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SUPPORT GROUPS
Local support groups. Usually run by transplant patient, these groups consist of pre- and post-transplant patients and their families. They allow members who have already had their transplant to help you with the adjustment to a more normal, everyday lifestyle. HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. EMOTIONAL ASPECTS OF WAITING CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps you COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D).HOUSING COSTS
Year 1+ after surgery. You will visit your transplant hospital every 3-4 months for lab work and once a year for a visit with your doctor. Housing costs can add up quickly. To help defray some of these costs, you may be able to claim your medical-related travel, transportation,SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for yourSUPPORT GROUPS
Local support groups. Usually run by transplant patient, these groups consist of pre- and post-transplant patients and their families. They allow members who have already had their transplant to help you with the adjustment to a more normal, everyday lifestyle. HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. EMOTIONAL ASPECTS OF WAITING CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps you COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D).HOUSING COSTS
Year 1+ after surgery. You will visit your transplant hospital every 3-4 months for lab work and once a year for a visit with your doctor. Housing costs can add up quickly. To help defray some of these costs, you may be able to claim your medical-related travel, transportation,SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were forTREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
AFTER THE TRANSPLANT Follow your team’s pain management instructions to make the overall experience as comfortable as possible. Transplant is major surgery. It may take time to get back to eating normally, moving around, and managing your own care. Don’t be discouraged. Most recipients report feeling much better just after transplant. Others take longer toadjust.
PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. THE KIDNEY TRANSPLANT WAITLIST The kidney transplant waitlist is a list of people waiting for a kidney from someone who has died. You have to be on the waitlist or approved by a transplant center if you want a transplant, even if you find a living donor. UNOS (United Network for Organ Sharing) finds matches between people on the waitlist and donated kidneys.CAN I BE A DONOR?
Living donors must be at least 18 years old, mentally able to make a good decision, and in good health. Different transplant centers have different limits on who can donate. To donate, you can’t have: High blood pressure that can’t be lowered with medicine. Diabetes. FREQUENTLY ASKED QUESTIONS kidney. This is the most frequent type of living organ donation. All living kidney donors will experience a decrease in their kidney function, which varies depending on the donor’s age and medical history. liver. Individuals can donate a segment of the liver, whichhas the ability to
LIVING DONATION COSTS Insurance. Living donation may have a negative impact on the ability to obtain, maintain, or afford health, disability and life insurance. It is important to talk with your transplant center and your current insurance provider(s) regarding if being a living donor could affectyour coverage.
STORIES OF HOPE FOR HEART PATIENTS Jen Lentini: Heart transplant recipient 7/6/96. Heart, Stories, UNOS Ambassador. I waited in hospital three months and received my heart transplant from a young boy named Matthew. His mother chose to give the gift of life to myself and many others. July 6, 1996 is myrebirth-day.
PSYCHOLOGICAL AND FINANCIAL INTERVIEWS The psychological interview checks on your mental health and helps you deal with the emotions of a transplant. You will talk with a psychiatrist, psychologist, or a social worker about your support system (family and friends who will help you after transplant), and your ability to cope with caring for a transplant. STORIES OF HOPE FOR LIVER PATIENTS Never knew I was sick. Liver. I woke up one Sunday morning in March, 2017 with my left arm swollen. I thought it was my heart so I went to a local ER and was diagnosed with cirrhosis and told I would need a transplant in 1 1/2 -2 years. I asked for a referral to Ohio State ,was admitted for 22
HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for yourSUPPORT GROUPS
Local support groups. Usually run by transplant patient, these groups consist of pre- and post-transplant patients and their families. They allow members who have already had their transplant to help you with the adjustment to a more normal, everyday lifestyle. HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. EMOTIONAL ASPECTS OF WAITING CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps you COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D).HOUSING COSTS
Year 1+ after surgery. You will visit your transplant hospital every 3-4 months for lab work and once a year for a visit with your doctor. Housing costs can add up quickly. To help defray some of these costs, you may be able to claim your medical-related travel, transportation,SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for yourSUPPORT GROUPS
Local support groups. Usually run by transplant patient, these groups consist of pre- and post-transplant patients and their families. They allow members who have already had their transplant to help you with the adjustment to a more normal, everyday lifestyle. HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. EMOTIONAL ASPECTS OF WAITING CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps you COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D).HOUSING COSTS
Year 1+ after surgery. You will visit your transplant hospital every 3-4 months for lab work and once a year for a visit with your doctor. Housing costs can add up quickly. To help defray some of these costs, you may be able to claim your medical-related travel, transportation,SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were forTREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
AFTER THE TRANSPLANT Follow your team’s pain management instructions to make the overall experience as comfortable as possible. Transplant is major surgery. It may take time to get back to eating normally, moving around, and managing your own care. Don’t be discouraged. Most recipients report feeling much better just after transplant. Others take longer toadjust.
PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. THE KIDNEY TRANSPLANT WAITLIST The kidney transplant waitlist is a list of people waiting for a kidney from someone who has died. You have to be on the waitlist or approved by a transplant center if you want a transplant, even if you find a living donor. UNOS (United Network for Organ Sharing) finds matches between people on the waitlist and donated kidneys.CAN I BE A DONOR?
Living donors must be at least 18 years old, mentally able to make a good decision, and in good health. Different transplant centers have different limits on who can donate. To donate, you can’t have: High blood pressure that can’t be lowered with medicine. Diabetes. FREQUENTLY ASKED QUESTIONS kidney. This is the most frequent type of living organ donation. All living kidney donors will experience a decrease in their kidney function, which varies depending on the donor’s age and medical history. liver. Individuals can donate a segment of the liver, whichhas the ability to
LIVING DONATION COSTS Insurance. Living donation may have a negative impact on the ability to obtain, maintain, or afford health, disability and life insurance. It is important to talk with your transplant center and your current insurance provider(s) regarding if being a living donor could affectyour coverage.
STORIES OF HOPE FOR HEART PATIENTS Jen Lentini: Heart transplant recipient 7/6/96. Heart, Stories, UNOS Ambassador. I waited in hospital three months and received my heart transplant from a young boy named Matthew. His mother chose to give the gift of life to myself and many others. July 6, 1996 is myrebirth-day.
