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2 Aug
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THIS IS WHAT OUR DAYS ARE REALLY LIKE. Each of our lives is so different, but we have so many things in common, too. Tag your Instagram photos with #FACESOFCARE to show the real people who are supporting so many others. ON FACEBOOK? US, TOO WHENEVER YOU WANT TO TALK, THERE’S ALWAYS SOMEONE UP IN ONE OF OUR FACEBOOK COMMUNITIES. These private Facebook groups are a safe space for support and encouragement — or getting it off your chest.Join the group
w
CAREGIVING PARENTS
Taking care of a child (or grandchild or client) with special needs, a disability, a chronic or acute illness? Here's the place for you toconnect.
w
SPOUSAL CARE
Here's the place to talk about what it's like to take care of your partner, husband, wife, girlfriend, boyfriend, ex, or anyone else you're in (or have been in) a romantic relationship with.w
ELDERCARE
Caring for seniors has unique challenges, especially when Alzheimer's and dementia are involved.w
ALL CAREGIVERS
All caregivers are welcome here. This is our most active group and a great place for 24/7 support.w
LONG-TERM CARE
Some conditions are life-long, others are simply long lasting. Here's a place to talk about caregiving that lasts for years.w
AFTER CAREGIVING
Life goes on after caregiving ends. Some of us are here to grapple with grief. Others are celebrating recoveries. All of us are forever changed by the experience.w
LGBTQIAP+
All of our groups are LGBTQIAP+ inclusive, but this is a great space to share issues specific to the queer community, including polyamory and supporting someone in transition.w
YOUNG CAREGIVERS
Young caregivers are often left out of the conversation. Here's a place for people under 35 to share their experiences and support eachother.
w
CAREGIVING DAUGHTERS Women are seen as natural caregivers, to spouses, children, parents, and other family members.w
CAREGIVING SONS
Are you one of the millions of men providing caregiving support to friends, family, and clients? Join the conversation here. THIS IS A SPACE FOR EVERYONE WHO PROVIDES CARE, NO MATTER WHO YOU ARE OR WHERE YOU ARE IN YOUR CAREGIVING JOURNEY DIFFERENT SITUATIONS,SAME ISSUES.
People approach caregiving like it’s a personal issue. It’s not personal when all of us face the responsibility of providing support for the ill, disabled, and elderly people in our lives. THERE’S NO ONE TYPE OF CAREGIVER. Most of us don’t even identify with the term “caregiver,” so how do we find support? There’s no one demographic in caregiving, it touches everyone. We need organizations that will give us the support we need in the way we and our loved ones need. IT’S MORE THAN BEING A GOOD FRIEND. The healthcare industry has shifted more and more of the responsibilities of keeping people alive and safe onto friends and family — and health aids with little training, support, or pay. EVERYONE DESERVES SUPPORT. We don’t care how many hours you put in or how long you’ve been doing it. If supporting someone in your life is on your mind every day, YOU BELONG HERE. THIS IS A SPACE FOR EVERYONE PROVIDING CARE. Lots of organizations have rules for who can be a part — or ways to make people like us feel unwelcome. This is a community of people who aspire to be empathetic, generous, understanding, and patient — to the people we support, to each other, and to ourselves.JOIN #FACESOFCARE
Cori will send you our best about once a week, because there are no grand solutions, but there are a thousand little ways to make ourlives better.
SUCCESS!
First Name
list with anyone.
JOIN #FACESOFCARE
Cori will send you our best about once a week, because there are no grand solutions, but there are a thousand little ways to make ourlives better.
SUCCESS!
First Name
list with anyone.
I'M DEALING WITH
FINANCES
HOUSING
PLANNING
WORK
BURNOUT
RELATIONSHIPS
DYING
GRIEF
AFTER CAREGIVING
I'M COPING BY
JOURNALING
GETTING ACTIVE
EATING HEALTHY
FINDING MEANING
FINDING SUPPORT
SELF CARE
I'M CARING FOR MY
CLIENT
FRIEND
PARTNER
CHILD
PARENT
SIBLING
GRANDCHILD
GRANDPARENT
OTHER RELATIVE
NEIGHBOR
CAREGIVER
I'M PROVIDING SUPPORTOCCASIONALLY
24/7
LONG-DISTANCE
SHORT-TERM
LONG-TERM
I AM PART OF
GENERATION Z
THE MILLENNIALS
GENERATION X
SANDWICH GENERATION
THE BABY BOOM
THE SILENT GENERATION COMMUNITY, NOT CORPORATIONS There are millions of caregivers in the world, so why do we all feel so alone? Let’s change that right now. The Caregiver Space isn’t a front for a pharmaceutical company, a healthcare conglomerate, or the government. We’re a bunch of caregivers from all walks of life, coming together to support eachother.
We can be totally honest about our experiences because this is a judgement-free-zone. Our experiences are all different, but we get it. NOT EVERYONE HAS FRIENDS WHO UNDERSTAND OR WILL EVEN LISTEN; THAT’SWHY WE’RE HERE.
We provide a safe and open space—at no cost—where you can be real about what it’s like to care for someone dealing with a serious disability or illness. No matter what stage you are in your caregiver journey—whether you currently care for someone, are about to, or did it in the past—YOU’RE WELCOME HERE. Our community of caregivers is a place to ask questions, share experiences, get real answers, or just get things off your chest. Please do not use this space as a substitute for professional advice. We’re your friends, not your doctor. This nonprofit is funded by Adrienne Gruberg, a former family caregiver, and those of you who make donations . We also make a few dollars each month through Google Adsense and Amazon Smile.
ADRIENNE GRUBERG
Adrienne took care of her husband and mother in law until they died of cancer. She founded the site to support other caregivers.BOB HARRISON
Bob took care of his wife until she died of cancer. He’s an authorand moderator.
CORI CARL
Cori is in charge of keeping the organization up and running. FOUNDED BY CAREGIVERS, RUN BY CAREGIVERS. We share real advice from real caregivers.
You’ll find yourself reflected in stories from other caregivers.
Share your hard earned lessons and let your voice be heard. Here’show .
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GUIDELINES & MODERATION COMMUNITY GUIDELINES// AUTHOR
GUIDELINES
// MODERATOR
GUIDELINES
Everyone is entitled to their opinion. Remember THERE IS ANOTHER HUMAN BEING WHO IS LIKELY EXPERIENCING SOME PAIN ON THE OTHER END OF THE COMPUTER. We are here to support each other, not make caregivingharder.
As a community that welcomes all forms of diversity, WE ENCOURAGE A MULTITUDE OF VOICES AND PERSPECTIVES.TERMS & CONDITIONS
TERMS OF USE // PRIVACYPOLICY
// COPYRIGHT
POLICY
The Caregiver Space, Inc. is a peer support community. The information on The Caregiver Space is for informational purposes only, and is not a substitute for legal advice, medical advice, diagnosis, or treatment. Please consult your healthcare provider with any questions regarding medication or treatment. The views expressed by authors, volunteers, and members of The Caregiver Space are their own and do not necessarily reflect the views of The Caregiver Space, Inc. YOUR DATA, COOKIES & ADS ON THE SITE We use Google Adsense and Amazon Affiliates to offset a small portion of the costs of running this nonprofit. We use Google Analytics to keep track of our site traffic and MailChimp to manage our newsletter. Our forms are powered by Typeform and we use Hootsuite for our social media accounts. This website runs on WordPress using Elegant Themes and is hosted on Siteground.
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