PSYCHOLOGICAL AND FINANCIAL INTERVIEWS The psychological interview checks on your mental health and helps you deal with the emotions of a transplant. You will talk with a psychiatrist, psychologist, or a social worker about your support system (family and friends who will help you after transplant), and your ability to cope with caring for a transplant. STORIES OF HOPE FOR LIVER PATIENTS Never knew I was sick. Liver. I woke up one Sunday morning in March, 2017 with my left arm swollen. I thought it was my heart so I went to a local ER and was diagnosed with cirrhosis and told I would need a transplant in 1 1/2 -2 years. I asked for a referral to Ohio State ,was admitted for 22
HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for yourSUPPORT GROUPS
Local support groups. Usually run by transplant patient, these groups consist of pre- and post-transplant patients and their families. They allow members who have already had their transplant to help you with the adjustment to a more normal, everyday lifestyle. HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. EMOTIONAL ASPECTS OF WAITING CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps you COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D).HOUSING COSTS
Year 1+ after surgery. You will visit your transplant hospital every 3-4 months for lab work and once a year for a visit with your doctor. Housing costs can add up quickly. To help defray some of these costs, you may be able to claim your medical-related travel, transportation,SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for yourSUPPORT GROUPS
Local support groups. Usually run by transplant patient, these groups consist of pre- and post-transplant patients and their families. They allow members who have already had their transplant to help you with the adjustment to a more normal, everyday lifestyle. HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. EMOTIONAL ASPECTS OF WAITING CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps you COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D).HOUSING COSTS
Year 1+ after surgery. You will visit your transplant hospital every 3-4 months for lab work and once a year for a visit with your doctor. Housing costs can add up quickly. To help defray some of these costs, you may be able to claim your medical-related travel, transportation,SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were forTREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
AFTER THE TRANSPLANT Follow your team’s pain management instructions to make the overall experience as comfortable as possible. Transplant is major surgery. It may take time to get back to eating normally, moving around, and managing your own care. Don’t be discouraged. Most recipients report feeling much better just after transplant. Others take longer toadjust.
PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. THE KIDNEY TRANSPLANT WAITLIST The kidney transplant waitlist is a list of people waiting for a kidney from someone who has died. You have to be on the waitlist or approved by a transplant center if you want a transplant, even if you find a living donor. UNOS (United Network for Organ Sharing) finds matches between people on the waitlist and donated kidneys.CAN I BE A DONOR?
Living donors must be at least 18 years old, mentally able to make a good decision, and in good health. Different transplant centers have different limits on who can donate. To donate, you can’t have: High blood pressure that can’t be lowered with medicine. Diabetes. FREQUENTLY ASKED QUESTIONS kidney. This is the most frequent type of living organ donation. All living kidney donors will experience a decrease in their kidney function, which varies depending on the donor’s age and medical history. liver. Individuals can donate a segment of the liver, whichhas the ability to
LIVING DONATION COSTS Insurance. Living donation may have a negative impact on the ability to obtain, maintain, or afford health, disability and life insurance. It is important to talk with your transplant center and your current insurance provider(s) regarding if being a living donor could affectyour coverage.
STORIES OF HOPE FOR HEART PATIENTS Jen Lentini: Heart transplant recipient 7/6/96. Heart, Stories, UNOS Ambassador. I waited in hospital three months and received my heart transplant from a young boy named Matthew. His mother chose to give the gift of life to myself and many others. July 6, 1996 is myrebirth-day.
PSYCHOLOGICAL AND FINANCIAL INTERVIEWS The psychological interview checks on your mental health and helps you deal with the emotions of a transplant. You will talk with a psychiatrist, psychologist, or a social worker about your support system (family and friends who will help you after transplant), and your ability to cope with caring for a transplant. STORIES OF HOPE FOR LIVER PATIENTS Never knew I was sick. Liver. I woke up one Sunday morning in March, 2017 with my left arm swollen. I thought it was my heart so I went to a local ER and was diagnosed with cirrhosis and told I would need a transplant in 1 1/2 -2 years. I asked for a referral to Ohio State ,was admitted for 22
HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. AFTER THE TRANSPLANT Follow your team’s pain management instructions to make the overall experience as comfortable as possible. Transplant is major surgery. It may take time to get back to eating normally, moving around, and managing your own care. Don’t be discouraged. Most recipients report feeling much better just after transplant. Others take longer toadjust.
CARING FOR TRANSPLANT PATIENTS It is important to follow your transplant team’s instructions for preventing infection which may include: Making sure your loved ones stay away from anyone who is sick, including yourself. Being cautious and hygienic around pets. Thoroughly washing your hands consistently with soap and water. Using disposal paper towels instead of reusing WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for your HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
EMOTIONAL ASPECTS OF WAITING COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D). WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. LIVING DONATION COSTS Insurance. Living donation may have a negative impact on the ability to obtain, maintain, or afford health, disability and life insurance. It is important to talk with your transplant center and your current insurance provider(s) regarding if being a living donor could affectyour coverage.
SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. AFTER THE TRANSPLANT Follow your team’s pain management instructions to make the overall experience as comfortable as possible. Transplant is major surgery. It may take time to get back to eating normally, moving around, and managing your own care. Don’t be discouraged. Most recipients report feeling much better just after transplant. Others take longer toadjust.
CARING FOR TRANSPLANT PATIENTS It is important to follow your transplant team’s instructions for preventing infection which may include: Making sure your loved ones stay away from anyone who is sick, including yourself. Being cautious and hygienic around pets. Thoroughly washing your hands consistently with soap and water. Using disposal paper towels instead of reusing WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for your HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
EMOTIONAL ASPECTS OF WAITING COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D). WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. LIVING DONATION COSTS Insurance. Living donation may have a negative impact on the ability to obtain, maintain, or afford health, disability and life insurance. It is important to talk with your transplant center and your current insurance provider(s) regarding if being a living donor could affectyour coverage.
SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were forTREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
CARING FOR TRANSPLANT PATIENTS It is important to follow your transplant team’s instructions for preventing infection which may include: Making sure your loved ones stay away from anyone who is sick, including yourself. Being cautious and hygienic around pets. Thoroughly washing your hands consistently with soap and water. Using disposal paper towels instead of reusing AFTER YOUR TRANSPLANT If you begin to feel flu-like symptoms including chills, body aches, nausea, cough, fever or shortness of breath, call your transplant coordinator right away. Often, changing your medication regimen can stop your body from rejecting the kidney. 1 out of 10 patients will have rejection symptoms, which may stop with changed medicine. WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. BEING A LIVING DONOR A domino transplant makes some heart-lung recipients living heart donors. When a patient receives a heart-lung “bloc” from a deceased donor, his or her healthy heart may be given to an individual waiting for a heart transplant. Extremely rare, this procedure is used when physicians determine that the deceased donor lungs will functionbest
HOW TO FIND A LIVING DONOR Allow other people to talk about your need for a living donor: Your family members, close friends, and other people you trust could do this well once they understand kidney disease and your treatment options. Find a kidney coach: It isn’t easy asking someone to consider donating a kidney. A kidney coach is someone who cares about you and wants to help you find a living donor. THE KIDNEY TRANSPLANT WAITLIST The kidney transplant waitlist is a list of people waiting for a kidney from someone who has died. You have to be on the waitlist or approved by a transplant center if you want a transplant, even if you find a living donor. UNOS (United Network for Organ Sharing) finds matches between people on the waitlist and donated kidneys. PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. FREQUENTLY ASKED QUESTIONS Frequently asked questions. What happens next? Who is my main contact at the transplant center? How is a transplant center different from other hospitals? What is pediatric priority for a child waiting for a transplant? Are there other options for children on the transplant waiting list? How can I find other parents who may be in the same CURTISHA ANDERSON: LIFE IS GOOD My name is Curtisha Anderson. I was diagnosed with Systemic Lupus Erythematosus in 1991 at the age of 14. My initial symptoms were extreme weight gain, fatigue, and high blood pressure. HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. AFTER THE TRANSPLANT Follow your team’s pain management instructions to make the overall experience as comfortable as possible. Transplant is major surgery. It may take time to get back to eating normally, moving around, and managing your own care. Don’t be discouraged. Most recipients report feeling much better just after transplant. Others take longer toadjust.
CARING FOR TRANSPLANT PATIENTS It is important to follow your transplant team’s instructions for preventing infection which may include: Making sure your loved ones stay away from anyone who is sick, including yourself. Being cautious and hygienic around pets. Thoroughly washing your hands consistently with soap and water. Using disposal paper towels instead of reusing HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for your EMOTIONAL ASPECTS OF WAITING WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D).SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for QUALIFYING FOR SOCIAL SECURITY BENEFITS AFTER AN ORGANSEE MORE ON TRANSPLANTLIVING.ORG HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. AFTER THE TRANSPLANT Follow your team’s pain management instructions to make the overall experience as comfortable as possible. Transplant is major surgery. It may take time to get back to eating normally, moving around, and managing your own care. Don’t be discouraged. Most recipients report feeling much better just after transplant. Others take longer toadjust.
CARING FOR TRANSPLANT PATIENTS It is important to follow your transplant team’s instructions for preventing infection which may include: Making sure your loved ones stay away from anyone who is sick, including yourself. Being cautious and hygienic around pets. Thoroughly washing your hands consistently with soap and water. Using disposal paper towels instead of reusing HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for your EMOTIONAL ASPECTS OF WAITING WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D).SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for QUALIFYING FOR SOCIAL SECURITY BENEFITS AFTER AN ORGANSEE MORE ON TRANSPLANTLIVING.ORGTREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
PROS AND CONS FOR A LIVING DONOR Medical possible long-term cons. Loss of 25-35% of kidney function. Long term pain. Adhesions (internal scars that connect tissues not usually connected) Scars, usually two small cuts and one longer one. Blocked bowel, which may need surgery to correct. Protein in urine, which may be a sign of diabetes. Kidney problems or a need for akidney
HOW TO FIND A LIVING DONOR Allow other people to talk about your need for a living donor: Your family members, close friends, and other people you trust could do this well once they understand kidney disease and your treatment options. Find a kidney coach: It isn’t easy asking someone to consider donating a kidney. A kidney coach is someone who cares about you and wants to help you find a living donor. BEING A LIVING DONOR A domino transplant makes some heart-lung recipients living heart donors. When a patient receives a heart-lung “bloc” from a deceased donor, his or her healthy heart may be given to an individual waiting for a heart transplant. Extremely rare, this procedure is used when physicians determine that the deceased donor lungs will functionbest
AFTER YOUR TRANSPLANT If you begin to feel flu-like symptoms including chills, body aches, nausea, cough, fever or shortness of breath, call your transplant coordinator right away. Often, changing your medication regimen can stop your body from rejecting the kidney. 1 out of 10 patients will have rejection symptoms, which may stop with changed medicine. WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. WHY CHOOSE A LIVING DONOR TRANSPLANT? Why choose a living donor transplant? Waiting time is shorter, and success rates are higher with living donor transplant. Most people in the United States wait about. 4 years. to get a kidney. But with living donation, you can get a transplant in. 1 year or less. once you find a matching donor. PRESCRIPTION DRUG ASSISTANCE Prescription drug assistance. Patient assistance programs for prescribed immunosuppressive medications are available by contacting: Roche Patient Assistance Program (Cellcept) 800-772-5790. Novartis Patient Assistance Program (Cyclosporine) 888-455-6655. Novartis Transplant Reimbursement Information (Neoral) CURTISHA ANDERSON: LIFE IS GOOD My name is Curtisha Anderson. I was diagnosed with Systemic Lupus Erythematosus in 1991 at the age of 14. My initial symptoms were extreme weight gain, fatigue, and high blood pressure. HOW TO COVER MEDICAL AND PERSONAL BILLS WHILE YOU RECOVER Many employees have the right to take unpaid leave for some family and medical reasons. FMLA leave lets you return to the same or an equal position and stay on the employer’s health insurance plan without having to pay higher costs for employees who’ve left their job. FMLA only covers you if you’re a government or public employee or you HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. AFTER THE TRANSPLANT Follow your team’s pain management instructions to make the overall experience as comfortable as possible. Transplant is major surgery. It may take time to get back to eating normally, moving around, and managing your own care. Don’t be discouraged. Most recipients report feeling much better just after transplant. Others take longer toadjust.
CARING FOR TRANSPLANT PATIENTS It is important to follow your transplant team’s instructions for preventing infection which may include: Making sure your loved ones stay away from anyone who is sick, including yourself. Being cautious and hygienic around pets. Thoroughly washing your hands consistently with soap and water. Using disposal paper towels instead of reusing HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for your EMOTIONAL ASPECTS OF WAITING WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D).SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for QUALIFYING FOR SOCIAL SECURITY BENEFITS AFTER AN ORGANSEE MORE ON TRANSPLANTLIVING.ORG HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. AFTER THE TRANSPLANT Follow your team’s pain management instructions to make the overall experience as comfortable as possible. Transplant is major surgery. It may take time to get back to eating normally, moving around, and managing your own care. Don’t be discouraged. Most recipients report feeling much better just after transplant. Others take longer toadjust.
CARING FOR TRANSPLANT PATIENTS It is important to follow your transplant team’s instructions for preventing infection which may include: Making sure your loved ones stay away from anyone who is sick, including yourself. Being cautious and hygienic around pets. Thoroughly washing your hands consistently with soap and water. Using disposal paper towels instead of reusing HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for your EMOTIONAL ASPECTS OF WAITING WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. COVERING TRANSPLANT COSTS Medicare prescription drug plans. Medicare Part D covers costs for prescription drugs. To get this coverage you must choose and join a Medicare drug plan. For more information call (800) MEDICARE ( 633-4227) / TTY (877) 486-2048 or visit www.medicare.gov (click on Medicare Basics > Part D).SEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for QUALIFYING FOR SOCIAL SECURITY BENEFITS AFTER AN ORGANSEE MORE ON TRANSPLANTLIVING.ORGTREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
PROS AND CONS FOR A LIVING DONOR Medical possible long-term cons. Loss of 25-35% of kidney function. Long term pain. Adhesions (internal scars that connect tissues not usually connected) Scars, usually two small cuts and one longer one. Blocked bowel, which may need surgery to correct. Protein in urine, which may be a sign of diabetes. Kidney problems or a need for akidney
HOW TO FIND A LIVING DONOR Allow other people to talk about your need for a living donor: Your family members, close friends, and other people you trust could do this well once they understand kidney disease and your treatment options. Find a kidney coach: It isn’t easy asking someone to consider donating a kidney. A kidney coach is someone who cares about you and wants to help you find a living donor. BEING A LIVING DONOR A domino transplant makes some heart-lung recipients living heart donors. When a patient receives a heart-lung “bloc” from a deceased donor, his or her healthy heart may be given to an individual waiting for a heart transplant. Extremely rare, this procedure is used when physicians determine that the deceased donor lungs will functionbest
AFTER YOUR TRANSPLANT If you begin to feel flu-like symptoms including chills, body aches, nausea, cough, fever or shortness of breath, call your transplant coordinator right away. Often, changing your medication regimen can stop your body from rejecting the kidney. 1 out of 10 patients will have rejection symptoms, which may stop with changed medicine. WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. WHY CHOOSE A LIVING DONOR TRANSPLANT? Why choose a living donor transplant? Waiting time is shorter, and success rates are higher with living donor transplant. Most people in the United States wait about. 4 years. to get a kidney. But with living donation, you can get a transplant in. 1 year or less. once you find a matching donor. PRESCRIPTION DRUG ASSISTANCE Prescription drug assistance. Patient assistance programs for prescribed immunosuppressive medications are available by contacting: Roche Patient Assistance Program (Cellcept) 800-772-5790. Novartis Patient Assistance Program (Cyclosporine) 888-455-6655. Novartis Transplant Reimbursement Information (Neoral) CURTISHA ANDERSON: LIFE IS GOOD My name is Curtisha Anderson. I was diagnosed with Systemic Lupus Erythematosus in 1991 at the age of 14. My initial symptoms were extreme weight gain, fatigue, and high blood pressure. HOW TO COVER MEDICAL AND PERSONAL BILLS WHILE YOU RECOVER Many employees have the right to take unpaid leave for some family and medical reasons. FMLA leave lets you return to the same or an equal position and stay on the employer’s health insurance plan without having to pay higher costs for employees who’ve left their job. FMLA only covers you if you’re a government or public employee or you HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives.TREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
HOW TO FIND A LIVING DONOR Allow other people to talk about your need for a living donor: Your family members, close friends, and other people you trust could do this well once they understand kidney disease and your treatment options. Find a kidney coach: It isn’t easy asking someone to consider donating a kidney. A kidney coach is someone who cares about you and wants to help you find a living donor.CAN I BE A DONOR?
Living donors must be at least 18 years old, mentally able to make a good decision, and in good health. Different transplant centers have different limits on who can donate. To donate, you can’t have: High blood pressure that can’t be lowered with medicine. Diabetes. PROS AND CONS FOR A LIVING DONOR Medical possible long-term cons. Loss of 25-35% of kidney function. Long term pain. Adhesions (internal scars that connect tissues not usually connected) Scars, usually two small cuts and one longer one. Blocked bowel, which may need surgery to correct. Protein in urine, which may be a sign of diabetes. Kidney problems or a need for akidney
HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
THE KIDNEY TRANSPLANT WAITLIST CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps youSEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for HOW TO COVER MEDICAL AND PERSONAL BILLS WHILE YOU RECOVER Many employees have the right to take unpaid leave for some family and medical reasons. FMLA leave lets you return to the same or an equal position and stay on the employer’s health insurance plan without having to pay higher costs for employees who’ve left their job. FMLA only covers you if you’re a government or public employee or you HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives.TREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
HOW TO FIND A LIVING DONOR Allow other people to talk about your need for a living donor: Your family members, close friends, and other people you trust could do this well once they understand kidney disease and your treatment options. Find a kidney coach: It isn’t easy asking someone to consider donating a kidney. A kidney coach is someone who cares about you and wants to help you find a living donor.CAN I BE A DONOR?
Living donors must be at least 18 years old, mentally able to make a good decision, and in good health. Different transplant centers have different limits on who can donate. To donate, you can’t have: High blood pressure that can’t be lowered with medicine. Diabetes. PROS AND CONS FOR A LIVING DONOR Medical possible long-term cons. Loss of 25-35% of kidney function. Long term pain. Adhesions (internal scars that connect tissues not usually connected) Scars, usually two small cuts and one longer one. Blocked bowel, which may need surgery to correct. Protein in urine, which may be a sign of diabetes. Kidney problems or a need for akidney
HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
THE KIDNEY TRANSPLANT WAITLIST CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps youSEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for HOW TO COVER MEDICAL AND PERSONAL BILLS WHILE YOU RECOVER Many employees have the right to take unpaid leave for some family and medical reasons. FMLA leave lets you return to the same or an equal position and stay on the employer’s health insurance plan without having to pay higher costs for employees who’ve left their job. FMLA only covers you if you’re a government or public employee or you HOME - TRANSPLANT LIVING Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. PROS AND CONS FOR A LIVING DONOR Medical possible long-term cons. Loss of 25-35% of kidney function. Long term pain. Adhesions (internal scars that connect tissues not usually connected) Scars, usually two small cuts and one longer one. Blocked bowel, which may need surgery to correct. Protein in urine, which may be a sign of diabetes. Kidney problems or a need for akidney
WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for yourHOUSING COSTS
Year 1+ after surgery. You will visit your transplant hospital every 3-4 months for lab work and once a year for a visit with your doctor. Housing costs can add up quickly. To help defray some of these costs, you may be able to claim your medical-related travel, transportation, WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. CHOOSING NOT TO TREAT YOUR KIDNEY DISEASE Some people choose to have no treatment for their kidney disease. You and your doctor may feel dialysis or transplant will not improve your health or make you feel better. Choosing not to have dialysis or transplant means your health will slowly get worse and you will likely die much sooner than you would have with treatment.MULTIPLE LISTING
Multiple listing involves registering at two or more transplant centers. Since candidates at centers local to the donor hospital are usually considered ahead of those who are more distant, multiple listing may increase your chances of receiving a local organ offer. 0:43. UNOS’ patient services assistant, Ruth Henson, explains whatmultiple
STORIES OF HOPE FOR KIDNEY PATIENTS 4-Time Kidney Recipient Giving Back. Kidney, Stories. I am a 4-time kidney transplant recipient who has been giving back ever since my first transplant. I was born in 1976 with kidney disease and my kidney function was only 10% for the first 10 years of my life. When I was 10 my health declined and it STORIES OF HOPE FOR HEART PATIENTS Jen Lentini: Heart transplant recipient 7/6/96. Heart, Stories, UNOS Ambassador. I waited in hospital three months and received my heart transplant from a young boy named Matthew. His mother chose to give the gift of life to myself and many others. July 6, 1996 is myrebirth-day.
STORIES OF HOPE FOR LIVER PATIENTS Never knew I was sick. Liver. I woke up one Sunday morning in March, 2017 with my left arm swollen. I thought it was my heart so I went to a local ER and was diagnosed with cirrhosis and told I would need a transplant in 1 1/2 -2 years. I asked for a referral to Ohio State ,was admitted for 22
HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. Read storiesTREATMENT OPTIONS
Treatment options. When your kidneys no longer work, you need to choose a treatment option to replace some of the work your kidneys were doing. There are 2 kinds of treatments: HOW TO FIND A LIVING DONOR Allow other people to talk about your need for a living donor: Your family members, close friends, and other people you trust could do this well once they understand kidney disease and your treatment options. Find a kidney coach: It isn’t easy asking someone to consider donating a kidney. A kidney coach is someone who cares about you and wants to help you find a living donor.CAN I BE A DONOR?
Can I be a donor? If you’re thinking about donating, you will go through a full medical exam. Living donors must be at least 18 years old, mentally able to make a good decision, and in good health. PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. HOW COULD I GET A TRANSPLANT SOONER? How could I get a transplant sooner? There are different kinds of donated kidneys – some with shorter wait times. It will be your job to choose which of these kidneys you’re willing to take – being open to more than 1 kind may make your wait shorter. THE KIDNEY TRANSPLANT WAITLIST CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps youSEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for HOW TO COVER MEDICAL AND PERSONAL BILLS WHILE YOU RECOVER UNOS proudly recognizes sponsors whose generosity helps make our lifesaving mission possible. Learn about sponsorships and our editorial standards. HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Transplant recipients, living donors, and donor families share how organ transplants transformed their lives. Read storiesTREATMENT OPTIONS
Treatment options. When your kidneys no longer work, you need to choose a treatment option to replace some of the work your kidneys were doing. There are 2 kinds of treatments: HOW TO FIND A LIVING DONOR Allow other people to talk about your need for a living donor: Your family members, close friends, and other people you trust could do this well once they understand kidney disease and your treatment options. Find a kidney coach: It isn’t easy asking someone to consider donating a kidney. A kidney coach is someone who cares about you and wants to help you find a living donor.CAN I BE A DONOR?
Can I be a donor? If you’re thinking about donating, you will go through a full medical exam. Living donors must be at least 18 years old, mentally able to make a good decision, and in good health. PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. HOW COULD I GET A TRANSPLANT SOONER? How could I get a transplant sooner? There are different kinds of donated kidneys – some with shorter wait times. It will be your job to choose which of these kidneys you’re willing to take – being open to more than 1 kind may make your wait shorter. THE KIDNEY TRANSPLANT WAITLIST CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps youSEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for HOW TO COVER MEDICAL AND PERSONAL BILLS WHILE YOU RECOVER UNOS proudly recognizes sponsors whose generosity helps make our lifesaving mission possible. Learn about sponsorships and our editorial standards. HOME - TRANSPLANT LIVING Find a support group. Receive support from other organ transplant patients and families by finding a support group near you. Click here to learn more and find the right type of PROS AND CONS FOR A LIVING DONOR Pros and cons for a living donor. Donating can be selfless and rewarding and studies have shown that living donors live just as long as people who never donated. WAITING FOR YOUR TRANSPLANT Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years.HOUSING COSTS
Planning for organ transplant surgery housing costs There are multiple non-medical costs that you should account for when planning for your organ transplant surgery. The cost for housing prior to and after your organ transplant can be one of the most expensive non-medical costs you encounter. If you don’t live close to your transplant center, WHAT TO SAY TO POSSIBLE DONORS What to say to possible donors. Whether it’s with 1 person or many, how you talk with people about living donation makes a difference. Here are some tips to help you do it right. CHOOSING NOT TO TREAT YOUR KIDNEY DISEASE Choosing not to treat your kidney disease. Some people choose to have no treatment for their kidney disease. You and your doctor may feel dialysis or transplant will STORIES OF HOPE FOR HEART PATIENTS This journey has been a rollercoaster of emotional highs and lows, and plenty of ups and downs. I am forever grateful to the donor family that selflessly gave my baby girl the gift of life.STORIES OF HOPE
The gift of life. At 13, Jen's life was turned upside down. But, she believes in the kindness of strangers because a special woman chose to give her the gift of life. Now Jen, a UNOS Ambassador, shares her story whenever she can to honor her donor. STORIES OF HOPE FOR KIDNEY PATIENTS I’ve been on dialysis for about a year and 6 months on the transplant list. On August 14, I got a phone call saying they want me to come in because they found a match for me. STORIES OF HOPE FOR LIVER PATIENTS I woke up one Sunday morning in March, 2017 with my left arm swollen. I thought it was my heart so I went to a local ER and was diagnosed with cirrhosis and told I would need a transplant in 1 1/2 -2 years. HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives.TREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
HOW TO FIND A LIVING DONOR Allow other people to talk about your need for a living donor: Your family members, close friends, and other people you trust could do this well once they understand kidney disease and your treatment options. Find a kidney coach: It isn’t easy asking someone to consider donating a kidney. A kidney coach is someone who cares about you and wants to help you find a living donor. WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for your HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
HOUSING COSTS
Year 1+ after surgery. You will visit your transplant hospital every 3-4 months for lab work and once a year for a visit with your doctor. Housing costs can add up quickly. To help defray some of these costs, you may be able to claim your medical-related travel, transportation,MULTIPLE LISTING
Multiple listing involves registering at two or more transplant centers. Since candidates at centers local to the donor hospital are usually considered ahead of those who are more distant, multiple listing may increase your chances of receiving a local organ offer. 0:43. UNOS’ patient services assistant, Ruth Henson, explains whatmultiple
EMOTIONAL ASPECTS OF WAITING THE KIDNEY TRANSPLANT WAITLIST STORIES OF HOPE FOR HEART PATIENTS Jen Lentini: Heart transplant recipient 7/6/96. Heart, Stories, UNOS Ambassador. I waited in hospital three months and received my heart transplant from a young boy named Matthew. His mother chose to give the gift of life to myself and many others. July 6, 1996 is myrebirth-day.
HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDS Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives.TREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
HOW TO FIND A LIVING DONOR Allow other people to talk about your need for a living donor: Your family members, close friends, and other people you trust could do this well once they understand kidney disease and your treatment options. Find a kidney coach: It isn’t easy asking someone to consider donating a kidney. A kidney coach is someone who cares about you and wants to help you find a living donor. WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for your HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
HOUSING COSTS
Year 1+ after surgery. You will visit your transplant hospital every 3-4 months for lab work and once a year for a visit with your doctor. Housing costs can add up quickly. To help defray some of these costs, you may be able to claim your medical-related travel, transportation,MULTIPLE LISTING
Multiple listing involves registering at two or more transplant centers. Since candidates at centers local to the donor hospital are usually considered ahead of those who are more distant, multiple listing may increase your chances of receiving a local organ offer. 0:43. UNOS’ patient services assistant, Ruth Henson, explains whatmultiple
THE KIDNEY TRANSPLANT WAITLIST EMOTIONAL ASPECTS OF WAITING STORIES OF HOPE FOR HEART PATIENTS Jen Lentini: Heart transplant recipient 7/6/96. Heart, Stories, UNOS Ambassador. I waited in hospital three months and received my heart transplant from a young boy named Matthew. His mother chose to give the gift of life to myself and many others. July 6, 1996 is myrebirth-day.
AFTER THE TRANSPLANT Follow your team’s pain management instructions to make the overall experience as comfortable as possible. Transplant is major surgery. It may take time to get back to eating normally, moving around, and managing your own care. Don’t be discouraged. Most recipients report feeling much better just after transplant. Others take longer toadjust.
KIDNEY - TRANSPLANT LIVING Learn more about kidney disease, prevention, and treatment through our Kidney Transplant Learning Center. Explore the Kidney Transplant Learning Center. The kidneys are a pair of bean-shaped organs located on either side of the spine just below the diaphragm, behind the liver and stomach. They filter out waste and extra fluid from your body.CAN I BE A DONOR?
Living donors must be at least 18 years old, mentally able to make a good decision, and in good health. Different transplant centers have different limits on who can donate. To donate, you can’t have: High blood pressure that can’t be lowered with medicine. Diabetes. PROS AND CONS OF LIVING DONOR TRANSPLANTS Feeling weak and tired all over your body. You have a small chance (1 in 20, or 5% chance) of having more serious problems from the surgery, such as: Problems from the anesthesia, such as feeling sick or confused, muscle aches, or hypothermia. Infections, most commonly a virus called CMV that can cause mild or severe illness. FREQUENTLY ASKED QUESTIONS kidney. This is the most frequent type of living organ donation. All living kidney donors will experience a decrease in their kidney function, which varies depending on the donor’s age and medical history. liver. Individuals can donate a segment of the liver, whichhas the ability to
WHAT IS DIALYSIS?
Dialysis uses a filtering machine or a special fluid in your belly to filter waste out of your body. This is usually something your kidneys do. Dialysis only filters out waste – it can’t replace other functions of your kidneys, such as making hormones. Dialysis only does 10-15% of the work that a healthy kidney would do. WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps youSEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for STORIES OF HOPE FOR LIVER PATIENTS Never knew I was sick. Liver. I woke up one Sunday morning in March, 2017 with my left arm swollen. I thought it was my heart so I went to a local ER and was diagnosed with cirrhosis and told I would need a transplant in 1 1/2 -2 years. I asked for a referral to Ohio State ,was admitted for 22
HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDSLIVER TRANSPLANT LIVING DONORLIVER TRANSPLANT LIVINGDONOR RISK
Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives.TREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
HOW TO FIND A LIVING DONOR Allow other people to talk about your need for a living donor: Your family members, close friends, and other people you trust could do this well once they understand kidney disease and your treatment options. Find a kidney coach: It isn’t easy asking someone to consider donating a kidney. A kidney coach is someone who cares about you and wants to help you find a living donor. WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for your HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
HOUSING COSTS
Year 1+ after surgery. You will visit your transplant hospital every 3-4 months for lab work and once a year for a visit with your doctor. Housing costs can add up quickly. To help defray some of these costs, you may be able to claim your medical-related travel, transportation,MULTIPLE LISTING
Multiple listing involves registering at two or more transplant centers. Since candidates at centers local to the donor hospital are usually considered ahead of those who are more distant, multiple listing may increase your chances of receiving a local organ offer. 0:43. UNOS’ patient services assistant, Ruth Henson, explains whatmultiple
EMOTIONAL ASPECTS OF WAITING THE KIDNEY TRANSPLANT WAITLIST STORIES OF HOPE FOR HEART PATIENTS Jen Lentini: Heart transplant recipient 7/6/96. Heart, Stories, UNOS Ambassador. I waited in hospital three months and received my heart transplant from a young boy named Matthew. His mother chose to give the gift of life to myself and many others. July 6, 1996 is myrebirth-day.
HOME - TRANSPLANT LIVINGORGAN FACTSBEFOREAFTERLIVING DONATIONCOSTSKIDSLIVER TRANSPLANT LIVING DONORLIVER TRANSPLANT LIVINGDONOR RISK
Living donation provides an alternative to kidney and liver patients waiting on the national transplant list. When your kidneys no longer work, you need to choose a treatment option. Transplant recipients, living donors, and donor families share how organ transplants transformed their lives.TREATMENT OPTIONS
A kidney transplant is a surgery where doctors take a kidney out of someone else and put it into your body. It can help you live longer and more comfortably than using dialysis. Not everyone is healthy enough to get a kidney transplant. There are 2 kinds of transplant: Deceased donor transplant: This is when the kidney comes from a donorwho
HOW TO FIND A LIVING DONOR Allow other people to talk about your need for a living donor: Your family members, close friends, and other people you trust could do this well once they understand kidney disease and your treatment options. Find a kidney coach: It isn’t easy asking someone to consider donating a kidney. A kidney coach is someone who cares about you and wants to help you find a living donor. WAITING FOR YOUR TRANSPLANT Waiting for your transplant. Wait times for transplants vary. Not everyone who needs a transplant will get one. Because of the shortage of organs that are suitable for donation, only slightly more than 50% of people on the waiting list will receive an organ within five years. After your evaluation, it’s important to prepare for your HOW COULD I GET A TRANSPLANT SOONER? A high KDPI (over 85) means the donor was older or sicker when they died. These kidneys typically last 7-10 years. They are also called ECD (extended donor criteria) kidneys. Your transplant center will need your written consent to transplant a kidney with a KDPI of morethan
HOUSING COSTS
Year 1+ after surgery. You will visit your transplant hospital every 3-4 months for lab work and once a year for a visit with your doctor. Housing costs can add up quickly. To help defray some of these costs, you may be able to claim your medical-related travel, transportation,MULTIPLE LISTING
Multiple listing involves registering at two or more transplant centers. Since candidates at centers local to the donor hospital are usually considered ahead of those who are more distant, multiple listing may increase your chances of receiving a local organ offer. 0:43. UNOS’ patient services assistant, Ruth Henson, explains whatmultiple
EMOTIONAL ASPECTS OF WAITING THE KIDNEY TRANSPLANT WAITLIST STORIES OF HOPE FOR HEART PATIENTS Jen Lentini: Heart transplant recipient 7/6/96. Heart, Stories, UNOS Ambassador. I waited in hospital three months and received my heart transplant from a young boy named Matthew. His mother chose to give the gift of life to myself and many others. July 6, 1996 is myrebirth-day.
AFTER THE TRANSPLANT Follow your team’s pain management instructions to make the overall experience as comfortable as possible. Transplant is major surgery. It may take time to get back to eating normally, moving around, and managing your own care. Don’t be discouraged. Most recipients report feeling much better just after transplant. Others take longer toadjust.
KIDNEY - TRANSPLANT LIVING Learn more about kidney disease, prevention, and treatment through our Kidney Transplant Learning Center. Explore the Kidney Transplant Learning Center. The kidneys are a pair of bean-shaped organs located on either side of the spine just below the diaphragm, behind the liver and stomach. They filter out waste and extra fluid from your body.CAN I BE A DONOR?
Living donors must be at least 18 years old, mentally able to make a good decision, and in good health. Different transplant centers have different limits on who can donate. To donate, you can’t have: High blood pressure that can’t be lowered with medicine. Diabetes. PROS AND CONS OF LIVING DONOR TRANSPLANTS Feeling weak and tired all over your body. You have a small chance (1 in 20, or 5% chance) of having more serious problems from the surgery, such as: Problems from the anesthesia, such as feeling sick or confused, muscle aches, or hypothermia. Infections, most commonly a virus called CMV that can cause mild or severe illness. FREQUENTLY ASKED QUESTIONS kidney. This is the most frequent type of living organ donation. All living kidney donors will experience a decrease in their kidney function, which varies depending on the donor’s age and medical history. liver. Individuals can donate a segment of the liver, whichhas the ability to
WHAT IS DIALYSIS?
Dialysis uses a filtering machine or a special fluid in your belly to filter waste out of your body. This is usually something your kidneys do. Dialysis only filters out waste – it can’t replace other functions of your kidneys, such as making hormones. Dialysis only does 10-15% of the work that a healthy kidney would do. WHAT TO SAY TO POSSIBLE DONORS The type of dialysis you are on and the way it has changed your life. Ask the person what they know about kidney transplant and living donation. Explain that you are wait listed for a kidney transplant. Describe the transplant waitlist and how many people are waiting. Describe risks, benefits, and process of deceased donor transplants. CONTACTING MY DONOR FAMILY Writing anything can be a challenge. Staring at a blank sheet of paper, you want to make sure to convey what you’re thinking and feeling, and to do it accurately. But sitting down to write a note to your donor family can feel overwhelming. The good news is that there are some simple steps youSEXUALITY CHANGES
Sexual concerns after transplantation are commonly experienced, yet seldom discussed or addressed during evaluation. It is therefore very important to talk with your doctor about your sexual history and concerns. However, sexual function and interest can be related to how well your body has accepted your new organ and how realistic your expectations were for STORIES OF HOPE FOR LIVER PATIENTS Never knew I was sick. Liver. I woke up one Sunday morning in March, 2017 with my left arm swollen. I thought it was my heart so I went to a local ER and was diagnosed with cirrhosis and told I would need a transplant in 1 1/2 -2 years. I asked for a referral to Ohio State ,was admitted for 22
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UNOS Network > Transplant Living COVID-19 NEWS AND RESOURCES FOR PATIENTSView now
CARE AFTER A TRANSPLANT Understand how to best care for yourself after an organ transplant. Expert advice on topics including preventing rejection, lifestyle changes, and other frequently asked questions.Learn more
THE GIFT OF LIFE
Living donation can be a great option for many transplant patients with a willing family member, friend, or loved one who wants to donate a kidney, liver segment, or lobe from a lung.Learn more
INSPIRATIONAL STORIES OF HOPE True stories in their own words from transplant recipients, living donors, and donor families whose lives were forever changed and connected to organ donation and transplantation.Read more
KNOW YOUR TRANSPLANT TEAM Whether you or a loved one are having a transplant, there will be multiple people who will be part of your transplant team. Find out the people you should know before a transplant.Learn more
WAITING FOR A TRANSPLANT Waiting for an organ transplant can be difficult. Our patient services team provides information to better understand the organ transplant process from wait times to emotional aspects.Learn more
UNDERSTAND THE COSTS From medical to non-medical costs, there are various costs prior, during, and after your organ transplant surgery. Be prepared by understanding the costs and create a financial plan. Learn about transplant costs LIFE AFTER A KIDNEY TRANSPLANT There can be a lot of questions on how to best care for your new kidney after a transplant. Learn more about caring for your new kidney through our Kidney Transplant Learning Center.Learn more
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39,719
TRANSPLANTS performed in 20197,397
LIVING DONOR TRANSPLANTS performed last year Learn about living donation Based on OPTN data as of Apr. 1, 2020. Data subject to change based on future data submission or correction. KIDNEY TRANSPLANT LEARNING CENTER More than 670,000 people in the United States live with end-stage renal disease and more than 100,000 people are on the kidney transplant waitlist. Learn the facts, risks, and benefits of:* Dialysis
* Transplant from a deceased donor * Transplant from a living donor * Find a living donor * Become a living donorGet started
STORIES OF HOPE
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THE CULLEN FAMILY: CELEBRATING NATIONAL DONATE LIFE MONTH The Cullen family talk about how living donation saved theirdaughter’s life.
JOSEPH HILLENBURG: CELEBRATING NATIONAL DONATE LIFE MONTH To celebrate both National Donate Life Month and National Pediatric Transplant Week, Joseph Hillenburg, shares his perspective as father of Ben, a transplant recipient. MARGO GILL: CELEBRATING NATIONAL DONATE LIFE MONTH Dr. Margo Gill honors her son Logan and stresses the importance of blood donation during this critical time.LIVING DONATION
Living donation is when a healthy living organ donor gives an organ such as a kidney or part of an organ such as a portion of a lung, liver, pancreas, or intestine toa recipient.
COSTS
Before undergoing an organ transplant, it’s important to understand the costs. You will want to work with your transplant team make sure you have an individual plan to cover transplant costs.
KIDNEY DISEASE AND TREATMENT There can be multiple circumstances and medical conditions that lead to kidney disease. Learn more about kidney disease and treatment options through our Kidney Transplant Learning Center.
CAREGIVERS
In order for patients to have successful transplant outcomes, it’s important for organ recipients or living donors to have quality care and support before and after surgery. Learn more.
FIND A SUPPORT GROUP Receive support from other organ transplant patients and families by finding a support group near you. Click here to learn more and find the right type of support group for you or your family.IN THE NEWS
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NEW NATIONAL LIVER AND INTESTINAL ORGAN TRANSPLANT SYSTEM IN EFFECTFEB. 4, 2020
Feb 4, 2020
New national liver and intestinal organ transplant system based on acuity circles implemented Feb. 4, 2020 TRANSPLANT PATIENT WEBINAR ADDRESSES PROPOSED CHANGES TO KIDNEY AND PANCREAS DISTRIBUTIONSep 5, 2019
The OPTN Kidney and Pancreas Transplantation Committees will host a webinar on Monday, September 16, 2019, from 4 to 5 p.m. EDT to describe the proposals for transplant patients and family members and encourage them to comment on the proposals. HEART RECIPIENT HONORED WITH 2019 NDM AWARD FOR EXCELLENCEJun 25, 2019
United Network for Organ Sharing (UNOS) named James “Jim” Gleason of Beverly, NJ, the winner of its 2019 National Donor Memorial Award for Excellence in recognition of his untiring efforts as a donation advocate. Jim’s volunteer journey began 25 years ago when he...PATIENT BROCHURES
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